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    • 40 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 40 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 4 hours, 43 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 6 hours, 45 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 7 hours, 27 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 7 hours, 31 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 54 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 7 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 7 hours, 55 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 7 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 7 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 1 minute ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 4 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 8 hours, 4 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 8 hours, 17 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 8 hours, 46 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 20 hours, 42 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 23 hours, 2 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 3 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 1 day ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?

    Home > LC Polls > At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    14 Comments

    1. Steven Gill

      I’m not bashful about it, guess it’s part of what makes me work harder. When testing or injecting I’d ask if anyone was squeamish or minded. Absolutely nobody cared. Of course if asked about TYPE 1 diabetes I’d say I had a crippling disease that made me handicapped and unable to survive…

      After working a 10 day/90 hour week (presently at least 3 more days to go). Everyone knows I ‘m on insulin, I’ve tested quite a few blood sugars, seems just about everyone has a cousin/uncle/friend who’s diabetic and struggling (a co-worker’s dad just had toes amputated).

      Yeah I relish to hear “You don’t look like…” or “You don’t act like…” Means I just might die of old age?

      4
      4 years ago Log in to Reply
      1. Ahh Life

        Here’s rooting for old age as the cause, . . . 🌈

        6
        4 years ago Log in to Reply
    2. Britni

      All of my coworkers know. We eat lunch together every day and they hear my Libre alarms all the time. No sense hiding it. Plus my glucagon is useless in an emergency if no one knows about it.

      3
      4 years ago Log in to Reply
    3. Sherolyn Newell

      I’d say pretty much everyone knows. It’s not a big deal around here. A couple people have T1D kids, so they know how it works.

      1
      4 years ago Log in to Reply
    4. Mick Martin

      Many of my coworkers knew that I had diabetes, though some didn’t know the difference between Type 1 and Type 2, even though I’d tried to explain things to them on more than one occasion.

      My immediate coworkers were NOT the ‘problem’. The ‘problem’ existed with my superiors (sic) who used the fact that I’m diabetic against me. i.e. I had to ‘fight’ to get accepted to do Social Work training, with members of the hierarchy suggesting that “it could prove too stressful” for me to complete, and worries that I “may miss time attending the course(s)” due to my diabetes.

      I’ve even talked myself out of being offered different jobs within Social Services as I ‘couldn’t keep my big mouth shut’ and explained that it was down to interviewers’ ignorance about diabetes as to their ‘attitude’ towards me during interviews. 😉

      1
      4 years ago Log in to Reply
    5. Virginia Barndollar

      Yes, all of them! As a CCU clinical Pharmacist the nursing and medical staff that I worked with daily, all were aware. And supportive!

      1
      4 years ago Log in to Reply
    6. Sarah Austin

      I was going to answer that some of them know,those I work closely with and are located nearby but I changed it to most of them know as my CGM is usually visible on the back of my arm

      1
      4 years ago Log in to Reply
    7. Thomas Brady

      Holding a top executive position at my last company, and for twenty-five years before that at other companies, I NEVER told anyone except my administrative assistant or executive secretary. With the level of responsibility I had, the competition moving up the corporate ladder and general ignorance about diabetes I found it easier to not disclose it. I had absolute trust in the discretion of my assistant or secretary and they never failed me. If meetings were running over mealtime, she would always offer coffee, drinks or snacks to everyone in the meeting and say to me “The usual for you?” which meant a soda or juice and some packaged cookies. No one was ever the wiser.

      6
      4 years ago Log in to Reply
    8. ConnieT1D62

      Yes, all of them. I never hide it or keep it a secret. They need to know “just in case” an event arises where I need assistance or in a highly unlikely situation where I am unable to answer for myself.

      4 years ago Log in to Reply
    9. Janice B

      I work at a small office and everyone at work knows that I have T1D.

      4 years ago Log in to Reply
    10. Janis Senungetuk

      A severe low at my last 40 hour position many years ago is the reason I became self-employed. I was terminated for creating a disruptive work experience. The Assistant Manager of the department was aware that I had T1D, came to my work area but instead of getting a Coke from the lunchroom called for EMTs to treat me.

      4 years ago Log in to Reply
    11. Lawrence S.

      I’m retired. But, when I was working, I found it to my advantage to tell as many people as possible about my condition, and how to treat a low blood sugar.

      A funny story was when I had a low blood sugar during a physical training session at work. A coworker grabbed me by the arm and ran me down to the administration building and poured a can of soda down my throat. Unfortunately, it was diet soda. Luckily, I became conscious enough to realize that it was diet soda, and was able to get to my bottle of juice. I appreciated that my coworker helped me, and tried his best. In the end, we all got through it okay, and I was back out within 20 minutes finishing the physical therapy session.

      1
      4 years ago Log in to Reply
    12. PamK

      I don’t try to hide my diabetes. However, working as a long-term substitute teacher, I only know the other teachers in my building. So, most of them are aware. As for the rest of the campus, only the school nurse and my supervisor are aware. My students are also aware, but they do not fall under the category of “coworkers.”

      4 years ago Log in to Reply
    13. Wanacure

      When diagnosed in 1959, my endocrinologist advised me to stay in the closet when applying for a job. Wise advice, back then.
      Once I was hired and proved I could do the job, it was up tomy discretion who and when to tell.
      Applying for the Federal Government, you better not cover up anything…because it can be grounds for dismissal regardless of your aptitude. Just say you’ve got diabetes and it’s under excellent control. I also revealed I’d been jailed for protesting war in Vietnam. Even if you’re applying for a lowly file clerk position, sooner or later a nosy snoop will mine the internet; there is no privacy anymore, especially with Feds. Even file clerks, once hired, get fingerprinted and photographed.

      After I was hired, AIDS became a source of panicky misinformation. It was rumored you could get AIDS from public drinking fountains or public toilets! After a couple of months, someone decided I was endangering my co-workers because I injected before lunch. So I had to go to the Fed Building’s nurse’s station on another floor to do my lunch bolus. After a couple more months, I was allowed to return to my station to inject.

      Nowadays I could sue for that shabby treatment. Back then, no legal grounds.

      4 years ago Log in to Reply

    At your current job (or most recent, if you are not currently working), do your coworkers know that you have T1D? Cancel reply

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