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    • 13 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 48 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 48 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 48 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 3 hours, 57 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 45 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 17 hours, 28 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 18 hours, 54 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 18 hours, 54 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 18 hours, 55 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 21 hours, 7 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 21 hours, 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 21 hours, 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 21 hours, 51 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 23 hours, 14 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 1 hour ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 16 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 18 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 18 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 22 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 2 days ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
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    Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.

    Home > LC Polls > Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.
    Previous

    When you (or your child) were diagnosed with T1D, how long was your hospital stay?

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    If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. kristina blake

      I got spoiled for about 12 years while living in San Diego – the TCOYD flagship annual conference. Up-to-date info, great sharing of hacks and tips, judgment free place to question “advice/directions” from your own endo’s (and endorks) and the swag was great. Face-to-face with vendors, chances to meet with real-life users of the tech.
      When I moved to Portland OR I went to an ADA Expo and left within 20 minutes. It was all geared to the needs of T2D (and yeah, they have needs and questions) but nothing for T1D – not even device reps etc.
      I decided to try to get a TCOYD conference in my area. Got an estimated budget (TCOYD was very helpful) and started to plan how I could get large local donors. I knew I had to get the local ADA and HDRF orgs to back me in my endeavor. I wasn’t looking for $$, but their blessing so I could get the word out to the Endo’s in the area. Sadly, the local ADA and JDRF didn’t respond to my calls, letters or emails. I had to give up the idea.
      Once the annual TCOYD’s are back, I’ll save up and go to San Diego (hopefully old friends will let me crash at their house!)

      1
      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hey Kristina. I think TCOYD in San Diego is back in person this summer. Aug 16-18th.
        https://events.blackthorn.io/en/36jDRT6/one-2024-in-person-5a3cPH4PqYz/overview

        2 years ago Log in to Reply
      2. Kristin Sykes-David

        TCOYD is the best! The ONE conference in person was back on starting last year. Try the website! I would go, but I have a wedding to attend around that time.

        2 years ago Log in to Reply
    2. Karen DeVeaux

      I moved and now there are none near me so I said no.

      2 years ago Log in to Reply
    3. Phyllis Biederman

      I attend the University of Colorado, Barbara Davies Center’s annual Keystone conference in July. It’s for health care providers (I’m a RN, CDCES specializing in T1D care, with T1D myself). It’s brings a variety of diabetes experts representing different sectors (research, government, industry and providers) from all over the world to an intimate, beautiful setting. The information is practical and really helpful. Please let your providers know about it!

      1
      2 years ago Log in to Reply
    4. Karen Newe

      Breakthrough T1D one day events. TCOYD One Conference—an adult T1 camp, the best!

      2 years ago Log in to Reply
    5. Jeff Perzan

      Wisconsin’s Diabetes Advisory Group

      2 years ago Log in to Reply
    6. Trisha Oldenkamp

      TCOYD ONE conference!

      2 years ago Log in to Reply
    7. james zellerhoff

      I would to a conference
      How do I get info as to where they are available ??
      Jim Zellerhoff
      T 1one D
      Edge wood WA
      jzellerhoff@gmail.com

      2 years ago Log in to Reply
    8. Edward Geary

      If invited.

      2 years ago Log in to Reply
    9. CindyGoddard

      Yes my husband and I are attending the TCOYD “ONE” Conference in August as we do every August they have it.

      2 years ago Log in to Reply
    10. Jeff Balbirnie

      I am POOR, I possess neither the time nor the ability on any level to attend. Would likely enjoy the ability if, if I was able…

      1
      2 years ago Log in to Reply
      1. PamK

        Jeff, watch for a JDRF Summit in your area. They are free to attend and you even get breakfast and lunch plus vendor samples!

        2 years ago Log in to Reply
    11. PamK

      I have already attended the local JDRF Summit and a TCOYD virtual event this year. I will do more as they are offered.

      2 years ago Log in to Reply
    12. Anita Stokar

      I put “I’m not sure” because I don’t know of any in my area. If one comes close to where I live, it is possible that I might

      1 year ago Log in to Reply
    13. Kathleen Juzenas

      I’m not sure. I usually go to an annual conference at my hospital in the fall but haven’t heard any announcement yet.

      1 year ago Log in to Reply

    Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments. Cancel reply

    You must be logged in to post a comment.




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