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Rioles, N, Hardison, H, Ilkowitz, J, Dewit, E, Malik, F, Mohsenian, Y, Raman, V, Ohmer, A, Wright, T, Wirsch, A, Ebekozien, O.
Background
National learning health networks should design stakeholder engagement (SE)1 opportunities and involve people with diabetes (PWD) in quality improvement (QI) interventions to improve healthcare delivery for people of all ages with diabetes.
Using a Chronic Care Model of participatory design, T1D Exchange Quality Improvement Collaborative (T1DX-QI) convenes a PWD committee and supports shared decision-making with their healthcare providers (HCP) across T1DX-QI’s 55 medical centers.
T1DX-QI convenes a Patient/Parent Advisory Committee, providing patient voices and insights to the learning health network to engage in meaningful, high-quality care co-led by PWD.