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If you have never participated in a diabetes research study, what’s stopping you? Please select all that apply.
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I’m usually excluded. If it’s because of age (I’m 71) I’m offended! I know that I am “younger” than my mother was at 71, and far “younger” than my grandmother. But I think it’s because my labs are too good, A1C is 5.5-5.8, TIR is great. T1D for 40+ years.
I was a participant in arms of the DCCT studies from 1981 to 1984 in NYC. It was life enhancing and a life changing experience for me. It brought me out of the dark ages of life with T1D and the old pessimistic survival mode attitudes into a brighter future of insight and understanding about healthy eating food choices, being physically active, how insulin and BG regulation works in the body, BG self-monitoring, and meaningful problem solving and coping skills. I learned to live a holistic healthy life with diabetes. In fact I learned to LOVE my diabetes as a parent learns to love a child that depends on their loving care and guidance for survival.
My problem is transportation. I live with epilepsy and therefore cannot drive myself anywhere.
I typically meet the exclusion criteria for studies (i.e., age 70). Also, I am concerned about the burden (i.e., time commitment, extra activities, appointments) . I keep myself very busy, and find it difficult to add any more time and commitments to my already full schedule.
In my previous life, I used to be a research manager at a law firm. And, it was horrendous to read/hear how many patients are injured from testing out new drugs. It was all too common.
I just have not seen any studies needing participants. I’m 62, had T1D for 49 years, in excellent control w/o any complications. Pump and CGM and 5.8-6.2 A1C’s. Maybe I’d not qualify?
I’ve tried but either too late or told my a1c was too low, 5.4. They were looking for highs lowering on study. I countered it might be good to see what it did to my numbers, but no takers.
The poll is not set up right. You can only choose 1 answer.
This should have been multiple response. I am my husbands caregiver so can’t risk my health as I am stable and no complications. I also was born blind in one eye, am a brittle diabetic, live in area far from centers, never over 7 A1C, over 60 and no hospitalizations for hypoglycemia. Many studies exclude me. Some of the studies are very interesting and I would like to participate, but can’t risk destabilizing my condition.
I’ve only recently become aware of recruitment opportunities. I applied for the Vertex vx-264 clinical trial but was ineligible, presumably due to my blood type.
My 14 yo daughter’s a1c is normally under 6.0, which excludes her from most studies.
The question will not permit multiple answers despite indication allowing it. Distance has excluded me often. Not living near enough to a particular study is severely frustrating. Being a former pumper, being too old I found odd exclusion factors. Mid 50’s is not old. Having T1 far too long is pretty odd as well, understandable perhaps but odd regardless.