registry Archives - T1D Exchange

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- 6 hours, 58 minutes ago
  
  Samantha Walsh likes your comment at
  Connected Insulin Pens: Here are Today’s “Smart Pen” Options
  Super helpful, thank you!
- 8 hours, 26 minutes ago
  
  Katrina Mundinger likes your comment at
  How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
  I am the only one with T1D, but 75% of my immediate family have autoimmune issues.
- 8 hours, 26 minutes ago
  
  Katrina Mundinger likes your comment at
  How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
  Honestly anyone living with you , you're the only one, lives with diabetes. Kinda vague on the "living" term.
- 10 hours, 43 minutes ago
  
  Sue Martin likes your comment at
  How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
  Honestly anyone living with you , you're the only one, lives with diabetes. Kinda vague on the "living" term.
- 12 hours, 51 minutes ago
  
  Lawrence S. likes your comment at
  How many people in your immediate family — your parents, siblings, or spouse — live with type one diabetes?
  I am the only one with T1D, but 75% of my immediate family have autoimmune issues.
- 1 day ago
  
  ConnieT1D62 likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.
- 1 day ago
  
  ConnieT1D62 likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  Put yourself in their shoes, after you are taken care of. Offer to leave early if it helps them catch up. Or talk to them about sports, weather or kids to give them a break from their daily grind of explaining fried potato products don't count as a vegetable.
- 1 day, 7 hours ago
  
  lis be likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
- 1 day, 7 hours ago
  
  Bruce Schnitzler likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  First and foremost, please don't trash anything extra you may have! Find an outlet, may not be FDA sanctioned, but someone somewhere can use your extra supplies! I've built up a small backup from replacements for my own use (CGM sensors/pods that went bad). However, I'd tried Lyumjev (didn't work out) plus had a couple of extra glucose meters, test strips, lancets, and carriers that I donated to an org intended for help to Ukraine. Hopefully, it helps kids/adults in need. I served in the military overseas and saw directly how great the need can be, both peace and war environments. If you have extra, please find an outlet for insulin, meters, test strips, et al...whether here at home or overseas...please don't trash the stuff!
- 1 day, 10 hours ago
  
  Bob Durstenfeld likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  Contact insulin pampers on line
- 1 day, 11 hours ago
  
  Louise Robinson likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I've given them to the Endocrinologist office to share with those in need
- 1 day, 11 hours ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  Kept some, gave some away, and, after a while, tossed out the old supplies I had kept.
- 1 day, 11 hours ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  Local free clinic
- 1 day, 11 hours ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  The only extra I have had was G6 over patches when I switched to G7. I gave them to someone using G6.
- 1 day, 11 hours ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  Gave to Endo office for someone who can use.
- 1 day, 11 hours ago
  
  Karen Tay likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I have a support group for type 1 women only and if someone in our group needs something we let the facilitator know and she keeps track of who might need supplies or have extra. you cannot advertise prescription items online for free or Facebook. may restrict you. so beware of that.
- 1 day, 11 hours ago
  
  Mick Martin likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I rarely have extra supplies but when I do, I give them to my two grandsons who have T1 diabetes.
- 1 day, 11 hours ago
  
  Mick Martin likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  The only extra I have had was G6 over patches when I switched to G7. I gave them to someone using G6.
- 1 day, 11 hours ago
  
  Mick Martin likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I did donate a bunch of extra test strips once (to endo's office), but wish I could figure out what to do with old Omnipods. I ended up with 3 extra boxes when they switched me to the new system a few months ago, but none of the usual places want them/can take them. I hate to throw them away knowing how much they cost. (Thankfully I only paid the co-pay, but still it hurts to see them wasted.)
- 1 day, 11 hours ago
  
  KCR likes your comment at
  If you have ever had extra supplies from a device, you no longer use, what did you do with those extra supplies? (Check all that apply)
  I did donate a bunch of extra test strips once (to endo's office), but wish I could figure out what to do with old Omnipods. I ended up with 3 extra boxes when they switched me to the new system a few months ago, but none of the usual places want them/can take them. I hate to throw them away knowing how much they cost. (Thankfully I only paid the co-pay, but still it hurts to see them wasted.)
- 2 days, 7 hours ago
  
  jo likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  I had appointment today wasn't feeling good
- 2 days, 10 hours ago
  
  Jeff Marvel likes your comment at
  If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.
  I like Lyumjev too! Works faster for me.
- 2 days, 11 hours ago
  
  Robin Melen likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  Been at this for 40 years now. Not much a CDE can teach me at this point. More the reverse, actually.
- 2 days, 11 hours ago
  
  MT likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  After 20+ years as a Type I, my appointments are with my endo, where I end up educating him on the latest research. Most endo's patient population is almost exclusively Type 2 and are not as plugged into Type 1
- 2 days, 11 hours ago
  
  Mick Martin likes your comment at
  How many times in 2023 did you have an appointment with a Certified Diabetes Care and Education Specialist?
  7 video calls in preparation for going onto a closed loop system
Clear All

ADCES 2023: Improving Patient Care & Outcomes in Type 1 Diabetes

Ginger Vieira, 4 months ago 1 10 min read

This year’s Association of Diabetes Care & Education Specialists (ADCES) conference was held in Houston, TX on August 4 –…

Measuring a Year – the First Anniversary of the T1D Exchange Registry

selman, 3 years ago 0 2 min read

June marks a milestone of great importance and excitement for T1D Exchange – it’s been exactly one year since the T1D Exchange Registry launched to the public, bringing together a large number of people with type 1 diabetes from around the country.

Real World Evidence: What It Means and Why it Matters for Type 1 Diabetes

Susana Elman, 4 years ago 0 3 min read

People living with type 1 diabetes learn, in many ways, to be research scientists and investigators of their own lives. We learn how slices of pizza or a plate of spaghetti affects our blood sugar, and how to mediate those effects with multiple boluses of insulin or a long-lasting dose. We discover precisely how much sugar we need to stay steady during an intense workout session.

In doing so, we begin to learn about the meaning and applications of real-world data and evidence. Modern medical and scientific research takes several different approaches to investigation, from randomized, controlled clinical trials to longitudinal, observational studies that examine how people live with various conditions and therapies in the real world.

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