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    • 9 hours, 18 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 9 hours, 24 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 9 hours, 31 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 4 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 6 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 9 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 12 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 13 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 4 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 4 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 6 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 8 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 10 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 10 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    What was your most recent A1c?

    Home > LC Polls > What was your most recent A1c?
    Previous

    How many A1c measurements did you have done in 2023?

    Next

    Insulin pumps are only approved for use on specific areas of the body, but many people use other locations. If you use an insulin pump, do you prefer to use any areas of your body over other areas? Select all that apply!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    13 Comments

    1. Jen Woolman

      I use my pump on my tummy

      2 years ago Log in to Reply
    2. Jen Woolman

      7.6 was my A. 1c

      2 years ago Log in to Reply
    3. Kathy Hanavan

      This is a group with amazing control compared to the average T1d. Way to go!!

      2
      2 years ago Log in to Reply
    4. Lawrence S.

      5.8, eight months ago. I was my Endo this week, and she ordered the wrong set of blood tests. So, I did not get my most recent A1c. I expected it was going to be lower than 5.8.

      2 years ago Log in to Reply
      1. Lawrence S.

        “Saw,” not “was.”

        2 years ago Log in to Reply
    5. Jana Wardian

      I’ve largely quit putting any stock on A1c and am more focused on TIR.

      4
      2 years ago Log in to Reply
    6. Mark Schweim

      6.0 earlier this month.

      2 years ago Log in to Reply
    7. Kristi Warmecke

      Three months ago it was 7.2; will have it drawn this coming Monday since the past Monday – my in person appointment turned into a Zoom appointment due to Missouri being an ice skating rink.

      2 years ago Log in to Reply
    8. KarenM6

      My A1c was tested at 6.6, but I think that’s too low. (especially considering I had a bottle of bad insulin and a steroid shot in my elbow that wreaked havoc on my bses!) My doctor asked if I was anemic, but tests for that last year were negative… so, ? Dunno why it wasn’t in the expected range, but it was!

      2 years ago Log in to Reply
    9. Steven Gill

      Although manufacturers have been able to get many in the medical community to change the emphasis from the a1C to TIR (using the integrated-automated system’s more “hands off” approach) I still hold the studies (DCCT and EDIC: below 7) and the AACE (American Association of Clinical Endocrinology: below 6.5) versus the “80-180” or “70-180” approach. Every society admits risks of hypoglycemia emphasizing a lower threshold, TIR hasn’t been studied long enough utilizing the CGM/insulin pump system to verify the long-term advantage except the decrease of hypoglycemia.

      A 70% TIR. (70-180) is considered successful by most systems regardless of the a1C, while the DCCT indicated the reduction of diabetic complications of only 60% with an a1C 7 compared to one of 9… meaning an a1C of 7 offers a 1/3 probability of an effect from diabetes comparatively. The endocrinological association uses the 6.5 by office experience and results, to me means a lower a1C with minimal hypoglycemia has more benefits than the TIR alone (the NIH suggests “civilians” {non-diabetics} experience blood sugars below 70 up to 7% of the time without symptoms although injecting man-made insulin has its risks).

      I shoot for as low a1C without serious low levels, utilizing the Medtronic 780G system: last a1C was 5.7 with 4% lows (below 70), and 85-90% TIR (as indicated 70-180). According to my present CGM history “average” glucose appears to be 117 (a1C at 5.7? consistency there!), TIR of 86%, lows of 5%, and deviation 31 (suggested 1/3 of average so good?) so pretty stable! And um…. this control has little interference in my life. (my alarms are set 70-130…)

      1
      2 years ago Log in to Reply
    10. Carol Meares

      My most recent A1c was back in October. In January I have a telehealth appointment and don’t usually do any bloodwork although we could.

      2 years ago Log in to Reply
    11. Pete Lempa

      This poll is misleading. I don’t think the sample really represents all T1’s, as this is obviously a group of more motivated individuals than the general T1 population. Most studies show that the average A1C is over 7.0 but that’s ALL T1’s, not just those who are more actively involved in their diabetes management.

      1
      2 years ago Log in to Reply
    12. Bret Itskowitch

      The reported figures are better than expected. Good for you. I wonder if some are using the “estimated” A1C (or GMI) provide by your CGM or the actual A1C measure with blood.

      2 years ago Log in to Reply

    What was your most recent A1c? Cancel reply

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