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- 1 hour, 23 minutes ago
  
  Mary Halverson likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes, I was diagnosed by my family physician as type II because I was not a child. I was treated for type II for 2-3 years and could never get my A1C down. I finally drove an hour to an Endo and hour back. As soon as the dr walked in he said, Hmmm.. I do not believe you are type II but we will do a peptide test just to see. Sure enough, I was not and then was diagnosed as type I. Most general practitioners do not know enough about diabetes to treat patients with it. GO TO AN ENDO! I learned!
- 1 hour, 27 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  At the age of 31, I had no symptoms of diabetes, either type, but my blood sugar was abnormal at my yearly checkup, and so it was assumed to be type 2. After three months of taking oral medicine and trying to convince the doctor I was not forgetting this but no decrease in my hemoglobin, I went to the hospital to start insulin. I would not have been aware of any of this for who knows how long.
- 1 hour, 27 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  After a routine blood test my primary care doctor told me I had type 2. I was not feeling sick in any way. Since I was age 66, I had no reason not to believe him. But the Metformin he prescribed made me very sick. He was disinterested so I found an endo on my own, who diagnosed type 1 immediately.
- 1 hour, 27 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Type 2
- 1 hour, 28 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes, Type 2 because I was 36. Even though it was rapid onset and I kept loosing weight and getting sicker on Metformin. From 1st mistaken diagnosis by Internist to correct diagnosis by Endocrinologist was 1-1/2 months
- 1 hour, 28 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  diagnosed with Type 2 by my GP at age 43. put me on glucophage and avandia but my A1C kept climbing. said I'd start on Lantus after the holidays if it didn't go down. found my endo who was the head of adult diabetes center in med center in Houston.
- 1 hour, 28 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  I was 39, so diagnosed at type 2 and put on a medication to make my pancreas produce more insulin. Obviously, it didn't work!
- 1 hour, 29 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Was diagnosed with DM2 for two years. I knew I didn’t have type 2 but doctors said I did. Finally and Endo did a C-peptide and said I was LADA or adult onset T1D
- 1 hour, 29 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  After c-peptide test showed T1D. Adult onset.
- 1 hour, 29 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes. Diagnosed T2D first.
- 1 hour, 30 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes, I was misdiagnosed with Type 2
- 1 hour, 30 minutes ago
  
  Sheri Marcus likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  I was diagnosed at age 50+. My primary care (PC) doctor was absolutely certain I was type 2 and treated accordingly. After 6 mos. of totally useless oral medications I visited an endocrinologist (my PC refused to refer!) who ran the appropriate blood work to determine I was in fact type 1 and insulin dependent. Needless to say, I sought and found a new PC.
- 1 hour, 56 minutes ago
  
  Robin Melen likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  So I had a severe case of the mumps at the end of fifth grade. Slowly, for over a year, I began having symptoms that no one picked up on. I was a very active kid so that may have staved off the damage done to my pancreas by my immune system during that mumps illness. But, I also had a sweet tooth, so that didn’t help. Finally after many trips to the doctor the previous year, at the beginning of my seventh grade year, I started vomiting and could not stop. I had lost so much weight during the past year and that didn’t help. I looked like a skeleton and all I could think about was drinking water and then, of course, peeing a lot. I was DKA. My Mom, again, took me to our family doctor who sent me straight to the hospital where I was diagnosed Type 1. I realized years later that I was probably only inches away from a coma.
- 2 hours, 7 minutes ago
  
  Karen DeVeaux likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes. Diagnosed T2D first.
- 3 hours, 7 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I always check CGM before driving.
- 3 hours, 8 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  Always check my bloodsugar before driving to be safe. Plus, I tend to wait an hour or so after meals before I get in the car to drive. Then, I always carry tabs in an easy to reach location while I am driving. Better safe than sorry.
- 3 hours, 8 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  If blood sugar is low you do not even start the car! Technology makes that a simple choice!
- 3 hours, 8 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I check my bg on cgm before starting the car --> always!
- 3 hours, 8 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I wear DexCom monitoring and Tandem insulin pump. I also carry snacks allowing me to treat impending low.
- 3 hours, 9 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  No, but almost. Thankfully I was right around the corner from my final destination so I could deal with it as soon as I stopped. It was just trending down and I had a couple mins to spare before it required action.
- 3 hours, 9 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I have had to stop. I have glucose tablets in my man-purse (3 tubes) and in each of my 3 vehicles, car, truck, and motorcycle. I am not a fan of pulling over and can take glucose tablets most times without stopping. When riding the MC I ALWAYS STOP.
- 3 hours, 10 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  I didn't pull over, but I definitely downed a couple of orange sugar pills at the next light!
- 3 hours, 10 minutes ago
  
  Lawrence S. likes your comment at
  In the past month, have you needed to pull over while driving because of low or high blood glucose levels?
  If I am low while driving and feel ok (most instances) I will just treat it. If I'm high, I ake a bolus from my phone and with my phone in the CD holder it can recognize my face.
- 3 hours, 15 minutes ago
  
  Lawrence S. likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  Yes. I was seven and my mother died on Aug 1. The church was bringing us (dad and three siblings) dinners and desserts every night. Halloween rolled around and I was “acting strange” wetting my pants, walking into trees. The doctor diagnosed me with psychosis stemming from grief and put me on a couple of antidepressants. I had developed a cough so I was given cough syrup (pure sugar). I slipped into a coma and no one knew what was wrong with me. It took two days until, finally, a young doctor on the emergency staff figured out to test my bg.
- 3 hours, 16 minutes ago
  
  Lawrence S. likes your comment at
  Were you misdiagnosed with another condition before you were diagnosed with T1D?
  My GP knew instantly. Besides all the classic symptoms, extreme thirst, constant urination, and unexplained weight loss, a quick test gave him all he needed, there was no question in his mind. And even though I was 32 at the time, he got me started on insulin almost immediately. He first had me get a glucose tolerance test at the hospital lab, but they told me they wouldn't do one once they saw my fasting blood glucose; they said the test would make me sick and my doc didn't need any more information for the diagnosis.
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Question of the day

When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.

Notified of low blood glucose (by a device, person, service animal, etc.)

Notified of high blood glucose (by a device, person, service animal, etc.)

Device reminders (e.g., low insulin, upcoming site change)

Device communication issues (e.g., signal loss, device out of range)

Physical effects of a low

Physical effects of a high

Insulin delivery issue (e.g., empty pump reservoir, pump malfunction)

Needing to check blood glucose levels

Low device battery

Other - please share in the comments

N/A - I do not have a personal T1D connection

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We received 1215 answers

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