T1D1 Archives - T1D Exchange

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- 3 hours, 23 minutes ago
  
  Patricia Dalrymple likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 5 hours, 58 minutes ago
  
  Lisa Sierra likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 6 hours, 17 minutes ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I had a problem with my infusion sets being on back order but I have met my deductible all ready.
- 6 hours, 17 minutes ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  I live in a constant fear of losing my health insurance, or having it change to something that makes all my durable medical and prescriptions too expensive.
- 6 hours, 17 minutes ago
  
  Lawrence S. likes your comment at
  How concerned are you about being able to afford your next T1D supply order?
  A little concerned, more so than usual. I currently have insurance that covers diabetes supplies completely but I don’t take this for granted.
- 6 hours, 55 minutes ago
  
  Kathy Hanavan likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I’ve been taking Rybelsus for 3 years now. I’ve lost 50+ pounds, reduced my insulin by 65% and have kept my A1C at a steady 6.3!!
- 17 hours, 54 minutes ago
  
  Bekki Weston likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I have used afrezza, the inhalable insulin
- 21 hours, 52 minutes ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Yes, I tried metformin, Ozempic, and Zepbound. The only one that worked, and worked really well was zepbound. Unfortunately, when my insurance changed, I could no longer get it because it wasn't covered and the T2 version which is Mounjaro I could not get off lable because I am T1. Zepbound cut my insulin needs in half and I lost 30 lbs. I would take it again just for the insulin resistance tho. However, I have some lingering insulin resistance improvement even with discontinuing it in Sept, though I have gained a little weight back.
- 21 hours, 54 minutes ago
  
  lis be likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  Currently using Mounjaro along with Humalog via my TSlim insulin pump, running control IQ.
- 1 day, 1 hour ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  i have used metformin
- 1 day, 1 hour ago
  
  Deborah Wright likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  metformin
- 1 day, 4 hours ago
  
  Anita Stokar likes your comment at
  Which of the following can make exercising more challenging for you? (Select all that apply)
  As an avid hiker, climber and mountaineer my challenges are mostly weather related. Is my pump warm enough, are my extra supplies warm enough, is my insulin starting to freeze.
- 1 day, 4 hours ago
  
  Marty likes your comment at
  In addition to injectable insulin, have you ever used other therapies such as inhalable insulin, oral medications like metformin, or GLP-1s like Ozempic?
  I was taking metformin at the beginning of this journey, because at 40 they assumed T2. (No family history, not overweight, was running 3-4 miles 2-3x week). Put on insulin when endo diagnosed me with LADA.
- 2 days, 3 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 2 days, 3 hours ago
  
  Marty likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 2 days, 4 hours ago
  
  mojoseje likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 2 days, 5 hours ago
  
  atr likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 2 days, 5 hours ago
  
  Bonnie kenney likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
- 2 days, 5 hours ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  If you don’t have accuracy and reliability, none of the rest matters.
- 2 days, 5 hours ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  Hard to say only one is most important. I would not use any device that was problematic on any of these except with a minor level of discomfort/wearability. Maybe the better question is ask to rank these or ask if any are unimportant …
- 2 days, 5 hours ago
  
  Bill Ervin likes your comment at
  Which of the following is the most important to you when choosing diabetes devices or supplies?
  I would like to say accuracy, but if it’s not covered and I can’t afford it, then it’s not happening.
- 2 days, 6 hours ago
  
  Jaysen LeSage likes your comment at
  Which of the following can make exercising more challenging for you? (Select all that apply)
  I find the hardest thing is getting started. Diabetes doesn’t really cause issues
- 2 days, 21 hours ago
  
  ChrisW likes your comment at
  What kind of diabetes-related support would be most helpful to you right now?
  Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
- 2 days, 21 hours ago
  
  ChrisW likes your comment at
  What kind of diabetes-related support would be most helpful to you right now?
  For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
- 3 days, 2 hours ago
  
  kristina blake likes your comment at
  How often do you review your glucose data beyond quick, real-time checks?
  Monthly to quarterly. Depending on control. If I notice more highs or lows I’ll copy check for trends and make dosing adjustments to straighten myself out. I almost never wait for appts to review and make changes on my own.
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Drew Mendelow: Teen Creator of T1D1, a Free Insulin Calculator App for T1D Management

Michael Howerton, 6 hours ago 6 min read

Diagnosed with type 1 diabetes (T1D) at 13, Drew Mendelow turned feeling overwhelmed into action — establishing T1D1, a 501 (c) (3) non-profit…

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