In New England, we recently moved our clocks forward to signal the beginning of Daylight Savings. Somehow, it feels like time itself has sped up.
I co-founded T1D Exchange six years ago and each year it feels like time is moving faster than ever. When I look at the programs we have implemented and are currently working on to improve outcomes, I know we are using every moment we have to make a difference in type 1 diabetes (T1D).
Just this month, we:
What’s next? Stay tuned because we’re expecting a really exciting Spring:
At T1D Exchange, we’re making great progress every day. But we couldn’t do it without you. Whether you participate on Glu, the Clinic Registry or the Living Biobank, you have helped give type 1 diabetes not only a voice; but also an audience. Our community is being heard by people researching T1D and companies developing new treatments and devices. They are all leaning in, listening and learning from you.
Executive Director, T1D Exchange
T1D Exchange recently brought our clinical community of more than 230 instigators and coordinators together to collaborate, develop new study ideas and work on current and upcoming T1D Exchange research projects and studies.
Our communications director and mom of son with T1D highlights 3 studies that provide helpful insights to help with glycemic control.
The T1D Exchange Biobank is an important resource developed to advance the understanding of T1D. We spotlight one researcher, Yuval Dor, who is putting biosamples to work.
"Our research is opening up exciting opportunities for early detection of T1D and monitoring of disease progression and response to therapy"
T1D Exchange Investigator: Viral Shah Assistant Professor of Medicine and Pediatrics Barbara Davis Center for Diabetes University of Colorado
Data shows that the use of an insulin pump and/or continuous glucose monitors (CGM) improve glycemic control. Yet, only a small percentage of people with type 1 diabetes (T1D) are using—and benefitting from—these technologies.
T1D Exchange researchers analyzed factors associated with device discontinuation from 2,452 adults with T1D who have been enrolled in the T1D Exchange clinic registry for a year or longer and:
Rate of discontinuation of CGM was higher than pump discontinuation in adults with T1D.
54 of the 1,608 people using pump (3%) discontinued use within 1 year.
Participants who discontinued pump were more likely to be:
Most Common Reasons for Pump Discontinuation
Problems with insertion/adhesive
Using a pump was too expensive/not covered by insurance
The pump interfered with sports activities
The pump was uncomfortable to wear
Disliked wearing the pump
The pump interfered with intimacy
Problems with the pump working properly
Problems with high blood sugars when using the pump
273 of 1,006 people using CGM (27%) discontinued use within 1 year.
Lower income was associated with higher rate of CGM discontinuation. A1c was higher among those who discontinued CGM.
Most Common Reasons for CGM Discontinuation
Problems with the CGM working properly/not accurate enough
Problems with the sensor insertion/adhesive
Using a CGM was too expensive/not covered by insurance
The CGM sensor was uncomfortable to wear
Using a pump and did not want two sites on body
The CGM was too big
Our data shows that the use of an insulin pump and/or continuous glucose monitor (CGM) improves glycemic control—and that leads to better T1D outcomes. T1D Exchange is committed to addressing barriers to pumps and CGM adoption. [ Read about a health policy initiative we launched with JDRF and The Helmsley Charitable Trust to address this topic.]
It’s important to understand the real world reasons why some people with type 1 diabetes discontinue using these devices. Data from this study can be used to help companies making pumps or CGMs to incorporate human factors into design to hopefully boost device acceptance…and long-term use.
DiabeteSpeaks is a podcast series featuring interviews with people of various ages and perspectives of living life with type 1 diabetes.
Tune in today and follow DiabeteSpeaks on social media.
As part of our online community of over 16,000 people touched by T1D, you can answer Question of the Day, participate in real-time research, share experiences and learn from others. Go >>
Here's a look at popular conversations happening right now in on Glu.