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- 8 hours, 29 minutes ago
  
  Cecilia Yamamoto likes your comment at
  At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
  Why aren't there more studies on heart disease risk with only T1Ds? I have read peer reviewed medical articles that confirm that T1Ds were not studied exclusively in statin research. We were advised to be treated with statins even if our cholesterol was excellent and there were no other risk factors. I suffered from elevated A1c, weight gain, insulin resistance, extremely low cholesterol which led to vitamin D deficiency which caused respiratory problems and inability to exercise or enjoy leisure activities due to breathlessness and muscle pain. Doctors believed that any symptoms reported by patients were due to the "Nocebo effect" despite my improvement when I didn't take statins for six months when I forgot to refill my prescription! I suffered these side effects from 2002-2016 when I finally found a doctor who took me seriously. We need to be treated as individuals with T1D, not treated based on studies on the majority of T2 studies.
- 9 hours, 37 minutes ago
  
  Lenora Ventura likes your comment at
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes, my dad had T1. My diagnosi made him and my mom so sad. I tried hard to make it no big deal so they wouldn’t worry.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
- 9 hours, 37 minutes ago
  
  Lenora Ventura has commented in the same post you commented in :
  At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
  Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
Clear All

Weekly Coronavirus Resources for People with T1D – 6/19/2020

selman, 3 years ago 0 4 min read

Your Daily News Roundup

Everything you need to know this week about type 1 diabetes and coronavirus updates, in one easy-to-read place!

Researchers, advocates, clinicians, and organizations around the country and across the web have been hard at work, creating resources for people living with T1D to better handle the ongoing COVID-19 coronavirus pandemic.

We’re taking the opportunity each week to share some of those resources that may help people get through this challenging time with the help of partners and experts.

We will be sharing the most recent, most relevant behavior change content from Beyond Type 1, JDRF, and more!

Take a look!

This week, we’re focusing on legislation that has the potential to help keep our community safe until we’re all safe, and resources to help our community weigh and mitigate risks as they head back into society.

Here are some of the stories to keep an eye on this week.

Check out these articles:

Nationwide research participation remains far too low for racial/ethnic minorities and other underrepresented groups. Read this important piece on Why Diversity is Important in Research.

T1D Exchange to Present Ten Studies Focused on Quality Improvement, Population Health, and Real-World Evidence in Type 1 Diabetes at 80th American Diabetes Association Scientific Sessions.

“You Don’t Know When the Sugar’s Going to Kick In” – T1D Exchange Research on Managing Diabetes During a Marathon.

Moving the Needle on the High-Risk T1D Patient – Lessons and Perspectives from the T1D Exchange Quality Improvement Collaborative

The decision of whether to stay or leave a job that is not providing accommodations you need is a complicated and emotional one, especially during a pandemic. Check out this piece on fighting off job discrimination with Type 1 diabetes during COVID-19.

MedScape

New preliminary data from the T1D Exchange suggest that although hyperglycemia and diabetic ketoacidosis (DKA) are common in people with type 1 diabetes who develop COVID-19, many are still able to manage the illness at home and overall mortality is relatively low. Click here to read more insights into how half of those with COVID-19 and Type 1 diabetes manage the virus at home.

New Global Registry Investigates COVID-19 and New-Onset Diabetes. There have been very initial observations on a possible tie between COVID-19 and the onset of diabetes.

Here are a few of the most exciting and important resources that we’ve seen about this topic in the last few weeks — we’ll be updating the list regularly as time goes on!

This image has an empty alt attribute; its file name is divider_t1d-exchange.png

PRELIMINARY FINDINGS OF SURVEILLANCE COVID-19 IN INDIVIDUALS T1D.

T1D Exchange is pleased to announce the preliminary results of its population health surveillance study, “Type 1 Diabetes and COVID-19: Preliminary Findings from a Multi-Center Surveillance Study in the United States,” recently published in Diabetes Care, the peer-reviewed medical journal of the American Diabetes Association.

The study focuses on individuals with type 1 diabetes (T1D) who are suspected or confirmed to have contracted Coronavirus Disease 2019 (COVID-19). This is the first U.S. based, multi-center study to examine patient characteristics and adverse outcomes among individuals with confirmed or suspected COVID-19.

This image has an empty alt attribute; its file name is divider_beyond-type-1.png

SUMMER IS HERE: ARE YOU STILL SAFER AT HOME? Read this piece on Weighing risks of exposure and how we can make smart choices.

Check out this image on Instagram, shared to remind people to consider #BigLittleChanges.

Click at the link to find on Facebook this video resource on how to cope with T1D during stressful and uncertain times.

Watch this video about Navigating the Psychosocial Impacts of T1D on Children During Quarantine.

CoronavirusDiabetes.org is now available in Hindi.

The American Diabetes Association (ADA)

ADA is working on two key pieces of US-based legislation.

The COVID-19 Testing, Reaching and Contacting Everyone (TRACE) Act helps local organizations create mobile testing units and conduct door-to-door outreach with a special preference for hot spots and underserved communities.

The Affordable Insulin for the COVID-19 Emergency Act would eliminate insulin cost-sharing for seniors living with diabetes enrolled in Medicare Part D during the COVID-19 emergency. Seniors would also be able to obtain a 90-day supply of insulin by mail to avoid the risk of going to the pharmacy.

Tags #Beyond Type 1 #COVID-19 #Medscape #news #newsworthy #T1D Exchange #T1D Exchange Registry

Preliminary Findings from the T1D Exchange COVID-19 Study

selman