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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)

    Home > LC Polls > After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!)
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    28 Comments

    1. Carol Meares

      Mostly satisfied but sometimes frustrated as we get sidetracked and I don’t always feel like I covered everything. I do bring a list and check before leaving so most of the time I am satisfied. It can be a matter of missed nuances.

      5 years ago Log in to Reply
    2. ConnieT1D62

      Too bad we can only click on one answer, even though it says (Select all that apply!)
      I chose Optimistic – but I also feel Satisfied and Other: Generally Relieved that I am doing a good job of caring for myself and managing my diabetes no matter what challenges present themselves.

      5 years ago Log in to Reply
    3. mentat

      Always dissatisfied. My diabetes is uncontrollable and nobody really knows what to do for me. But nobody has gone out of their way to help. I’ve seen 8 endos over the years.

      5 years ago Log in to Reply
      1. Kathy Hanavan

        There has to be someone who can help. I can highly recommend https://integrateddiabetes.com. All the care is online and they have amazing staff all of whom have diabetes and really care. It was started by Gary Scheiner who wrote Think Like a Pancreas.

        4
        5 years ago Log in to Reply
    4. Ahh Life

      I selected happy / positive. But then I got to thinking. That’s probably my reaction to conversing with any human being I meet. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      6
      5 years ago Log in to Reply
    5. connie ker

      I would like to add my personal word of “THANKFUL” because this Endo NP and RN come to my city now and I don’t have to drive over an hour by myself to see them. It used to take 1/2 of the day with a meal to see an endo NP, now it is so convenient for a senior widow to stay close to home with T1D. So I am THANKFUL and it is a social outing for me like “AH LIFE”. I am also THANKFUL to get good test results and be able to walk in and out of the facility building.

      3
      5 years ago Log in to Reply
    6. cynthia jaworski

      Overwhelmingly, I feel glad that it is over with.

      2
      5 years ago Log in to Reply
    7. cmrobinson227

      Motivated

      5 years ago Log in to Reply
    8. Gina Lucero

      Relieved

      1
      5 years ago Log in to Reply
    9. Joan McGinnis

      I feel very good. Proud to be where there is a choice and excellent training at our medical schools

      5 years ago Log in to Reply
    10. Joan McGinnis

      Grateful I am listened to very well.

      1
      5 years ago Log in to Reply
    11. Andrew Stewart

      Encouraged, optimistic, inspired and positive because perfection doesn’t exist but you have to keep trying.

      5 years ago Log in to Reply
    12. TomH

      Being dx’d at age 67 and having demonstrated some knowledge from my own research of D, I think my doc doesn’t do a very good job of presenting the what’s, why’s, and possible alternatives of treatments, pumps, CGMS, etc. it’s like I’m expected to know, but don’t. I’m relatively happy with my TIR, A1c, etc., but I’m doing it by my self, there’s no “team”, no NP, no CDE, even the docs nurses are temp help and that’s with a large medical Corp backing her. I had to ask for mealtime insulin, I asked for the CGM, I’m the one asking about pumps. She knows her stuff, but I seem to have to pull the string and know there’s a string to be pulled. So I’m looking for a new doc.

      1
      5 years ago Log in to Reply
      1. PamK

        I know exactly what you mean, Tom. I have the same issue. The only difference is, I was diagnosed at age 2 1/2. Even though I’ve got more experience, I still have questions from time to time that don’t get answered. I also do not have a “team.” My endo does not have an NP or CDE either.

        5 years ago Log in to Reply
    13. Daniel Diehl

      Relieved
      Doctor visits cause my BP to rise.
      Before leaving it’s taken again and I can go on my way.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      Most recently “happy, positive” that I’m doing what I can to maintain an 89 – 100% TIR.

      5 years ago Log in to Reply
    15. PamK

      I chose “neither satisfied or dissatisfied” and “other” because while my endo listens well, he isn’t always in tune with me. He has given me some good advice at times, but sometimes he doesn’t see the whole picture. Here’s a recent example:
      Him: Your BG is running high at dinner, we should adjust your basal.
      Me: It appears to be running high because I’m having to treat a low in the afternoon. I’ve already reduced that basal yesterday. Him: Okay, we can wait to see what happens if that’s what you think it is.
      Doesn’t give me much confidence in him, unfortunately.

      5 years ago Log in to Reply
    16. Jenn Velez

      It really depends on how the visit went.

      5 years ago Log in to Reply
    17. Kathy Morison

      My experience with most Endo’s have ended up being very disappointing, esoecially this latest doctor I started seeing. But, my last appointment was with one of his nurse practitioners and was pleasantly surprised and satisfied with the level of friendly, caring and informative interaction.

      5 years ago Log in to Reply
      1. Jneticdiabetic

        I’d agree that I get more useful advice from my CDE/Nurse practitioner. She seems to have a better handle on the latest diabetes tech and creative ideas to work around BG challenges.

        5 years ago Log in to Reply
    18. KarenM6

      I’m always anxious… even when they tell me I’m doing a good job. My brain always says, “are you _sure_?”

      5 years ago Log in to Reply
    19. Andrew Carpenter

      Glad it’s over. It’s become clear that I take my IDDM care more serious then the Doc or Some of the staff.

      5 years ago Log in to Reply
    20. M C

      Generally I’m satisfied. As to what some others have written, I have also found my Endo not forthcoming on topics, unless I ask. Can be frustrating, but have found the Diabetes Educator a better source of information, when I get to meet with her.

      5 years ago Log in to Reply
    21. Patricia Dalrymple

      My choice would be: good, that’s over for 4 months. I mostly manage it myself. If he adjusts my basal rate I see what happens and then I might adjust it back. He never notices. I’m a very healthy diabetic so I’m sure it’s like relief that I am and he’s on to the patient who doesn’t do as they should. He lets me come every 4 months instead of every 3 because I manage it well and I take no other meds for any other health issue (at this time).

      5 years ago Log in to Reply
    22. Britni

      Can “tired” be an option? When things were going well I’d leave feeling pretty satisfied, I guess, but lately I just feel kind of down.

      5 years ago Log in to Reply
      1. Jneticdiabetic

        Hang in there, Britni! 🌻

        5 years ago Log in to Reply
    23. LizB

      This year especially I have been leaving feeling good. After 34 years I am well controlled (pump + CGM, manual mode), have a great A1c and have really cut down on severe lows. My new endo is willing to talk about anything and he’s been very happy with my progress. No complications so far so I feel pretty optimistic.

      1
      5 years ago Log in to Reply
    24. Cheryl Seibert

      I’m normally very happy especially if my TIR and A1C has improved (I’ve always been below 7 and > 85% in range, but I like to over-achieve! LOL!). If endo is happy, then I’m happy. If my endo and I are unable to resolve an issue with the pump (insulin site reactions, insurance coverage, etc.). then I am frustrated. The BIGGEST problem is the doctor pharmacy communications issues (endo says they didn’t receive the fax and pharmacy said they sent it…. I have to resolve it myself with repeated calls to both companies).

      4 years ago Log in to Reply

    After leaving a doctors appointment with your main diabetes provider, which emotions do you usually feel? (Select all that apply!) Cancel reply

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