T1D Exchange Clinic Registry bolsters research and development projects and programs in type 1 diabetes by helping researchers characterize individuals living with the disease, conduct exploratory or hypothesis-generating analyses, and identify participants for future clinical studies.
Clinic Registry Key Facts:
- Comprised of 32,000+ individuals with T1D who range in age, at time of enrollment, from less than one year to 93 years
- Participants enroll in the registry database by completing a questionnaire, making their medical records available, and offering additional data at annual follow-up appointments
- Goal is to update key information from all participants on an annual basis and target subsets of participants with custom questions to address specific research objectives
Clinic Registry Recent Findings:
- Most adults and children with T1D do not achieve goals for glucose control set by the American Diabetes Association
- Pump use is much more frequent in Whites than Blacks or Hispanics, a relationship that persists even after adjusting for socio-economic status
- Frequency of home glucose monitoring is strongly associated with better diabetes control as measured with HbA1c
- Adolescents and young adults with T1D have worse glucose control and are at higher risk for DKA than younger or older individuals with T1D.
The overall mission to improve outcomes for people with T1D has been a driving force in every decision during the Exchange development process. Accelerating human-based research and development is a key element to achieving this mission.