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- 15 hours, 3 minutes ago
  
  KarenM6 likes your comment at
  Have you ever been told you couldn’t physically do something because you live with diabetes?
  Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
- 15 hours, 5 minutes ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
- 15 hours, 6 minutes ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
- 15 hours, 7 minutes ago
  
  KarenM6 likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  Lol hell when haven't they. Lol
- 15 hours, 15 minutes ago
  
  KarenM6 likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 17 hours, 7 minutes ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
- 17 hours, 8 minutes ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
- 17 hours, 10 minutes ago
  
  lis be likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 21 hours, 11 minutes ago
  
  kilupx likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  My brother was type 1 since an early age. I was only diagnosed in my late 40s
- 23 hours, 13 minutes ago
  
  Phyllis Biederman likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
- 23 hours, 58 minutes ago
  
  Bill Williams likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
- 1 day ago
  
  Lawrence S. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day ago
  
  KCR likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
- 1 day ago
  
  Gary R. likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day ago
  
  ConnieT1D62 likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day, 1 hour ago
  
  eherban1 likes your comment at
  How much did you know about type 1 diabetes before you were diagnosed?
  Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
- 1 day, 13 hours ago
  
  NANCY NECIA likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
- 1 day, 15 hours ago
  
  Anita Stokar likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
- 1 day, 15 hours ago
  
  Anita Stokar likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
- 1 day, 15 hours ago
  
  Anita Stokar likes your comment at
  Has someone ever told you that you can’t eat something because you live with diabetes?
  No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
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Question of the day

If you use a CGM, in what situations has a sensor accidentally been pulled off your body? Select all that apply and share your own in the comments.

During exercise

While playing a sport

At the beach

While sleeping

On a doorframe

In the shower

While getting dressed or undressed

On a wall

Something else - please share in the comments!

I have never had a sensor get accidentally pulled off

N/A - I do not use a CGM

N/A - I do not have a personal T1D connection

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We received 959 answers

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