Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.

Activity
- 1 hour, 45 minutes ago
  
  Judy Sabol likes your comment at
  How often do you adjust a planned physical activity because of how your glucose is trending?
  If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
- 1 day, 1 hour ago
  
  Steve Rumble likes your comment at
  How often do you adjust a planned physical activity because of how your glucose is trending?
  Often, I need to start any physical activity with my BG above target or trending up. If not I become hypoglycaemic within 10-20 minutes.
- 1 day, 1 hour ago
  
  Lawrence S. likes your comment at
  How often do you adjust a planned physical activity because of how your glucose is trending?
  Rarely. I take glucose with me (in some form) and eat while exercising (mostly walking) or the exercise itself will bring it down to normal levels. Once I didn’t extend a bike ride because it would mean having to find food and it was a holiday.
- 1 day, 2 hours ago
  
  ConnieT1D62 likes your comment at
  If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
  the answer hasn't changed from the most recent time time that this question was posed. running out of questions?
- 1 day, 3 hours ago
  
  ConnieT1D62 likes your comment at
  If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
  Can we stop with the antibodies questions already?!??!!?!?
- 1 day, 18 hours ago
  
  Kristi Warmecke likes your comment at
  If you (or someone in your immediate family) have T1D, has anyone in your family been screened for T1D antibodies?
  Can we stop with the antibodies questions already?!??!!?!?
- 2 days, 23 hours ago
  
  Patricia Dalrymple likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 3 days, 1 hour ago
  
  Lisa Sierra likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 3 days, 2 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I had a problem with my infusion sets being on back order but I have met my deductible all ready.
- 3 days, 2 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 3 days, 2 hours ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 3 days, 2 hours ago
  
  Kathy Hanavan likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
- 3 days, 13 hours ago
  
  Bekki Weston likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I have used afrezza, the inhalable insulin
- 3 days, 17 hours ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
- 3 days, 17 hours ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
- 3 days, 20 hours ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  i have used metformin
- 3 days, 20 hours ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  metformin
- 3 days, 23 hours ago
  
  Anita Stokar likes your comment at
  Which of the following can make exercising more challenging for you? (Select all that apply)
  As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
- 4 days ago
  
  Marty likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
- 4 days, 23 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 4 days, 23 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 5 days ago
  
  mojoseje likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 5 days, 1 hour ago
  
  atr likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 5 days, 1 hour ago
  
  Bonnie kenney likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
- 5 days, 1 hour ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
Clear All

Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.

When you (or your child) were diagnosed with T1D, how long was your hospital stay?

Samantha Walsh

Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

16 Comments

kristina blake

I got spoiled for about 12 years while living in San Diego – the TCOYD flagship annual conference. Up-to-date info, great sharing of hacks and tips, judgment free place to question “advice/directions” from your own endo’s (and endorks) and the swag was great. Face-to-face with vendors, chances to meet with real-life users of the tech.
When I moved to Portland OR I went to an ADA Expo and left within 20 minutes. It was all geared to the needs of T2D (and yeah, they have needs and questions) but nothing for T1D – not even device reps etc.
I decided to try to get a TCOYD conference in my area. Got an estimated budget (TCOYD was very helpful) and started to plan how I could get large local donors. I knew I had to get the local ADA and HDRF orgs to back me in my endeavor. I wasn’t looking for $$, but their blessing so I could get the word out to the Endo’s in the area. Sadly, the local ADA and JDRF didn’t respond to my calls, letters or emails. I had to give up the idea.
Once the annual TCOYD’s are back, I’ll save up and go to San Diego (hopefully old friends will let me crash at their house!)

1

2 years ago Log in to Reply
1. Jneticdiabetic
  
  Hey Kristina. I think TCOYD in San Diego is back in person this summer. Aug 16-18th.
  https://events.blackthorn.io/en/36jDRT6/one-2024-in-person-5a3cPH4PqYz/overview
  
  2 years ago Log in to Reply
2. Kristin Sykes-David
  
  TCOYD is the best! The ONE conference in person was back on starting last year. Try the website! I would go, but I have a wedding to attend around that time.
  
  2 years ago Log in to Reply
Karen DeVeaux

I moved and now there are none near me so I said no.

2 years ago Log in to Reply
Phyllis Biederman

I attend the University of Colorado, Barbara Davies Center’s annual Keystone conference in July. It’s for health care providers (I’m a RN, CDCES specializing in T1D care, with T1D myself). It’s brings a variety of diabetes experts representing different sectors (research, government, industry and providers) from all over the world to an intimate, beautiful setting. The information is practical and really helpful. Please let your providers know about it!

1

2 years ago Log in to Reply
Karen Newe

Breakthrough T1D one day events. TCOYD One Conference—an adult T1 camp, the best!

2 years ago Log in to Reply
Jeff Perzan

Wisconsin’s Diabetes Advisory Group

2 years ago Log in to Reply
Trisha Oldenkamp

TCOYD ONE conference!

2 years ago Log in to Reply
james zellerhoff

I would to a conference
How do I get info as to where they are available ??
Jim Zellerhoff
T 1one D
Edge wood WA
jzellerhoff@gmail.com

2 years ago Log in to Reply
Edward Geary

If invited.

2 years ago Log in to Reply
CindyGoddard

Yes my husband and I are attending the TCOYD “ONE” Conference in August as we do every August they have it.

2 years ago Log in to Reply
Jeff Balbirnie

I am POOR, I possess neither the time nor the ability on any level to attend. Would likely enjoy the ability if, if I was able…

1

2 years ago Log in to Reply
1. PamK
  
  Jeff, watch for a JDRF Summit in your area. They are free to attend and you even get breakfast and lunch plus vendor samples!
  
  2 years ago Log in to Reply
PamK

I have already attended the local JDRF Summit and a TCOYD virtual event this year. I will do more as they are offered.

2 years ago Log in to Reply
Anita Stokar

I put “I’m not sure” because I don’t know of any in my area. If one comes close to where I live, it is possible that I might

2 years ago Log in to Reply
Kathleen Juzenas

I’m not sure. I usually go to an annual conference at my hospital in the fall but haven’t heard any announcement yet.

2 years ago Log in to Reply