News Quarterly

driving faster, better research to improve type 1 outcomes

The Power of Connection

Too often, traditional research models exlcude the patient perspective, those whose voices matter most. Here at T1D Exchange, we are working to change that by connecting real people to research in many ways. Your participation in T1D Exchange research via Glu, the Clinic Registry, and Living Biobank helps drive faster research for improved outcomes in type 1 diabetes (T1D).

In this newsletter, we share key ways out patient community is moving research forward, including studies on the production of insulin years after diagnosis, a higher rate of pump use in American children, and an inside look at T1D discrimination and stigma - and why this research matters to us all.

For real change to occur, we've got to work together, and it starts with you. Let's make 2015 a great year in driving outcomes that matter!

Dana A. Ball

Research Roundup

Some people continue to produce insulin years after being diagnosed

Our research shows that about one-third of people with T1D produce insulin even up to 40 years post-diagnosis.

This finding could have significant policy implications for people with T1D who, because of their C-peptide levels, may not meet Medicare, Medicaid, and private insurer's criteria for an insulin pump. Learn more >>

Pump Use in Children: How Does U.S. Compare with Other Countries?

T1D Exchange collaborated with 2 international T1D patient registries to gain a multi-national view of pump use in children and adolescents.

We learned:

  • In the US, insulin pumps are primarily appealing to adolescents
  • Insulin pump use was higher among patients with longer T1D duration
  • Those using pumps had a lower HbA1c level (average 8.1) than those using injections (average 8.6)

This research may provide new opportunities to improve quality of care. Learn more >>

Have you experienced diabetes-related stigma, discrimination or bullying?

The American Diabetes Association reports that they receive hundreds of calls each month about discrimination issues. While stigma, discrimintation, and bullying are often hot topics for discussion, little is known about these issues in relation to people with T1D. Glu is working with a graduate student at the University of North Carolina (UNC) to learn about diabetes-related stigma, discrimination, and bullying. Learn more >>

More to Explore

Learn about current and upcoming T1D Exchange research

Studies Now Underway

T1D Exchange is committed to gaining insights into sissues which really matter for people with type 1 diabetes. Current and upcoming research topics include:

  • nutrition and how eating patterns may associate with HbA1c numbers
  • the transition from pediatric to adult health care
  • racial differences in HbA1c numbers
  • the routine use of continous glucose monitors (CGM) without blood glucose monitoring (BGM) may be as safe and effective as CGM use with BGM.
  • sleep is impacted in youth and parents of youth with T1D

We look forward to sharing what we learn!

Want more? Here's other noteworthy research

Q1 2015

Accelerate Research: 2 Easy ways to get involved

Participate in Glu

As part of our online community of over 12,000 people touched by T1D, you can answer Question of the Day, participate in real-time research, share experiences and learn from others. Go >>

Join the Living Biobank

Help science advance research and improve lives by providing valuable blood samples from people with T1D. Go >>

What's everyone Glu-ed to?

Get inspired! Watch Steve's amazing year of climbing while living with T1D.
Watch Project365 >>

Stay Informed. Internationally respected diabetologist Dr. Anne Peters wants people to be informed about potential risks of off-label use of non-insulin therapies. Go >>

Get Real. Our very own GluMom, Amy Bevan, opened up about the impact T1D has had on her marriage. Go >>