T1D EXCHANGE PATIENT-CENTERED RESEARCH
WHAT IS IT?
Patient-centered research is a dynamic effort to methodically collect data and experiences of individuals with type 1 diabetes. Studies focus on T1D Exchange Registry of patients, who share their experiences in both the clinic and real world. Studies include surveys, observational trials, and patient-reported outcomes, sometimes integrated with device data.
WHY DO IT?
Patients want to participate in treatment decisions. Doctors and diabetes educators want to have in-depth conversations with their patients but have limited time and resources. Drug and device developers have trouble accessing patient data to bring to market life-improving technologies. T1D Exchange Patient-Centered Research provides data about patient perspectives, behaviors, and challenges to spark discovery, steer development and clinical care, and advocate for better resources and access.
HOW DOES IT WORK?
T1D Exchange invites patients from in and outside of the Registry to contribute to research. After consenting, participants answer specific questions about their physical, emotional, and behavioral status, as well as their diabetes management. T1D Exchange also welcomes individuals living with type 1 diabetes to T1D Exchange Glu, the organization’s online community. By answering the community’s Questions-of-the-Day posted daily, members of T1D Exchange Glu add their voices and experiences to the research collective.
5 Troubling Findings on Glucagon Use Among Adults with Type 1 Diabetes
A study by T1D Exchange Patient-Centered Research and Baylor College of Medicine finds that there is too much confusion and not enough education about glucagon use.