In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

Activity
- 3 minutes ago
  
  eherban1 likes your comment at
  If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
  No. I doubt that there is an interest. I appear to be the anomaly in my family.
- 22 hours, 18 minutes ago
  
  Patricia Dalrymple likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 1 day ago
  
  Lisa Sierra likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 1 day, 1 hour ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I had a problem with my infusion sets being on back order but I have met my deductible all ready.
- 1 day, 1 hour ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 1 day, 1 hour ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 1 day, 1 hour ago
  
  Kathy Hanavan likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
- 1 day, 12 hours ago
  
  Bekki Weston likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I have used afrezza, the inhalable insulin
- 1 day, 16 hours ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
- 1 day, 16 hours ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
- 1 day, 19 hours ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  i have used metformin
- 1 day, 20 hours ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  metformin
- 1 day, 22 hours ago
  
  Anita Stokar likes your comment at
  Which of the following can make exercising more challenging for you? (Select all that apply)
  As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
- 1 day, 23 hours ago
  
  Marty likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
- 2 days, 22 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 2 days, 22 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 2 days, 23 hours ago
  
  mojoseje likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 3 days ago
  
  atr likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 3 days ago
  
  Bonnie kenney likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
- 3 days ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
- 3 days ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 3 days ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 3 days, 1 hour ago
  
  Jaysen LeSage likes your comment at
  Which of the following can make exercising more challenging for you? (Select all that apply)
  I find the hardest thing is getting started. Diabetes doesn’t really cause issues
- 3 days, 16 hours ago
  
  ChrisW likes your comment at
  What kind of diabetes-related support would be most helpful to you right now?
  Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
- 3 days, 16 hours ago
  
  ChrisW likes your comment at
  What kind of diabetes-related support would be most helpful to you right now?
  For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
Clear All

In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

Happy New Year! Do you have any diabetes-related goals for 2024? Tell us in the comments!

Samantha Walsh

Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

16 Comments

Lawrence S.

Honestly, I guessed “2”. It’s not something I keep track of. Usually, when it happens, I’m asleep, and just push the buttons to stop the alarm, and take either insulin or honey, if needed. Then, back to sleep. It’s forgotten about by morning.

1

2 years ago Log in to Reply
KIMBERELY SMITH

Few lows more highs

2

2 years ago Log in to Reply
William Bennett

When my CGM is on my right arm I get more Bluetooth dropouts. Usually just a matter of taking it out of my t-shirt pocket and laying next to my arm on the bed. So I don’t have to wake all the way up, and fortunately the Tandem alert for that is recognizably distinct from low BG and other stuff, but it still counts. Had some pressure-low alarms this week too. Seems like it’s always something!

4

2 years ago Log in to Reply
1. beth nelson
  
  What is a “pressure low” alert? And yes, William, I’m with you on the alarms most-frequently being that the connection is lost.
  
  1
  
  2 years ago Log in to Reply
beth nelson

This can be quite a problem. Once the alert is “treated” by insulin or honey, it often continues to go off until a satisfactory BS level is reached. It’s not the frequency per week that is an issue, it’s the frequency during a single night that is miserable!

9

2 years ago Log in to Reply
1. Mick Martin
  
  @beth nelson. I’m with you on the point about getting repeated alarms during one specific ‘episode’. I have gastroparesis, so even when I’ve treated a ‘low’, my pump repeatedly alarms every 15 minutes until my CGM recognises [recognizes] that my blood glucose level has reached the ‘normal’ range, which can sometimes take up to about 2 hours.
  
  2
  
  2 years ago Log in to Reply
Thomas Cline

I suppose you could count it as an advantage that as I age I now wake up to use the bathroom every night, which gives me an opportunity to check by blood sugar and correct — which I almost always have to do because my insulin sensitivity seems so variable. Fortunately because I am a good sleeper, I can’t really say that m sleep is “disrupted,” only “interrupted.” Of course many times it works the other way: my CGM wakes me up, so I then use the bathroom as well as correct. Either way, my control is improved.

1

2 years ago Log in to Reply
Jane Cerullo

I am a very light sleeper so I wake up a few times even if no alarms sound. Always check BS and adjust if needed.

1

2 years ago Log in to Reply
Jeff Balbirnie

Shut up and work do not bother me!!! NEVER wake me or anybody else because the signal dropped. 1,000% irrelevant that “I am still low”, the arrow up means SHUT UP machine (sic. and its been addressed). Trending sideways/downward after low alarms, fine play more. But trending UP, then SHUT UP…………… I WAS crashing… now be silent. Nobody needs an air raid siren warning us we’re climbing out of that hole…

1

2 years ago Log in to Reply
Becky Hertz

Although this US a recurring question, I don’t keep track. I guessed 4. Even though I’m on CIQ, I still go low and stay high.

2 years ago Log in to Reply
Carol Meares

I am not on an algorithm because I am on G7 and Omnipod 5. I’m not crazy about the Omnipod 5 algorithm so I have chosen to go manual. I am still working on basal adjustments and it is difficult to do that over the holidays. When I am back into a routine I will work on basal adjustments.

2 years ago Log in to Reply
Janice B

At least twice a week the pump alert goes off at 3am to notify me the pump pod is expiring the next morning- ugh!

2 years ago Log in to Reply
Ahh Life

My tSlimX2 CIQ is programmed to have the Eric Cartman response (I do what I want. I do what I want.) 😵😵

https://www.youtube.com/watch?v=IpF9O0R873I

1

2 years ago Log in to Reply
Steven Gill

My alarms are tight, so I kind of expect a few noises.

2 years ago Log in to Reply
T1D4LongTime

One of the few weeks with no out-of-range alerts. Although, I did run too high (140s-150s) overnight this week to suit me.

2 years ago Log in to Reply
George Lovelace

Transitioning from Tandem CIQ and G6 to G7 and need update on Tandem (back to manual control as pump can’t get numbers from G7)

2 years ago Log in to Reply