Patient Perspectives Archives

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- 1 hour ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I kept my Tandem pump, but changed From Dexcom G6 to G7.
- 1 hour ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  Many changes are as empty as a laundry basket in a nudist camp. But the G6 to G7 change seems to be an improvement. 🎅🍬
- 1 hour, 1 minute ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  Upgraded from Dexcom G6 to G7.
- 1 hour, 1 minute ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I switched from Dexcom G6 to G7 this year. I've had the same Tandem T:slim X2 pump model for many years now, although it's been replaced a couple of times for charging problems.
- 1 hour, 1 minute ago
  
  Lawrence S. likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  I changed to the Dexcom G7 from the Dexcom G6. I got a new Tandem T:slim X2 last year (2023) to replace my old one that was out of warranty.
- 2 hours, 22 minutes ago
  
  Gerald Oefelein likes your comment at
  In 2024, did you add, remove, or change T1D devices? Select all that apply!
  Many changes are as empty as a laundry basket in a nudist camp. But the G6 to G7 change seems to be an improvement. 🎅🍬
- 5 hours, 22 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  I always try to eat healthy. Holiday time is no different.
- 5 hours, 22 minutes ago
  
  Cristina Jorge Schwarz likes your comment at
  Do you try to have healthier options on the days leading up to a holiday get-together?
  Your brain may be having a holiday, but your body is still T1D. It doesn’t take vacations or holidays. Changing routines rarely works out well.
- 15 hours, 38 minutes ago
  
  Janis Senungetuk likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 22 hours, 56 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  I had 4 with my endocrinologist because I have a pump and Medicare requires it also had 1 appt with a diabetes pharmacist
- 22 hours, 56 minutes ago
  
  Lawrence S. likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 1 hour ago
  
  TEH likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  My endo would be happy to see me only 2x a year vs 4x a year because of my good diabetes control BUT, Medicare mandates a visit every 90 days to the prescribing physician for any approval of claims for insulin pump supplies....penny-wise and pound-foolish, IMO.
- 1 day, 2 hours ago
  
  Gerald Oefelein likes your comment at
  In 2024, how many appointments did you have with your T1D healthcare provider?
  Oh, I also went to diabetes training camp for the second year and honestly, that's the most helpful thing I do. Several days with endocrinologists, educators, dietitians, sports physiologists, and others, most of whom also have type one.
- 1 day, 15 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  It depends if you include my Medicare Part B and Part D premiums. Those are $156 and $180 per month.
- 1 day, 15 hours ago
  
  dholl62@gmail.com likes your comment at
  In 2024, how much did you spend out-of-pocket on diabetes medications and supplies?
  I had to enter not sure. I can’t recall any direct expenses. However, I paid several thousand dollars for Medicare and the supplemental insurance that paid for my supplies.
- 2 days, 11 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 11 hours ago
  
  Janis Senungetuk likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes I do and I keep long acting insulin in my supplies. But for periods of a day or two I usually just take small doses of my fast acting (Novolog) every two to four hours and do fine with that... Luckily I am 75 years old and get up to use bathroom several times through the night; also my insulin needs are low, about 25 to 30 units per day
- 2 days, 19 hours ago
  
  Anita Stokar likes your comment at
  Do you use insulin pens or vials?
  I do! Also for if I want a larger bolus (I'll often use the pod for part and the pen for part) to avoid over saturating the pod site, or if I'm worried my site isn't absorbing well enough but I'm not 100% convinced enough to pull it off. I always have a pen in my bag in case of emergencies (though I do use vials to fill my pods) and I figure it's good to use the pen occasionally in the "use it or lose it" mentality. I'm happy keeping an active pen for many months or even a year but I'm sure it would fail eventually and need to be tossed.
- 2 days, 21 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Yes for close, accuracy is a challenge and the dose may be off, just part of the process.
- 2 days, 21 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I am blessed, in 30+ years of pumping I've only had one pump failure. A Minimed pump failed on a flight home.
- 2 days, 21 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 21 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don’t know how much long acting insulin I would need if my pump stopped working. I would simply contact my doctor, asking for the long acting that I’ve have used and would ask him to help me figure out how much of it I would need on a daily basis. When that has happened recently, I would just give myself periodic shots of my regular fast acting to tide me over.
- 2 days, 21 hours ago
  
  Lawrence S. likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
- 2 days, 22 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  Before I get to using the long acting insulin, I’d go to my backup pump then the MDI.
- 2 days, 22 hours ago
  
  Dennis Dacey likes your comment at
  If you use an insulin pump and it fails, do you know how much long-acting insulin to take?
  I don't, but I also don't have any long acting insulin
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Stakeholder Engagement in Type 1 Diabetes Research, Quality Improvement, and Clinical Care

“I’ve Had an Alarm Set for 3:00 a.m. for Decades”: The Impact of Type 1 Diabetes on Sleep

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