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T1D Exchange Registry Reaches 10,000 Participants During National Diabetes Awareness Month
Registry Aims to Create Largest Data Set of People with Type 1 Diabetes in the U.S. to Advance Type 1 Diabetes Treatment and Care
Boston, November 14, 2020 – T1D Exchange, a nonprofit organization that drives meaningful research and innovation in treatment for type 1 diabetes (T1D), today announced that enrollment of its T1D Exchange Registry has reached 10,000 participants during National Diabetes Awareness Month, recognized annually in November.
The updated T1D Exchange Patient Registry launched in June 2019, is an online longitudinal database of people living with T1D that aims to capture data on diabetes management, progression and outcomes from a broad and diverse mix of people living with the disease across the United States. By gathering data through opt-in research studies, the database enables researchers to track how the disease progresses over time and gain insights directly from individuals living with T1D with the goal of accelerating new treatments as well as informing and advocating for policy and insurance decisions.
“We are proud to have reached this milestone during a month when we turn national focus to diabetes, and in particular to T1D which impacts approximately 1.6 million people in the U.S.,” said David Walton, Chief Executive Officer at T1D Exchange. “The Registry gives everyone with T1D the opportunity to contribute to research. I would encourage anyone with T1D to sign up online and respond to series of questions that will help us understand real world experience and improve the care that is provided.”
Impact of Research
Data and analysis conducted through previous T1D Exchange Registry research has driven meaningful diabetes population health improvements, including:
- Insurance coverage for blood glucose meter strips.
- Changes in American Diabetes Association guidelines for A1c goals for pediatric patients.
- U.S. Food and Drug Administration’s decision to expand the Dexcom CGM labeling to include fingerstick replacement.
- Medicare coverage of CGM devices.
About the T1D Exchange Registry
The T1D Exchange Registry is a research study conducted online over time, designed to foster innovation and improve the lives of people with T1D. The platform is open to both adults and children with T1D living in the U.S. Personal information remains confidential and participation is fully voluntary. Once enrolled, participants will complete annual surveys and have the opportunity to sign up for other studies on specific topics related to T1D. The registry aims to improve knowledge of T1D, accelerate the discovery and development of new treatments and technologies, and generate evidence to support policy or insurance changes that help the T1D community. By sharing opinions, experiences and data, patients can help advance meaningful T1D treatment, care and policy.
The registry is now available on the T1D Exchange website and is simple to navigate, mobile and user-friendly. For more information or to register, go to www.t1dregistry.org.
About T1D Exchange
T1D Exchange is a leader in harnessing data to advance type 1 diabetes (T1D) care and outcomes by driving collaborative change. Through real-world evidence and clinical data collection and analysis, our novel insights are identifying gaps in data and redefining best practices to improve the lives of those living with T1D. T1D Exchange actively supports quality improvement and innovation through its Quality Improvement Collaborative, patient registry, and data-oriented research services. Through a knowledge–sharing and collaboration-focused approach, T1D Exchange is accelerating real-world impacts by providing clinicians, researchers, industry partners and advocates with the resources and services they need for better decision support and population health management. A nonprofit organization, T1D Exchange was established in 2010 with ongoing support from The Leona M. and Harry B. Helmsley Charitable Trust.
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