Poll Answers - T1D Exchange

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- 16 minutes ago
  
  Mary Coleman likes your comment at
  Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
  When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
- 1 hour, 48 minutes ago
  
  Robin Melen likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
- 1 hour, 49 minutes ago
  
  Robin Melen likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
- 1 hour, 49 minutes ago
  
  Robin Melen likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
- 1 hour, 49 minutes ago
  
  Robin Melen likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
- 1 hour, 49 minutes ago
  
  Robin Melen likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
- 13 hours, 19 minutes ago
  
  KarenM6 likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Amazing!
- 13 hours, 19 minutes ago
  
  KarenM6 likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
- 13 hours, 20 minutes ago
  
  KarenM6 likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Dang, now I jinxed myself 🙃
- 16 hours, 23 minutes ago
  
  Bekki Weston likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
- 20 hours, 20 minutes ago
  
  Ahh Life likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
- 21 hours, 28 minutes ago
  
  Bill Williams likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
- 21 hours, 53 minutes ago
  
  ConnieT1D62 likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  So gratifying to see so many "no" responses, way to go everyone!!
- 22 hours, 51 minutes ago
  
  T1DGJ likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
- 22 hours, 51 minutes ago
  
  T1DGJ likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
- 22 hours, 52 minutes ago
  
  T1DGJ likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  I stopped using those sites and paid more attention to rotation of available ones.
- 23 hours, 15 minutes ago
  
  Greg Felton likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
- 23 hours, 16 minutes ago
  
  Greg Felton likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
- 23 hours, 16 minutes ago
  
  Greg Felton likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
- 23 hours, 16 minutes ago
  
  Greg Felton likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
- 23 hours, 25 minutes ago
  
  jo likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
- 23 hours, 26 minutes ago
  
  jo likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  So gratifying to see so many "no" responses, way to go everyone!!
- 23 hours, 27 minutes ago
  
  jo likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
- 23 hours, 27 minutes ago
  
  jo likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
- 23 hours, 27 minutes ago
  
  Janis Senungetuk likes your comment at
  In the past three years, have you been hospitalized due to T1D?
  Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
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Question of the day

At what age could you (or your child) apply a new sensor independently without help?

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We received 305 answers

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T1D Exchange Team: Our Type 1 Diabetes Diagnosis Stories

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All About the Medtronic Minimed 780G Closed-Loop Automated Insulin Pump System

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Meet the Expert: Improving Patient Care Systems to Increase CGM Use

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How many low blood sugars do you have per week?

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Using GLP-1 Medications in Type 1 Diabetes

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Meet the Expert: Looking Beyond A1c at a Patient’s Quality of Life

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Fear of Hypoglycemia: New Tool Helps Docs Identify “FoH” in People with Diabetes

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Meet the Expert: Evaluating Telemedicine in T1D Patient Care

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T1D Exchange Team: Our Type 1 Diabetes Diagnosis Stories

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Total Transparency: How Cost Plus Drugs Sells Affordable Medications

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All About the Medtronic Minimed 780G Closed-Loop Automated Insulin Pump System

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Do you keep snacks in your car for lows?

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