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    • 1 hour, 48 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 1 hour, 51 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 3 hours, 5 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 3 hours, 6 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 3 hours, 13 minutes ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 3 hours, 15 minutes ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 3 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 3 hours, 29 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 3 hours, 51 minutes ago
      Judith Halterman likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 3 hours, 54 minutes ago
      Derek West likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 19 hours, 3 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day, 1 hour ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 1 day, 3 hours ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 4 hours ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 22 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 3 days ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 3 days, 2 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 3 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 3 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 3 days, 3 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 18 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 13 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 2 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 3 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
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    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)

    Home > LC Polls > After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    28 Comments

    1. Carol Meares

      Mostly satisfied but sometimes frustrated as we get sidetracked and I don’t always feel like I covered everything. I do bring a list and check before leaving so most of the time I am satisfied. It can be a matter of missed nuances.

      5 years ago Log in to Reply
    2. ConnieT1D62

      Too bad we can only click on one answer, even though it says (Select all that apply!)
      I chose Optimistic – but I also feel Satisfied and Other: Generally Relieved that I am doing a good job of caring for myself and managing my diabetes no matter what challenges present themselves.

      5 years ago Log in to Reply
    3. mentat

      Always dissatisfied. My diabetes is uncontrollable and nobody really knows what to do for me. But nobody has gone out of their way to help. I’ve seen 8 endos over the years.

      5 years ago Log in to Reply
      1. Kathy Hanavan

        There has to be someone who can help. I can highly recommend https://integrateddiabetes.com. All the care is online and they have amazing staff all of whom have diabetes and really care. It was started by Gary Scheiner who wrote Think Like a Pancreas.

        4
        5 years ago Log in to Reply
    4. Ahh Life

      I selected happy / positive. But then I got to thinking. That’s probably my reaction to conversing with any human being I meet. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      6
      5 years ago Log in to Reply
    5. connie ker

      I would like to add my personal word of “THANKFUL” because this Endo NP and RN come to my city now and I don’t have to drive over an hour by myself to see them. It used to take 1/2 of the day with a meal to see an endo NP, now it is so convenient for a senior widow to stay close to home with T1D. So I am THANKFUL and it is a social outing for me like “AH LIFE”. I am also THANKFUL to get good test results and be able to walk in and out of the facility building.

      3
      5 years ago Log in to Reply
    6. cynthia jaworski

      Overwhelmingly, I feel glad that it is over with.

      2
      5 years ago Log in to Reply
    7. cmrobinson227

      Motivated

      5 years ago Log in to Reply
    8. Gina Lucero

      Relieved

      1
      5 years ago Log in to Reply
    9. Joan McGinnis

      I feel very good. Proud to be where there is a choice and excellent training at our medical schools

      5 years ago Log in to Reply
    10. Joan McGinnis

      Grateful I am listened to very well.

      1
      5 years ago Log in to Reply
    11. Andrew Stewart

      Encouraged, optimistic, inspired and positive because perfection doesn’t exist but you have to keep trying.

      5 years ago Log in to Reply
    12. TomH

      Being dx’d at age 67 and having demonstrated some knowledge from my own research of D, I think my doc doesn’t do a very good job of presenting the what’s, why’s, and possible alternatives of treatments, pumps, CGMS, etc. it’s like I’m expected to know, but don’t. I’m relatively happy with my TIR, A1c, etc., but I’m doing it by my self, there’s no “team”, no NP, no CDE, even the docs nurses are temp help and that’s with a large medical Corp backing her. I had to ask for mealtime insulin, I asked for the CGM, I’m the one asking about pumps. She knows her stuff, but I seem to have to pull the string and know there’s a string to be pulled. So I’m looking for a new doc.

      1
      5 years ago Log in to Reply
      1. PamK

        I know exactly what you mean, Tom. I have the same issue. The only difference is, I was diagnosed at age 2 1/2. Even though I’ve got more experience, I still have questions from time to time that don’t get answered. I also do not have a “team.” My endo does not have an NP or CDE either.

        5 years ago Log in to Reply
    13. Daniel Diehl

      Relieved
      Doctor visits cause my BP to rise.
      Before leaving it’s taken again and I can go on my way.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      Most recently “happy, positive” that I’m doing what I can to maintain an 89 – 100% TIR.

      5 years ago Log in to Reply
    15. PamK

      I chose “neither satisfied or dissatisfied” and “other” because while my endo listens well, he isn’t always in tune with me. He has given me some good advice at times, but sometimes he doesn’t see the whole picture. Here’s a recent example:
      Him: Your BG is running high at dinner, we should adjust your basal.
      Me: It appears to be running high because I’m having to treat a low in the afternoon. I’ve already reduced that basal yesterday. Him: Okay, we can wait to see what happens if that’s what you think it is.
      Doesn’t give me much confidence in him, unfortunately.

      5 years ago Log in to Reply
    16. Jenn Velez

      It really depends on how the visit went.

      5 years ago Log in to Reply
    17. Kathy Morison

      My experience with most Endo’s have ended up being very disappointing, esoecially this latest doctor I started seeing. But, my last appointment was with one of his nurse practitioners and was pleasantly surprised and satisfied with the level of friendly, caring and informative interaction.

      5 years ago Log in to Reply
      1. Jneticdiabetic

        I’d agree that I get more useful advice from my CDE/Nurse practitioner. She seems to have a better handle on the latest diabetes tech and creative ideas to work around BG challenges.

        5 years ago Log in to Reply
    18. KarenM6

      I’m always anxious… even when they tell me I’m doing a good job. My brain always says, “are you _sure_?”

      5 years ago Log in to Reply
    19. Andrew Carpenter

      Glad it’s over. It’s become clear that I take my IDDM care more serious then the Doc or Some of the staff.

      5 years ago Log in to Reply
    20. M C

      Generally I’m satisfied. As to what some others have written, I have also found my Endo not forthcoming on topics, unless I ask. Can be frustrating, but have found the Diabetes Educator a better source of information, when I get to meet with her.

      5 years ago Log in to Reply
    21. Patricia Dalrymple

      My choice would be: good, that’s over for 4 months. I mostly manage it myself. If he adjusts my basal rate I see what happens and then I might adjust it back. He never notices. I’m a very healthy diabetic so I’m sure it’s like relief that I am and he’s on to the patient who doesn’t do as they should. He lets me come every 4 months instead of every 3 because I manage it well and I take no other meds for any other health issue (at this time).

      5 years ago Log in to Reply
    22. Britni

      Can “tired” be an option? When things were going well I’d leave feeling pretty satisfied, I guess, but lately I just feel kind of down.

      5 years ago Log in to Reply
      1. Jneticdiabetic

        Hang in there, Britni! 🌻

        5 years ago Log in to Reply
    23. LizB

      This year especially I have been leaving feeling good. After 34 years I am well controlled (pump + CGM, manual mode), have a great A1c and have really cut down on severe lows. My new endo is willing to talk about anything and he’s been very happy with my progress. No complications so far so I feel pretty optimistic.

      1
      5 years ago Log in to Reply
    24. Cheryl Seibert

      I’m normally very happy especially if my TIR and A1C has improved (I’ve always been below 7 and > 85% in range, but I like to over-achieve! LOL!). If endo is happy, then I’m happy. If my endo and I are unable to resolve an issue with the pump (insulin site reactions, insurance coverage, etc.). then I am frustrated. The BIGGEST problem is the doctor pharmacy communications issues (endo says they didn’t receive the fax and pharmacy said they sent it…. I have to resolve it myself with repeated calls to both companies).

      5 years ago Log in to Reply

    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!) Cancel reply

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