If you use an insulin pump, where do you get your insulin pump supplies from?

Activity
- 11 hours, 18 minutes ago
  
  lis be likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  I was screened for a Novo Icodec study, rejected because my 5.0 A1C was too low. The screener then screened me for a hypoglycemia study and rejected me for that because I had no episodes of glucose below 55 in the preceding two months. The pharmaceutical business is about selling drugs, not about helping people live better with diabetes. I read the study design for the Icodec study and it was clear that the Icodec subjects would have an A1c about 0.5 better than the control group. It's not research when you can predict the results!
- 11 hours, 19 minutes ago
  
  lis be likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Studies with n>1000. Remove upper age cut-offs. There are older people who are just as healthy as your typical American 50 year old. I agree with other commenters about well controlled diabetics being excluded is a problem. I'd add that any study excluding well controlled people is poorly designed and not one you want to be a part of anyway.
- 11 hours, 19 minutes ago
  
  lis be likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  If could keep product or get some free...pump, cgm, medicine, etc once it is approved and used in the market after the research study ends, that would be desirable. If straight data type research, then meaningful compensation for time and effort.
- 11 hours, 19 minutes ago
  
  lis be likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Acceptance of controlled diabetics.
- 11 hours, 19 minutes ago
  
  lis be likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Fewer age restrictions.
- 17 hours, 22 minutes ago
  
  K W likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  I guess researchers don’t want to know what living with diabetes for 56 years looks like. I never qualify.
- 19 hours, 4 minutes ago
  
  Nevin Bowman likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  The few I tried for I was in too good of control and not overweight and no complications etc so not fulfilling the requirements
- 19 hours, 4 minutes ago
  
  Nevin Bowman likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Being qualified to participate is the main reason preventing me from participating.
- 19 hours, 4 minutes ago
  
  Nevin Bowman likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  I guess researchers don’t want to know what living with diabetes for 56 years looks like. I never qualify.
- 19 hours, 4 minutes ago
  
  Nevin Bowman likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Like others I am either too old, had T1D too long, managing too well (great A1C's, good TIR and TITR). I wish the qualifying surveys included info regarding "who" they are looking for. I complete the surveys, but never get the invitation to participate.
- 19 hours, 24 minutes ago
  
  Sarah Berry likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Being qualified to participate is the main reason preventing me from participating.
- 19 hours, 24 minutes ago
  
  Sarah Berry likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Convenience of clinic sites.
- 19 hours, 25 minutes ago
  
  Sarah Berry likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  The few I tried for I was in too good of control and not overweight and no complications etc so not fulfilling the requirements
- 20 hours, 22 minutes ago
  
  Lawrence S. likes your comment at
  On average, how often do you pre-bolus before eating?
  Rarely. I have had problems with slow digestion along with other family members before type 1 diabetes was diagnosed.
- 20 hours, 23 minutes ago
  
  Steve Rumble likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Kind of moot. They never seem to include old people. I understand. We probably have other complications, etc. I understand. Let them put their efforts towards those who will be dealing with this for years and decades to come.
- 20 hours, 23 minutes ago
  
  Steve Rumble likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Me, too.
- 20 hours, 25 minutes ago
  
  Lawrence S. likes your comment at
  On average, how often do you pre-bolus before eating?
  To pre-bolus at certain times in life is considered sound and virtuous, much like playing football, soccer, or doing sky-diving. But humans are dynamic patterns playing out over time. It often seems as if Pollyanna, Cassandra, and Pangloss get together and plot a scheme for T1D's by saying, "Let's put another wild card in the deck and call it gastroparesis!" Alas and alack. What was once virtuous becomes dangerous and lethal. The digestive nerve in gastroparesis thinks it is its own independent agent and announces, "I'll go to work when I darn well feel like it." That may be several hours or even days. And that, dear friends, is not a worthy thing to experience when the BG is 33 and trending down. 〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜
- 20 hours, 26 minutes ago
  
  Lawrence S. likes your comment at
  On average, how often do you pre-bolus before eating?
  I pre-bolus before eating unless (1) my glucose is already too low or (2) at a restaurant, where I wait until the food arrives, then bolus.
- 20 hours, 30 minutes ago
  
  Lawrence S. likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  I guess researchers don’t want to know what living with diabetes for 56 years looks like. I never qualify.
- 21 hours, 39 minutes ago
  
  Marty likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Kind of moot. They never seem to include old people. I understand. We probably have other complications, etc. I understand. Let them put their efforts towards those who will be dealing with this for years and decades to come.
- 21 hours, 39 minutes ago
  
  Marty likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Most of the time when I look, I am too old.
- 21 hours, 46 minutes ago
  
  CindyGoddard likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Like others I am either too old, had T1D too long, managing too well (great A1C's, good TIR and TITR). I wish the qualifying surveys included info regarding "who" they are looking for. I complete the surveys, but never get the invitation to participate.
- 21 hours, 47 minutes ago
  
  CindyGoddard likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  As others noted, I guess I am too old. I am 80 and have had T1D for 74 of those years.
- 21 hours, 47 minutes ago
  
  CindyGoddard likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  I guess researchers don’t want to know what living with diabetes for 56 years looks like. I never qualify.
- 21 hours, 47 minutes ago
  
  CindyGoddard likes your comment at
  What would make you more likely to participate in a research study? (Select all that apply.)
  Kind of moot. They never seem to include old people. I understand. We probably have other complications, etc. I understand. Let them put their efforts towards those who will be dealing with this for years and decades to come.
Clear All

If you use an insulin pump, where do you get your insulin pump supplies from?

When you have an overnight low or high that you need wake up to treat, how often does your spouse or romantic partner also wake up?

Samantha Walsh

Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

8 Comments

Sheldon Schwartz

BYRAM IS TGE WORST
I DO NOT KNOW HOW THEY STAY IN BUSINESS

1

2 years ago Log in to Reply
Nevin Bowman

If only I could get them from a pharmacy – it would save me thousands per year.

2 years ago Log in to Reply
Tina Roberts

For some reason my insurance makes me get the omnipog5 through an in person pharmacy. They don’t keep these in their mail order stock. First time this has happened.

2 years ago Log in to Reply
Annie Wall

DME: I use Byram and have not had any problems with them; in fact, I think their customer service is great. I’m sorry if others have had problems.

2 years ago Log in to Reply
David Hedeen

Replied pump manufacturer yet Medicare requires that is a DME

2 years ago Log in to Reply
Bob Durstenfeld

This just changed for me. I have Medicare and use a pump. I am supposed to get insulin under Medicare Part B, but could not find a local supplier last year, so I got an excemption to use Part D and CVS CareMark Mail Order Pharmacy. I changed Part D plans this year and now use OPTUM RX, they refused to fill my insulin prescription. After much negotiating and paperwork, I was able to get my local Walgreens to fill it under Part B. Six vials of Novolog for $55. That is the least that I have paid of insulin in more than 10 years.

2 years ago Log in to Reply
Sheri Marcus

I have to go through a pharmacy provider through my insurance pharmacy plan to be covered under my Diabetic Wellness program. I cannot go through medical or durable medical supplies or it is not covered under this program.

2 years ago Log in to Reply
Lynn Smith

Through my insurance company’s online pharmacy.

2 years ago Log in to Reply