Karen Tay

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- 5 months, 4 weeks ago
  
  Sheri Marcus likes your comment at
  Have you used an insulin pump with tubing and without tubing (patch pump)? Please share more about your experiences in the comments.
  I started with Medtronic for years. A nurse I worked with convinced me to try the OmniPod since I was on the river and water a lot. I enjoyed that until I went to Medicare and the cost was too much. Now I use the Tandem t-slim IQ and love being in better control. However, I really prefer no tubing
- 10 months, 2 weeks ago
  
  cynthia jaworski likes your comment at
  It is recommended to use an insulin vial or pen within 28 days of opening it, but not everyone can discard unused insulin. What do you do with your unused insulin after it’s been open for more than 28 days?
  Yes, T1D for 64 years and never had a problem using insulin open and not refrigerated way past 28 days
- 10 months, 3 weeks ago
  
  Tina Roberts likes your comment at
  Did cost have a factor in deciding which diabetes technology devices you use? Share more in the comments about this process for you (or a loved one)!
  I would prefer to have an OmniPod but it's too expensive under Medicare because the company has it under Pharmacy. The cost than puts me into the "donut hole" by March. After that, I have to pay way too much out of pocket. But I have to say I'm very happy with my A1C results with the T slim Tandem IQ But I prefer not having the tubing to deal with.
- 1 year ago
  
  Louise Robinson likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I've given them to the Endocrinologist office to share with those in need
- 1 year, 1 month ago
  
  KarenM6 likes your comment at
  If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?
  I was diagnosed at 3 years - 1960 I didn't see an endocrinologist until around 1991.
- 1 year, 3 months ago
  
  Richard Wiener likes your comment at
  If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.
  I said I do not do any changes, but of course that depends on what my sugar levels are before and after I swim
- 1 year, 3 months ago
  
  Kris Sykes-David likes your comment at
  If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
  Covid Darn voice text 🙄
- 1 year, 3 months ago
  
  Mick Martin likes your comment at
  If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
  Covid Darn voice text 🙄
- 1 year, 4 months ago
  
  k N likes your comment at
  What steps would you take if you had a glucose reading of 80 mg/dL (4.4 mmol/L) before you planned on going to bed, with no bolus insulin on board?
  Now that I have the Tandem IQ I don't worry about it anymore. 🙌
- 1 year, 6 months ago
  
  sweetcharlie likes your comment at
  CGM sites, finger pricks, and repeated insulin injections can all cause visible scar tissue. How much visible scar tissue do you have on your body, and does it bother you?
  With this, after 64 years of T1D, doing quite well with little to no scar tissue : )
- 1 year, 6 months ago
  
  Kris McDonald likes your comment at
  How much do you think your blood glucose levels impact your overall mood? (For example, being more likely to cry or feel sad when low, feeling irritable when glucose levels are high, etc.)
  It really depends on multiple other factors. How long has it been high or I can't figure out why. Also, it depends on if I've had multiple lows in a short period of time.
- 1 year, 6 months ago
  
  KarenM6 likes your comment at
  How much do you think your blood glucose levels impact your overall mood? (For example, being more likely to cry or feel sad when low, feeling irritable when glucose levels are high, etc.)
  😄
- 1 year, 6 months ago
  
  Greg Felton likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
- 1 year, 7 months ago
  
  Scott Rudolph likes your comment at
  On average, how many lows would you estimate you have per week?
  But there really is no consistency from week to week for me
- 1 year, 8 months ago
  
  Jeff Marvel likes your comment at
  If you had T1D as a child, at what age did you start to manage your daily insulin doses mostly on your own? If you have a child with T1D, at what age did they start to manage their insulin doses mostly on their own?
  I have to admit I did not want anything to do with giving myself my shot until I moved out of the house.
- 1 year, 8 months ago
  
  KarenM6 likes your comment at
  In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!
  My condolences.
- 1 year, 9 months ago
  
  KarenM6 likes your comment at
  If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
  My other was gave them to the Endocrinologist office to give to people who needed them
- 1 year, 9 months ago
  
  Steven Gill likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  Oh, yes, I forgot that one - - - crazy dreams when my blood sugar is low.
- 1 year, 9 months ago
  
  KarenM6 likes your comment at
  Which of these symptoms of hypoglycemia do you frequently experience during a low? Please select all that apply.
  The symptoms I checked do not necessarily happen all with the same hypoglycemic event. I also get what I call "foggy" brain but not confusion. And if my sugar is really low my vision changes to everything looking white.
- 1 year, 9 months ago
  
  Holly Middleton likes your comment at
  In what year were you (or your loved one) diagnosed with T1D?
  Albert, I have all the same memories. I was dx'd in 1960 right before my 4th birthday.
- 1 year, 10 months ago
  
  Kim Davis likes your comment at
  Do you currently use any of the following CGM systems?
  I just read that it was approved by Medicare the other day!
- 1 year, 10 months ago
  
  Gerald Oefelein likes your comment at
  Do you currently use any of the following CGM systems?
  I just read that it was approved by Medicare the other day!
- 1 year, 10 months ago
  
  Scott Rudolph likes your comment at
  Do you currently use any of the following CGM systems?
  I just read that it was approved by Medicare the other day!
- 1 year, 10 months ago
  
  Kris Sykes-David likes your comment at
  Do you currently use any of the following CGM systems?
  I just read that it was approved by Medicare the other day!
- 1 year, 10 months ago
  
  Katrina Mundinger has commented in the same post you commented in :
  On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
  Someday, maybe, they'll cure T1D! ;)
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Karen Tay

101 Federal Street, Suite 440
Boston, MA 02110
Phone: 617-892-6100
Email: admin@t1dexchange.org

Name	Karen Tay
About Me	Born on Long Island NY. Diagnosis of T1D 1960. Lived briefly in TX. Moved to Wyoming for 4 yrs. And then VA 37 yrs. Now living in Palm Coast FL for three years.

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