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T1D EXCHANGE REGISTRY

WHAT IS IT?

The T1D Exchange Registry is a collection of individuals with type 1 diabetes and their supporters who participate in research.

  • You complete a survey to help researchers learn more about disease management and progression, glycemic control, acute complications, and utilization of health services.
  • You update your information through a short survey, once a year.
  • You can take part in additional research opportunities such as taking surveys or uploading health device data.

Be heard. Support the community. Drive research that matters.

REGISTRY PORTAL

WHY SHOULD I SIGN UP?

By joining the Registry and sharing your voice, experiences, and data, you are contributing to the most comprehensive data set of type 1 diabetes in the United States, driving meaningful treatment, care, and policy.

HOW DO I SIGN UP?

To sign up for the registry study, there are three steps:

  1. Sign up for an account and complete screening questions
  2. Read and sign an electronic consent form
  3. Complete the initial questionnaire and an annual follow-up

HOW CAN I PARTICIPATE AS A RESEARCHER OR PROVIDER?

If you are a researcher or provider looking to explore our diverse data set or are interested in surveying the registry, please reach out to the study team at Registry@t1dexchange.org.

STUDY PARTICIPANTS AND CAREGIVERS

  • Participate in research by answering surveys and sharing experiences
  • Generate evidence that will support changes in policy and insurance

HEALTHCARE PROFESSIONALS

  • Encourage patients to be self-advocates by participating in research
  • Accelerate research and help in solving unmet needs

RESEARCHERS

  • Access a comprehensive data set, including patient-reported experiences
  • Submit a research proposal to survey Registry participants

COMING SOON!

Please keep checking for these exciting new features!

 

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