Too often, traditional research models exlcude the patient perspective, those whose voices matter most. Here at T1D Exchange, we are working to change that by connecting real people to research in many ways. Your participation in T1D Exchange research via Glu, the Clinic Registry, and Living Biobank helps drive faster research for improved outcomes in type 1 diabetes (T1D).
In this newsletter, we share key ways out patient community is moving research forward, including studies on the production of insulin years after diagnosis, a higher rate of pump use in American children, and an inside look at T1D discrimination and stigma - and why this research matters to us all.
For real change to occur, we've got to work together, and it starts with you. Let's make 2015 a great year in driving outcomes that matter!
Dana A. Ball
Our research shows that about one-third of people with T1D produce insulin even up to 40 years post-diagnosis.
This finding could have significant policy implications for people with T1D who, because of their C-peptide levels, may not meet Medicare, Medicaid, and private insurer's criteria for an insulin pump. Learn more >>
T1D Exchange collaborated with 2 international T1D patient registries to gain a multi-national view of pump use in children and adolescents.
This research may provide new opportunities to improve quality of care. Learn more >>
The American Diabetes Association reports that they receive hundreds of calls each month about discrimination issues. While stigma, discrimintation, and bullying are often hot topics for discussion, little is known about these issues in relation to people with T1D. Glu is working with a graduate student at the University of North Carolina (UNC) to learn about diabetes-related stigma, discrimination, and bullying. Learn more >>
Learn about current and upcoming T1D Exchange research
T1D Exchange is committed to gaining insights into sissues which really matter for people with type 1 diabetes. Current and upcoming research topics include:
We look forward to sharing what we learn!
As part of our online community of over 12,000 people touched by T1D, you can answer Question of the Day, participate in real-time research, share experiences and learn from others. Go >>
Help science advance research and improve lives by providing valuable blood samples from people with T1D. Go >>
Get inspired! Watch Steve's amazing year of climbing while living with T1D.
Watch Project365 >>
Stay Informed. Internationally respected diabetologist Dr. Anne Peters wants people to be informed about potential risks of off-label use of non-insulin therapies. Go >>
Get Real. Our very own GluMom, Amy Bevan, opened up about the impact T1D has had on her marriage. Go >>