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    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 8 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 11 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 17 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 17 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 11 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 15 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you usually suggest to your doctor what T1D devices/medications you want to use, or does your doctor tend to suggest to you which T1D devices/medications you should use?

    Home > LC Polls > Do you usually suggest to your doctor what T1D devices/medications you want to use, or does your doctor tend to suggest to you which T1D devices/medications you should use?
    Previous

    Do you think it would be beneficial to have an automated insulin delivery device that also measured your stress hormone levels, and used that in addition to your CGM readings to dose your insulin?

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    If you had T1D while you were in school, were your blood sugars typically impacted when you had tests or exams?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    9 Comments

    1. Ahh Life

      He reads. I read. He coaches. I play the game. We both benefit. (ɔ˘ ³( ͡❛ ‿ ͡❛c)

      3
      5 years ago Log in to Reply
      1. George Lovelace

        She teaches me and due to my experience I teach her! It’s a Win/Win situation.

        5 years ago Log in to Reply
    2. Linda Murphy

      I’m disappointed that I have to be the one to investigate. No diabetes educator available in my area that I found that I could relate to, who would be proactive for patients.

      5 years ago Log in to Reply
    3. Carol Meares

      I will research and ask about things. We will discuss options but most of the time I get to choose. The only thing he has denied me was Afrezza. I’m on a pump but wanted to use it to lower those occasional difficult highs that resist other insulins. Perhaps he skipped over it because he didn’t know enough about it at the time to discuss. He just made an excuse and went on to other things. I let it go because I was unsure about it. He is generally very good about discussing and helps me in deciding on other things. We work together.

      5 years ago Log in to Reply
    4. Sally Numrich

      We both keep up on all the new and upcoming diabetes treatments out there. I asked about type 2 meds to help with my treatment plan. He made some suggestions to which type, good and bad and we decided together on best for my treatment at the moment. I brought up Afreeza, not many of his patients were using it, but he agreed to try it and now he prescribes it more frequently.. it is fun to hear about things going on in Europe from your doctor!

      5 years ago Log in to Reply
    5. Janis Senungetuk

      We work together with ideas, suggestions, and research. She’s very willing to research answers to my questions and, in addition, I have access to knowledgeable diabetes educators who are certified trainers on the latest medical devices.

      5 years ago Log in to Reply
    6. ConnieT1D62

      We both have a say in any suggestion discussions and we reach an agreement that is ultimately based on my preference and best interest. She is super supportive and non-judgmental in that way. We trust each other regarding care of my diabetes.

      5 years ago Log in to Reply
    7. BARRY HUNSINGER

      We discuss what options are available, but it really depends on what the insurance carrier (in my case now Medicare) will supply. If insurance doesn’t cover, I can’t use. I just had to go through antibody testing to prove to Medicare after 28 years as a type 1 that I am in fact a type 1. They also don’t cover my current CGM.

      5 years ago Log in to Reply
    8. lis be

      My doctor bases her suggestions on what my insurance will cover, but she also lets me know that there are some products that are better.

      5 years ago Log in to Reply

    Do you usually suggest to your doctor what T1D devices/medications you want to use, or does your doctor tend to suggest to you which T1D devices/medications you should use? Cancel reply

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