Data security is paramount for health registry databases

When it comes to personal data – particularly medical information and records – we can never be too careful. With the expansion of electronic medical records, healthcare devices from CGMs to smartphones, and other registries of patient information, we’re able to gather far more information than ever before. This provides us invaluable windows into both individual and population health, but it carries risks as well.

Today, January 28th, has been designated by the Council of Europe as Data Privacy and Protection Day since 2007, and recognized two years later by the U.S. Congress in 2009.

Its focus is raising awareness and promoting education and activism about the importance of data privacy, measures that can be taken to ensure personal information is protected, and efforts around the world for the cause.

Protecting the T1D Community

At T1D Exchange, we take data security and privacy extremely seriously. After all, you’ve entrusted us with your information, so we have an ethical obligation to safeguard it.

All of our research and registry data is secured and protected according to HIPAA regulations, and T1D Exchange staff are regularly trained on those data protection rules. We follow all regulatory guidelines on de-identified and anonymized data, and we only share findings and progress with research partners who adhere to the same protections.

As data sets grow ever larger, more complex, and more comprehensive, they represent enormous potential – potential that needs to be safeguarded and stewarded responsibly.

Take a moment today to learn about data privacy and its importance to medicine, technology, and society – today, and in the future.

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