Poll Answers - T1D Exchange

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- 1 hour, 47 minutes ago
  
  Amy Schneider likes your comment at
  Do you store your unopened insulin in the refrigerator?
  I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
- 3 hours, 13 minutes ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I want a thumbs down icon!
- 3 hours, 14 minutes ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
- 3 hours, 14 minutes ago
  
  Kathy Hanavan likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  When I come up with a question between visits, I usually just do some research.
- 5 hours, 26 minutes ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
- 5 hours, 27 minutes ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
- 5 hours, 28 minutes ago
  
  ConnieT1D62 likes your comment at
  Do you store your unopened insulin in the refrigerator?
  No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
- 6 hours, 10 minutes ago
  
  Becky Hertz likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
- 7 hours, 33 minutes ago
  
  Bruce Schnitzler likes your comment at
  Do you store your unopened insulin in the refrigerator?
  Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
- 9 hours, 30 minutes ago
  
  alex likes your comment at
  Here’s What You Need to Know About the Dexcom G7
  This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
- 1 day ago
  
  KarenM6 likes your comment at
  Have you ever been told you couldn’t physically do something because you live with diabetes?
  Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
- 1 day ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
- 1 day ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
- 1 day ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  Lol hell when haven't they. Lol
- 1 day, 1 hour ago
  
  KarenM6 likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day, 2 hours ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
- 1 day, 2 hours ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
- 1 day, 3 hours ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day, 7 hours ago
  
  kilupx likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  My brother was type 1 since an early age. I was only diagnosed in my late 40s
- 1 day, 9 hours ago
  
  Phyllis Biederman likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
- 1 day, 9 hours ago
  
  Bill Williams likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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