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  • Activity
    • 15 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 15 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 16 hours, 37 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 16 hours, 43 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 16 hours, 44 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 16 hours, 44 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 16 hours, 48 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 16 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 16 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 16 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 16 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 16 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 17 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 10 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 30 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 17 hours, 39 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 17 hours, 39 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 17 hours, 39 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 17 hours, 40 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 17 hours, 40 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 17 hours, 40 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 17 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)

    Home > LC Polls > After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)
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    28 Comments

    1. Carol Meares

      Mostly satisfied but sometimes frustrated as we get sidetracked and I don’t always feel like I covered everything. I do bring a list and check before leaving so most of the time I am satisfied. It can be a matter of missed nuances.

      2 years ago Log in to Reply
    2. ConnieT1D62

      Too bad we can only click on one answer, even though it says (Select all that apply!)
      I chose Optimistic – but I also feel Satisfied and Other: Generally Relieved that I am doing a good job of caring for myself and managing my diabetes no matter what challenges present themselves.

      2 years ago Log in to Reply
    3. mentat

      Always dissatisfied. My diabetes is uncontrollable and nobody really knows what to do for me. But nobody has gone out of their way to help. I’ve seen 8 endos over the years.

      2 years ago Log in to Reply
      1. Kathy Hanavan

        There has to be someone who can help. I can highly recommend https://integrateddiabetes.com. All the care is online and they have amazing staff all of whom have diabetes and really care. It was started by Gary Scheiner who wrote Think Like a Pancreas.

        4
        2 years ago Log in to Reply
    4. Ahh Life

      I selected happy / positive. But then I got to thinking. That’s probably my reaction to conversing with any human being I meet. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      6
      2 years ago Log in to Reply
    5. connie ker

      I would like to add my personal word of “THANKFUL” because this Endo NP and RN come to my city now and I don’t have to drive over an hour by myself to see them. It used to take 1/2 of the day with a meal to see an endo NP, now it is so convenient for a senior widow to stay close to home with T1D. So I am THANKFUL and it is a social outing for me like “AH LIFE”. I am also THANKFUL to get good test results and be able to walk in and out of the facility building.

      3
      2 years ago Log in to Reply
    6. cynthia jaworski

      Overwhelmingly, I feel glad that it is over with.

      2
      2 years ago Log in to Reply
    7. cmrobinson227

      Motivated

      2 years ago Log in to Reply
    8. Gina Lucero

      Relieved

      1
      2 years ago Log in to Reply
    9. Joan McGinnis

      I feel very good. Proud to be where there is a choice and excellent training at our medical schools

      2 years ago Log in to Reply
    10. Joan McGinnis

      Grateful I am listened to very well.

      1
      2 years ago Log in to Reply
    11. Andrew Stewart

      Encouraged, optimistic, inspired and positive because perfection doesn’t exist but you have to keep trying.

      2 years ago Log in to Reply
    12. TomH

      Being dx’d at age 67 and having demonstrated some knowledge from my own research of D, I think my doc doesn’t do a very good job of presenting the what’s, why’s, and possible alternatives of treatments, pumps, CGMS, etc. it’s like I’m expected to know, but don’t. I’m relatively happy with my TIR, A1c, etc., but I’m doing it by my self, there’s no “team”, no NP, no CDE, even the docs nurses are temp help and that’s with a large medical Corp backing her. I had to ask for mealtime insulin, I asked for the CGM, I’m the one asking about pumps. She knows her stuff, but I seem to have to pull the string and know there’s a string to be pulled. So I’m looking for a new doc.

      1
      2 years ago Log in to Reply
      1. PamK

        I know exactly what you mean, Tom. I have the same issue. The only difference is, I was diagnosed at age 2 1/2. Even though I’ve got more experience, I still have questions from time to time that don’t get answered. I also do not have a “team.” My endo does not have an NP or CDE either.

        2 years ago Log in to Reply
    13. Daniel Diehl

      Relieved
      Doctor visits cause my BP to rise.
      Before leaving it’s taken again and I can go on my way.

      2 years ago Log in to Reply
    14. Janis Senungetuk

      Most recently “happy, positive” that I’m doing what I can to maintain an 89 – 100% TIR.

      2 years ago Log in to Reply
    15. PamK

      I chose “neither satisfied or dissatisfied” and “other” because while my endo listens well, he isn’t always in tune with me. He has given me some good advice at times, but sometimes he doesn’t see the whole picture. Here’s a recent example:
      Him: Your BG is running high at dinner, we should adjust your basal.
      Me: It appears to be running high because I’m having to treat a low in the afternoon. I’ve already reduced that basal yesterday. Him: Okay, we can wait to see what happens if that’s what you think it is.
      Doesn’t give me much confidence in him, unfortunately.

      2 years ago Log in to Reply
    16. Jenn Velez

      It really depends on how the visit went.

      2 years ago Log in to Reply
    17. Kathy Morison

      My experience with most Endo’s have ended up being very disappointing, esoecially this latest doctor I started seeing. But, my last appointment was with one of his nurse practitioners and was pleasantly surprised and satisfied with the level of friendly, caring and informative interaction.

      2 years ago Log in to Reply
      1. Jneticdiabetic

        I’d agree that I get more useful advice from my CDE/Nurse practitioner. She seems to have a better handle on the latest diabetes tech and creative ideas to work around BG challenges.

        2 years ago Log in to Reply
    18. KarenM6

      I’m always anxious… even when they tell me I’m doing a good job. My brain always says, “are you _sure_?”

      2 years ago Log in to Reply
    19. Andrew Carpenter

      Glad it’s over. It’s become clear that I take my IDDM care more serious then the Doc or Some of the staff.

      2 years ago Log in to Reply
    20. M C

      Generally I’m satisfied. As to what some others have written, I have also found my Endo not forthcoming on topics, unless I ask. Can be frustrating, but have found the Diabetes Educator a better source of information, when I get to meet with her.

      2 years ago Log in to Reply
    21. Patricia Dalrymple

      My choice would be: good, that’s over for 4 months. I mostly manage it myself. If he adjusts my basal rate I see what happens and then I might adjust it back. He never notices. I’m a very healthy diabetic so I’m sure it’s like relief that I am and he’s on to the patient who doesn’t do as they should. He lets me come every 4 months instead of every 3 because I manage it well and I take no other meds for any other health issue (at this time).

      2 years ago Log in to Reply
    22. Britni

      Can “tired” be an option? When things were going well I’d leave feeling pretty satisfied, I guess, but lately I just feel kind of down.

      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hang in there, Britni! 🌻

        2 years ago Log in to Reply
    23. LizB

      This year especially I have been leaving feeling good. After 34 years I am well controlled (pump + CGM, manual mode), have a great A1c and have really cut down on severe lows. My new endo is willing to talk about anything and he’s been very happy with my progress. No complications so far so I feel pretty optimistic.

      1
      2 years ago Log in to Reply
    24. Cheryl Seibert

      I’m normally very happy especially if my TIR and A1C has improved (I’ve always been below 7 and > 85% in range, but I like to over-achieve! LOL!). If endo is happy, then I’m happy. If my endo and I are unable to resolve an issue with the pump (insulin site reactions, insurance coverage, etc.). then I am frustrated. The BIGGEST problem is the doctor pharmacy communications issues (endo says they didn’t receive the fax and pharmacy said they sent it…. I have to resolve it myself with repeated calls to both companies).

      2 years ago Log in to Reply

    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!) Cancel reply

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