Poll Answers - T1D Exchange

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- 1 hour, 4 minutes ago
  
  Ahh Life likes your comment at
  If compensation were offered for research participation, what format would you prefer?
  Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
- 1 day, 12 hours ago
  
  lis be likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
- 1 day, 12 hours ago
  
  lis be likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
- 1 day, 12 hours ago
  
  lis be likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
- 1 day, 12 hours ago
  
  Ahh Life likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
- 1 day, 14 hours ago
  
  Molly Jones likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
- 1 day, 18 hours ago
  
  Lawrence S. likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
- 1 day, 18 hours ago
  
  Daniel Bestvater likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
- 1 day, 19 hours ago
  
  dholl62@gmail.com likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
- 1 day, 20 hours ago
  
  TEH likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
- 1 day, 21 hours ago
  
  atr likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
- 1 day, 21 hours ago
  
  atr likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
- 1 day, 21 hours ago
  
  atr likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  All depends on location and age requirements
- 1 day, 21 hours ago
  
  atr likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
- 1 day, 21 hours ago
  
  atr likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
- 1 day, 21 hours ago
  
  Chrisanda likes your comment at
  How often do you change infusion or sensor sites earlier than recommended?
  Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
- 2 days, 12 hours ago
  
  Ahh Life likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
- 2 days, 12 hours ago
  
  Ahh Life likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
- 2 days, 15 hours ago
  
  Mary Thomson likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
- 2 days, 15 hours ago
  
  TEH likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  All depends on location and age requirements
- 2 days, 16 hours ago
  
  Kristi Warmecke likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  All depends on location and age requirements
- 2 days, 18 hours ago
  
  lis be likes your comment at
  If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
  I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
- 2 days, 18 hours ago
  
  lis be likes your comment at
  If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
  Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
- 2 days, 20 hours ago
  
  Sarah Berry likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
- 2 days, 20 hours ago
  
  Sarah Berry likes your comment at
  Would you be willing to participate in long-term research (1 year or longer)?
  All depends on location and age requirements
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Question of the day

If CGMs existed when you were diagnosed with T1D and you wanted to use one, did you have to wait to get a CGM for any reason? Select all of the below options that apply to you.

Yes – my health care provider would not prescribe a CGM until a particular amount of time had passed

Yes – my health care provider would not prescribe a CGM until I showed a certain level of skill with my T1D management (i.e., reached a lower A1c, “earned” the CGM in some way)

Yes – my health care provider did not want me to use a CGM

Yes – my insurance would not cover a CGM until after a certain amount of time had passed

es – my insurance would not cover a CGM until it was proved necessary

Yes – my insurance would not cover CGMs, or I did not have insurance coverage

No – I started using a CGM as quickly as possible and it was a smooth process

I waited but only because I did not know about CGMs and was not informed by my health care provider

I waited, but it was my choice

CGMs did not yet exist when I was diagnosed with T1D

I have never used a CGM

Other - please share in the comments

N/A - I do not have a personal T1D connection

Please select an option

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