Patient Perspectives Archives

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- 9 hours, 7 minutes ago
  
  KarenM6 likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  It has been many, many years since I've seen a Certified Diabetes Care and Education Specialist.
- 10 hours, 11 minutes ago
  
  jo likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  I had appointment today wasn't feeling good
- 12 hours, 42 minutes ago
  
  Jeff Marvel likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  I like Lyumjev too! Works faster for me.
- 13 hours, 15 minutes ago
  
  Robin Melen likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.
- 13 hours, 31 minutes ago
  
  MT likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
- 13 hours, 44 minutes ago
  
  Mick Martin likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  7 video calls in preparation for going onto a closed loop system
- 13 hours, 45 minutes ago
  
  Mick Martin likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  I really like my educator. She keeps me up-to-date on all of the new tech and helps communicate with the vendors and figure out insurance stuff. It's a nice morale boast too; we review Dexcom data and talk about specific highs or lows and different techniques to try. I see my doctor every 6 months and my educator every 6 months, but we're on a schedule so I see one of the two every quarter.
- 13 hours, 46 minutes ago
  
  Mick Martin likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  My Diabetes Care Specialist is also a Nutritionist. I have found her advice and support vital to mastering T1 since my diagnosis 2 years ago
- 14 hours, 21 minutes ago
  
  Ahh Life likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
- 14 hours, 33 minutes ago
  
  Samantha Walsh likes your comment at
  In honor of GivingTuesday, what are your favorite ways of giving to organizations you support? Select all that apply.
  Correction: Service to others is the rent you pay for your time on earth."
- 14 hours, 57 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
- 14 hours, 57 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.
- 14 hours, 57 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  This past year my doctor appts were my new social life!
- 14 hours, 58 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
- 14 hours, 59 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
- 14 hours, 59 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 14 hours, 59 minutes ago
  
  Lawrence S. likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.
- 1 day, 2 hours ago
  
  Kris Sykes-David likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  It helped me track when and how much insulin I had injected. It also would show me how much I had on board so if I needed to take additional insulin it would help me not to stack too much at a time.
- 1 day, 2 hours ago
  
  Kris Sykes-David likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  I love it! Can't live without one.
- 1 day, 9 hours ago
  
  TEH likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
- 1 day, 9 hours ago
  
  TEH likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo....
- 2 days ago
  
  Janis Senungetuk likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
- 2 days, 4 hours ago
  
  KarenM6 likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
- 2 days, 7 hours ago
  
  Ahh Life likes your comment at
  How many times in 2023 did you have an appointment with your main T1D healthcare provider?
  Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
- 2 days, 8 hours ago
  
  Bekki Weston likes your comment at
  In the past year, have you been required to change medications because of your health insurance?
  Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
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The Work of Living with Type 1 Diabetes

“I’ve Had an Alarm Set for 3:00 a.m. for Decades”: The Impact of Type 1 Diabetes on Sleep

“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes.

“You Don’t Know When the Sugar’s Going to Kick In”: Experiences of People Managing Type 1 Diabetes during a Marathon

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Trending News

The Work of Living with Type 1 Diabetes

“I’ve Had an Alarm Set for 3:00 a.m. for Decades”: The Impact of Type 1 Diabetes on Sleep

“I Live in Constant Fear of Highs,” the Daily Impact of Type 1 Diabetes.

“You Don’t Know When the Sugar’s Going to Kick In”: Experiences of People Managing Type 1 Diabetes during a Marathon

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FOLLOW US ON INSTAGRAM

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