Patient Community

Patient Community 2017-02-17T13:01:24+00:00

Glu is our active type 1 diabetes online community designed to accelerate research and amplify the collective voice of those living with T1D. On Glu, people living with T1D can connect with others, contribute to discussions, research, and learn from the wealth of rich information on the site…and that’s just the beginning.

Glu Community Key Facts:

  • Crowdsourced citizen science emerges from the community offering a fresh perspective to complement traditional methods of inquiry.
  • Glu is over 16,000 patients, caregivers, and supporters strong—with more people joining daily.
  • Traditional models of research and healthcare delivery are enhanced by direct patient involvement in the discovery process and treatments related to their own health.
  • Data are collected in a variety of ways from the site, ranging from simple polls that do not require IRB approval to complex studies that examine longitudinal data.

Glu Recent Activities:

  • The first Glu research abstract was presented at the ADA 73rd Scientific Sessions and two more were presented this year.
  • Glu patients have been queried about injectable glucagon, as part of a study sponsored by a small pharmaceutical partner interested in improving usability of injectable glucagon via alternative modes of administration.
  • Glu patients have been surveyed on topics such as hypoglycemia, healthcare providers, advocacy, food and nutrition, and T1D camps.
  • Glu discussion around a new CGM have been shared directly with the device maker, including anonymous verbatims.
  • An observational study has been conducted examining the effect of duration of insulin pump infusion set use on glycemic control and total daily insulin dose in individuals with T1D who are older than 18 years or less than 10 years old.