Poll Answers

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- 1 hour, 12 minutes ago
  
  Ahh Life likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 3 minutes ago
  
  ConnieT1D62 likes your comment at
  In your own words, how would you describe the feeling of a severe low?
  Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
- 3 hours, 9 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
- 3 hours, 9 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 11 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 3 hours, 12 minutes ago
  
  Modee likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
- 3 hours, 21 minutes ago
  
  Samantha Robinson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
- 3 hours, 26 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
- 3 hours, 28 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 29 minutes ago
  
  beth nelson likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 3 hours, 45 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
- 3 hours, 45 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
- 3 hours, 46 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
- 3 hours, 46 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
- 3 hours, 47 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
- 3 hours, 47 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
- 3 hours, 47 minutes ago
  
  Jeff Marvel likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
- 4 hours, 6 minutes ago
  
  William Bennett likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
- 4 hours, 6 minutes ago
  
  pru barry likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
- 4 hours, 8 minutes ago
  
  pru barry likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
- 4 hours, 38 minutes ago
  
  Bill Williams likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
- 4 hours, 52 minutes ago
  
  Janis Senungetuk likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
- 5 hours, 1 minute ago
  
  Richard Wiener likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
- 5 hours, 3 minutes ago
  
  Richard Wiener likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
- 5 hours, 26 minutes ago
  
  Katrina Mundinger likes your comment at
  Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
  One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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Question of the day

If you’ve lived with T1D for 20 years or longer, how would you describe the difficulties or challenges you’ve experienced with T1D over the years? Please pick the statement that best fits your experiences (even if it’s not a perfect fit). If you’re comfortable, please share more about your experiences in the comments.

Managing T1D has become easier the more time I've lived with it

Managing T1D has its challenges and there are times when I have more difficulty, but I feel like I can navigate these challenges more effectively the more time I've lived with T1D.

The difficulty of managing T1D waxes and wanes - some times are more difficult, and during those times I still struggle the same as I did closer to when I was diagnosed, but I've made it through.

Managing T1D has gotten more difficult for me the longer I've lived with it.

Other - please share in the comments

N/A - I have not lived with T1D for 20 years or longer

N/A - I do not have a personal T1D connection

Please select an option

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Question of the day

MOST COMMENTED

Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes

Do You Ever Change Your Lancet?

Tidepool Loop FDA Clearance: Chatting with CEO Howard Look

Mark Cuban’s Cost Plus Drugs Tests New Insulin Program

Connected Insulin Delivery Devices

Automated Insulin Delivery Systems

7 Things People Say About Type 1 Diabetes That Drive Us Crazy

Your T1D Goals for 2023!

The Six Dysfunctional Hormones of Type 1 Diabetes

What We Learned from the Online Community in December

RECENT

Our Experience: Taking GLP-1 Medications Like Ozempic & Trulicity with Type 1 Diabetes

Do You Ever Change Your Lancet?

Tidepool Loop FDA Clearance: Chatting with CEO Howard Look

Mark Cuban’s Cost Plus Drugs Tests New Insulin Program

Connected Insulin Delivery Devices

Automated Insulin Delivery Systems

7 Things People Say About Type 1 Diabetes That Drive Us Crazy

Your T1D Goals for 2023!

The Six Dysfunctional Hormones of Type 1 Diabetes

What We Learned from the Online Community in December

Privacy Policy

Terms of Use

Follow Us

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Select Topics

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