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    • 11 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 11 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 11 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 17 hours, 35 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 17 hours, 35 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 34 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 45 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 18 hours, 54 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 13 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 19 hours, 16 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 29 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 14 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 17 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 17 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 17 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 18 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 18 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 18 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    For insulin pump users: How long have you worn an insulin pump?

    Home > LC Polls > For insulin pump users: How long have you worn an insulin pump?
    Previous

    Do you feel that your blood sugar patterns are different during times of the year when there are fewer hours of daylight, compared to when there are more hours of daylight? If yes, tell us how in the comments!

    Next

    For CGM users: How long have you had a CGM?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. Bob Durstenfeld

      My first insulin pump was in 1987. it was the size and weight of a brick and most of that was the battery that barely lasted 24 hours. I designed my own car charger.

      5 years ago Log in to Reply
    2. MidnightSun 55

      Yup. Quite large. It was an “Auto-Syringe”. 1982.

      5 years ago Log in to Reply
    3. Kristen Clifford

      I’ve been on pump therapy since January 2012

      5 years ago Log in to Reply
    4. Greg Felton

      It would be interesting to know how long each respondent has had T1D, to see how long they have worn a pump. (In my case, 44 years T1D and 22 years with a pump.)

      5 years ago Log in to Reply
    5. Annie Wall

      I was on the pump for 24 years, 1995-2019. I went off the pump in 2019 because there was too much scarring from infusion site sets. I’m now using the InPen and will probably return to a pump after a two year vacation.

      5 years ago Log in to Reply
    6. Chip Brookes

      I have been on a pump since about 2010. Started with Medtronic now on T-slim. Switched because the Dexcom CGM was more accurate than the Medtronic CGM. I do like the Control IQ function very much. I really dislike the installation procedure for the T-Slim. The Medtronic was much simpler.

      5 years ago Log in to Reply
    7. Ahh Life

      1996. And in those days the procedure involved a 2-day hospitalization, one on saline solution and one on the real McCoy (insulin). Additional advice for abdomen users/abusers: switch to the legs. They’re great ( ͡◉ ͜ʖ ͡◉)

      5 years ago Log in to Reply
    8. Kristine Warmecke

      Only 23 years of pumping (started in February 1997) was diagnosed T1D 38 years ago (January 5, 1982). Would have been pumping sooner, but my parent’s wouldn’t give in on their rule not until I was over 18.

      5 years ago Log in to Reply
    9. Trish Seidle

      Diagnosed in 1972. Joslin Clinic put me on what I think was the very first portable pump in around 1983ish. Because my parents had very good insurance, I was able to go to Joslin Clinic every 2 years. I don’t think that the first pump had a name…although it probably did. I think the second one was the Eugly…… This is when I wish I kept a journal so I could look back at things. The advances have been incredible!! They don’t seem like much at the time but looking back, they have been huge!

      5 years ago Log in to Reply
    10. Loretta Rogers

      Pumping since ’98. I know what all of you mean about scarring. I weigh about 100 lbs with very little fat. Yes, I used the abdomen too much. Now I rotate everywhere. Probably where I shouldn’t…thighs, derriere, abs, flank, arms [in a pinch]. Will be 50 yrs. in Feb. for diagnosis. So, ROTATE!!!

      5 years ago Log in to Reply
    11. Cheryl Seibert

      Medtronic since 2000, just switched to Tandem TSlim with Control-IQ in August 2020.

      5 years ago Log in to Reply
    12. Tim Lors

      1997. I had recently switched from 2 shots a day to MDI, and concluded it gave me much better BG management, but that I needed flexibility in meal timing a a better way to deal with Dawn phenomenon. They shipped the pump to me house and I started using it immediately. At my training session, the doctor was floored that I had been already using it for days. I was floored when I realized he had no clue how to properly set basal rates. At that point, I realized it was up to me to figure out what works for me. I am now on Tandem C-IQ (after a very long hard fight with UHC) and my TIR = 90%.

      5 years ago Log in to Reply
    13. Tim Lors

      How do you edit your post to correct typos? (O prefer the previous format.)

      5 years ago Log in to Reply
    14. Patricia Dalrymple

      Agree with Tim. I answered wrong but no way to edit.

      5 years ago Log in to Reply
    15. Glen Heatherington

      Since 2000. Coming up on 56 years since diagnosis.

      5 years ago Log in to Reply
    16. Tina Roberts

      I answered 20-25 years. That’s wrong and I can’t go back and change it. It’s 14 years. I do not like this new platform. I can’t change my answers and I’m getting double every email and it shows one question then when I select answer it’s an entirely different question!!

      5 years ago Log in to Reply
    17. Molly Jones

      I started pumping about 3.5 years after diagnosis to help with a pregnancy. It had not been suggested previously. Medtronic was the pump I used for more than ten years, then I tried Omnipod, went back to Medtronic and am now on Tandem. I liked Omnipod but it did not have the small amount of doses I needed. I also liked Medtronic’s pump better than Tandem, but because it doesn’t pair with Dexcom I will stay with Tandem.

      5 years ago Log in to Reply
    18. Jillmarie61

      I’ve been pumping since 1978. Where’s my cure? In that amount of time you surely could have found one by now.

      5 years ago Log in to Reply
    19. Jim Witte

      @Jillmarie61 > I’ve been pumping since 1978. Where’s my cure? How many years (decades?) will it take to get through pre-clinical trials with the transgenic pigs? And then how many decades for Phase 1-3 with humans?

      5 years ago Log in to Reply

    For insulin pump users: How long have you worn an insulin pump? Cancel reply

    You must be logged in to post a comment.




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