Our Initiatives

Our resources at T1D Exchange to design, populate, and facilitate many different types of diabetes-related research includes: The Registry, The Quality Improvement Collaborative (T1DX-QI), The Online Community, and Custom Research.

Here’s a deeper look at each of these pathways to meaningful diabetes research.

Quality Improvement Collaborative (T1DX-QI)

T1D Exchange works directly with healthcare providers to improve healthcare and outcomes for people living with diabetes.

The T1DX-QI is comprised of 60+ endocrinology centers across the US, collectively caring for over 160,000 people living with type 1 and type 2 diabetes.

Our quality improvement coaches and data scientists work with healthcare providers at T1DX-QI member clinics to identify areas of unmet need, use data benchmarking, refine best practices, and implement evidence-based solutions that improve care and outcomes for people living with diabetes.

Quality Improvement Successes:

The quality improvement work executed by the T1DX-QI has resulted in many examples of improved care, including:

• increasing CGM prescriptions and use
• developing programs to help patients with A1C values over 9%
• increasing access to diabetes technology in certain racial/ethnic groups
• improving mental health screen in both adult and pediatric clinics
• increasing clinic visit frequency in Medicaid-insured youth
• decreasing DKA hospitalizations through a targeted diabetes wellness program
• increasing follow-up attendance after DKA hospitalizations
• creating screening to identify and address fear of hypoglycemia
• …and more!

Custom Research:

T1D Exchange can design and execute your diabetes-related research studies.

T1D Exchange has in-house diabetes expertise: research and data scientists, subject matter experts, and leaders in quality improvement and health equity.

Several of our team members either live with T1D or have an immediate family connection to T1D, offering unique perspective and passion to our work.

Our flagship initiatives give us access to:

• EMR data on 130,000+ people living with T1D and T2D
• Patient-reported outcomes (PRO) data on over 20,000 people with T1D
• CGM data integrated with patient-reported data for 3,500 people with T1D
• Linked PRO, CGM, lab, and claims data

We have a track record of success conducting a wide variety of T1D research services, including:

• Interviews and focus groups
• Online surveys
• Virtual studies
• Quantitative research
• Qualitative research
• Performance improvement analysis
• Implementation project analysis

Registry:

The T1D Exchange Registry is an online, longitudinal research study designed to capture the experiences and challenges of individuals living with T1D.

The Registry has over 20,000 participants or caregivers of children who live with T1D. Participants complete an annual questionnaire and can participate in additional research studies throughout the year.

• Characterized cohort of 20,000+ people living with T1D
• Collects PRO data on demographics, disease management, and more.
• Linked CGM data for 3,500 participants

The T1D Exchange Registry connects academic and industry researchers to participants through an online dashboard of curated T1D research opportunities.

We can recruit for external studies to a specific subgroup or to the Registry, in its entirety, to assist in recruitment. Solicitations to participants can be tailored according to specific inclusion criteria, such as zip code, age, presence of comorbid conditions, and other characteristics. We can host study pages with digital screeners to assess participant eligibility for clinical trials, and connect qualified individuals directly to their local study sites.

Researchers can also submit requests for certain datasets —shared as aggregate and de-identified, in addition to the study being displayed and completed through our online platform.

Online Community:

The T1D Exchange Online Community is a platform for people living with T1D and members of their support network. Our community consists of over 80,000 email subscribers and social media followers.

Members of the community can engage by answering our “Question of the Day” series about life with T1D, participate in research studies, read the latest news on T1D treatments and devices, and connect with others who live with T1D.

Our ability to engage with the T1D community through the T1D Exchange Registry, Online Community, and social media makes us a unique and valuable resource for recruiting research participants.