T1D Exchange Quality Improvement (QI) joins a learning collaborative with a data platform to redefine best practices, enhance the quality of care, and ultimately generate better outcomes. This model helps fill the gap between the surge of diabetes innovation, drugs, and technology, and the lack of corresponding uptake or benefit by patients.
The Learning Collaborative
The Collaborative brings together 21 clinics, situated across the US and treating more than 40,000 individuals with type 1 diabetes. The Collaborative has achieved unprecedented success because it relies on an embedded and systemic approach: individual providers are empowered to identify areas of unmet need within their clinic. They make small changes in care that scale up through the Collaborative to create best practices, which are then shared among and implemented by members at other clinics.
The Data Platform
Decision-making is facilitated by electronic record and health data on all patients that is uploaded from clinics to the new T1D Exchange QI platform. After analysis and benchmarking, each clinic has a clearer picture of how their patient populations are faring based on the treatments and interventions being adopted and thus, how and where to target change efforts to improve outcomes for the subpopulations most at risk.
Real World Evidence
For most new market-approved treatments or devices, basic data is lacking about the effectiveness of that intervention outside the confines of a formal study population. From a clinician perspective, outcomes are not improving because the evidence from clinical trials is insufficient to fully guide providers and policy makers in choosing the optimal treatment for their patients.
T1D Exchange Quality Improvement Collaborative can fill this gap by enabling partners to conduct pragmatic studies or to gather information on daily practice. These can provide evidence on the relative effectiveness of a treatment strategy or intervention at a population level or its performance in comparison to others.
Real-world context is not lost; the Collaborative platform monitors effectiveness, while not interfering with routine care. Data generated will enable better decision making at the point of care, guided by a more accurate picture of the realities of disease progression, management, and population health.
In just two years, the Collaborative has achieved success with impressive boosts in:
- the acceptance and use of continuous glucose monitoring
- depression screening
- overcoming barriers to tighter blood sugar control and monitoring, such as fears of hypoglycemia
For providers, we have compiled the insights derived from these successes into a series of Change Packages, available at different levels to participating clinics.
For patients, we have created practical resources, such as our sick day guide, a joint effort between providers, patients, and parents in the Collaborative.
Our goal is to collect and disseminate real-world evidence about type 1 diabetes to better inform clinicians in practice and patients in their daily lives.
“The environment in the Collaborative is very supportive. We do not feel judged. This is not a competition between our sites. The concept in the Collaborative has been more of support.”
– Manmohan K. Kamboj, MD, Nationwide Children’s
“I think it’s important that our North Star stays the same. Across the Collaborative, we’re all aspiring and looking toward the same overall goal: Improved glycemic control and quality of life outcomes for people impacted by diabetes.”
– Sarah Carothers, MD, Cincinnati Children’s
T1D Exchange is actively recruiting new clinics to join the Collaborative and grow our network of talented, experienced providers who care deeply about treatment and outcomes for people with type 1 diabetes. Participation may involve different levels of data sharing, consulting, education and strategy with partners across the United States.
For more information email QI@t1dexchange.org