T1D Exchange

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- 5 hours, 6 minutes ago
  
  Katrina Mundinger likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
- 5 hours, 6 minutes ago
  
  Katrina Mundinger likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
- 5 hours, 17 minutes ago
  
  TEH likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
- 5 hours, 17 minutes ago
  
  TEH likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
- 5 hours, 24 minutes ago
  
  TEH likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
- 5 hours, 38 minutes ago
  
  Gary R. likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
- 6 hours, 13 minutes ago
  
  KSannie likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
- 6 hours, 13 minutes ago
  
  KSannie likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
- 6 hours, 13 minutes ago
  
  KSannie likes your comment at
  How many unopened, unexpired insulin pens or vials do you have?
  Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
- 9 hours, 22 minutes ago
  
  Steve Rumble likes your comment at
  Do you store your unopened insulin in the refrigerator?
  I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
- 12 hours, 10 minutes ago
  
  Donna Owens likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  Yes. It’s f*ing annoying.
- 22 hours, 53 minutes ago
  
  Amy Schneider likes your comment at
  Do you store your unopened insulin in the refrigerator?
  I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
- 1 day ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I want a thumbs down icon!
- 1 day ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
- 1 day ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  When I come up with a question between visits, I usually just do some research.
- 1 day, 2 hours ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
- 1 day, 2 hours ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
- 1 day, 2 hours ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
- 1 day, 3 hours ago
  
  Becky Hertz likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
- 1 day, 4 hours ago
  
  Bruce Schnitzler likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
- 1 day, 6 hours ago
  
  alex likes your comment at
  Here’s What You Need to Know About the Dexcom G7
  This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
- 1 day, 21 hours ago
  
  KarenM6 likes your comment at
  Have you ever been told you couldn’t physically do something because you live with diabetes?
  Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
- 1 day, 22 hours ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
- 1 day, 22 hours ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
- 1 day, 22 hours ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  Lol hell when haven't they. Lol
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