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    • 12 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never! I think about my blood sugar so much less with all these devices attached. And I barely notice them once they are on. It’s such a blessing that when I have to take them off that’s more of a problem/inconvenience than a vacation.
    • 13 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 14 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 15 minutes ago
      Lawrence S. likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Not sure how I would without serious ramifications!
    • 20 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      If it handled basal and bolus correctly, where my time in range was 80-90% and I only had to do one shot a week that would be amazing
    • 21 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Would this be a basal insulin? How would meal-time insulin be administered? And how would fluctuating insulin needs (day vs night, sedentary vs active) be managed with a single dose? I have many questions that outweigh the possible convenience of a single injection (if that’s what this question is about).
    • 21 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 21 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      It feels like a step pack to me. Keeping two types of insulin on hand. And adjusting a week long basil dose will take months to dial in. It won't be as easy as adjusting basil levels with a pump.
    • 22 minutes ago
      Lawrence S. likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Taking meds once a week would be great. Not sure exactly how this would work, given bolus needs.
    • 25 minutes ago
      mojoseje likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      Taking meds once a week would be great. Not sure exactly how this would work, given bolus needs.
    • 1 hour, 1 minute ago
      atr likes your comment at
      If insulin became available in a once-weekly formulation, how interested would you be?
      I like having control over the amount of insulin I administer according to my diet and physical activity.
    • 19 hours, 18 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Never. I have severe hypoglycemic unawareness. No symptoms even at glucose levels of 40.
    • 19 hours, 19 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Nope. Love my technology! Having it frees up so much mental bandwidth that I would otherwise have to spend on finger sticks, calculating insulin doses, figuring how much insulin on board, etc. Also, I love not carrying a purse with all that "stuff" everywhere I go - I put my license & credit card in my phone case and I'm hands-free. Absolute magic!
    • 19 hours, 20 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Being on a pump and CGM is not something I would want to be without no matter what. The only way I would ever consider it being a vacation a life long vacation is if I was cured of T1D.
    • 19 hours, 20 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      What's the alternative? MDI? No thanks. That did not work well for me when I was Dx-ed 35 years ago. I have kept my old 770 Medtronic pump and some resivors & infusion sets to fall back on.
    • 19 hours, 21 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Only when the pump or sensor fails & I'm not with the next replacement. Not really a vacation. (I've had them fail on vacation, too.)
    • 19 hours, 21 minutes ago
      Amanda Barras likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 20 hours, 18 minutes ago
      Mike S likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It really depends on where I bottom out. 62 might take 15 minutes. 48 might take several hours. I’ve switched my low treatment from juice to Glow Gummies and my recoveries are both faster and more precise.
    • 23 hours, 26 minutes ago
      TEH likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      It varies significantly I can become hypo instead of hyper due to being sick at times.
    • 23 hours, 30 minutes ago
      KSannie likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 23 hours, 30 minutes ago
      KSannie likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      The older I get the longer it takes to recover. Luckily, I don’t have many lows now that I’m on a pump/CGM closed loop system.
    • 1 day ago
      lis be likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      Only when the pump or sensor fails & I'm not with the next replacement. Not really a vacation. (I've had them fail on vacation, too.)
    • 1 day ago
      lis be likes your comment at
      How often do you take a “vacation” from wearable diabetes technology (insulin pump, CGM)?
      as soon as T1D "takes a vacation", then I will too! ;)
    • 1 day ago
      atr likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      For me, to become functional again after a hypo, it takes about a half an hour. But to fully recover, meaning that I feel like it hadn't happened, is now more than hour. Getting older has definitely expanded those timelines.
    • 1 day ago
      lis be likes your comment at
      On average, how long does it take you to recover from a low glucose episode?
      A really sticky low means it takes longer than usual for me to recover.
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you use a CGM, how often do you use additional adhesive tapes to help your sensors stick?

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    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Kristine Warmecke

      After applying to Novo Nordisk’s in 2020 & repeatedly sending in the same information (because they had not received or it was signed in the wrong spot, etc.) I was approved in 2022. I received one shipment. What a help. smh

      2
      3 years ago Log in to Reply
    2. Bill Williams

      Not a formal program, but I went to an Endo clinic for a while where the NPs, knowing that I paid cash for my appointments, gave me lots of samples. Saved me a bundle.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      I said, “other” because, no, I have not used a Patient Assistance Program because I have not needed to. My health insurance has been sufficient.

      3 years ago Log in to Reply
    4. Dave Akers

      Every manufacture has at least a Copay savings card to reduce costs for patient with commercial or private health coverage.
      Today, I just saved $80 picking up Toujeo and my AFREZZA this month alone! I will save that every month of this year!

      3 years ago Log in to Reply
      1. Wanacure

        Dave, so what is your net cost?

        3 years ago Log in to Reply
    5. bobo

      Last year I participated in the Medicare Senior discount.

      3 years ago Log in to Reply
      1. Wanacure

        Bobo, what is Medicare Senior Discount?

        3 years ago Log in to Reply
    6. sweetcharlie

      NO !! I just used walmarts RELION Novolin 70/30 and their syringes for a long time.. now I use Pens thru my insurance since Medicare max cost of $ 35 per month and get the penneeles for $14 per 100 ….

      3 years ago Log in to Reply
      1. Wanacure

        Sweet Charlie, what are peneeles?

        3 years ago Log in to Reply
    7. PamK

      I had to for my CGMs when my insurance refused coverage.

      3 years ago Log in to Reply
    8. Wanacure

      Thanks to organized pressure from us T1Ds, the politicians capped the price of insulin. Let’s keep the pressure on state legislators and national congresspersons to 1) reduce the cost of CGMs and pumps and 2) to fund research DNA CRSPR cures and stem cell cures. Let us save our lives and the lives of others by lobbying, testifying, emailing, and phoning.

      4
      3 years ago Log in to Reply
    9. Rebecca Jervey

      I’ve tried but never been eligible. I do however use their copay coupons!

      3 years ago Log in to Reply
    10. Ginger Vieira

      In my early 20s, I didn’t have health insurance for several years. I tried applying to the PAP for Novolog and Lantus insulin but I didn’t qualify because my income wasn’t below the poverty level. It was really stressful figuring out how to get enough insulin. I was fortunate to have many friends with T1D who would give me extra, an HCP friend who gave me leftovers from her clinic, and then sometimes I would pay full price out of pocket at the pharmacy.

      3 years ago Log in to Reply
    11. lis be

      I used a patient assistance program for Eylea shots.

      3 years ago Log in to Reply
    12. ChrisW

      No, I don’t qualify for the Patient Assistance Programs that are offered where I live.

      3 years ago Log in to Reply
    13. Steven Gill

      When an old dog had a heart attack stopped using my CGM (she was more important) due to her meds. When Medtronic offered their replacement was offered patient assistance, odd, was cheaper for both devices together than the pump alone (guess I didn’t make much money? Started at “do you make $—. and kept going lower).

      3 years ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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