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    • 11 hours, 7 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 18 hours, 8 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 18 hours, 8 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 18 hours, 18 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 18 hours, 19 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 18 hours, 26 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 18 hours, 40 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 19 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 19 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 19 hours, 15 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 22 hours, 24 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 1 hour ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 11 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 13 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 15 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 16 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 17 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 19 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.

    Home > LC Polls > Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments.
    Previous

    When you (or your child) were diagnosed with T1D, how long was your hospital stay?

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    If you live with T1D, does another family member have a T1D diagnosis too? Choose all that apply.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    16 Comments

    1. kristina blake

      I got spoiled for about 12 years while living in San Diego – the TCOYD flagship annual conference. Up-to-date info, great sharing of hacks and tips, judgment free place to question “advice/directions” from your own endo’s (and endorks) and the swag was great. Face-to-face with vendors, chances to meet with real-life users of the tech.
      When I moved to Portland OR I went to an ADA Expo and left within 20 minutes. It was all geared to the needs of T2D (and yeah, they have needs and questions) but nothing for T1D – not even device reps etc.
      I decided to try to get a TCOYD conference in my area. Got an estimated budget (TCOYD was very helpful) and started to plan how I could get large local donors. I knew I had to get the local ADA and HDRF orgs to back me in my endeavor. I wasn’t looking for $$, but their blessing so I could get the word out to the Endo’s in the area. Sadly, the local ADA and JDRF didn’t respond to my calls, letters or emails. I had to give up the idea.
      Once the annual TCOYD’s are back, I’ll save up and go to San Diego (hopefully old friends will let me crash at their house!)

      1
      2 years ago Log in to Reply
      1. Jneticdiabetic

        Hey Kristina. I think TCOYD in San Diego is back in person this summer. Aug 16-18th.
        https://events.blackthorn.io/en/36jDRT6/one-2024-in-person-5a3cPH4PqYz/overview

        2 years ago Log in to Reply
      2. Kristin Sykes-David

        TCOYD is the best! The ONE conference in person was back on starting last year. Try the website! I would go, but I have a wedding to attend around that time.

        2 years ago Log in to Reply
    2. Karen DeVeaux

      I moved and now there are none near me so I said no.

      2 years ago Log in to Reply
    3. Phyllis Biederman

      I attend the University of Colorado, Barbara Davies Center’s annual Keystone conference in July. It’s for health care providers (I’m a RN, CDCES specializing in T1D care, with T1D myself). It’s brings a variety of diabetes experts representing different sectors (research, government, industry and providers) from all over the world to an intimate, beautiful setting. The information is practical and really helpful. Please let your providers know about it!

      1
      2 years ago Log in to Reply
    4. Karen Newe

      Breakthrough T1D one day events. TCOYD One Conference—an adult T1 camp, the best!

      2 years ago Log in to Reply
    5. Jeff Perzan

      Wisconsin’s Diabetes Advisory Group

      2 years ago Log in to Reply
    6. Trisha Oldenkamp

      TCOYD ONE conference!

      2 years ago Log in to Reply
    7. james zellerhoff

      I would to a conference
      How do I get info as to where they are available ??
      Jim Zellerhoff
      T 1one D
      Edge wood WA
      jzellerhoff@gmail.com

      2 years ago Log in to Reply
    8. Edward Geary

      If invited.

      2 years ago Log in to Reply
    9. CindyGoddard

      Yes my husband and I are attending the TCOYD “ONE” Conference in August as we do every August they have it.

      2 years ago Log in to Reply
    10. Jeff Balbirnie

      I am POOR, I possess neither the time nor the ability on any level to attend. Would likely enjoy the ability if, if I was able…

      1
      2 years ago Log in to Reply
      1. PamK

        Jeff, watch for a JDRF Summit in your area. They are free to attend and you even get breakfast and lunch plus vendor samples!

        2 years ago Log in to Reply
    11. PamK

      I have already attended the local JDRF Summit and a TCOYD virtual event this year. I will do more as they are offered.

      2 years ago Log in to Reply
    12. Anita Stokar

      I put “I’m not sure” because I don’t know of any in my area. If one comes close to where I live, it is possible that I might

      1 year ago Log in to Reply
    13. Kathleen Juzenas

      I’m not sure. I usually go to an annual conference at my hospital in the fall but haven’t heard any announcement yet.

      1 year ago Log in to Reply

    Do you plan on attending a diabetes-related conference or event this year? Please share more in the comments. Cancel reply

    You must be logged in to post a comment.




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