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    • 21 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 1 hour, 25 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 2 hours, 13 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 13 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 3 hours, 25 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 3 hours, 25 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 4 hours, 43 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 3 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 21 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 2 days, 22 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 3 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 20 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 21 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you.

    Home > LC Polls > With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you.
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    People with T1D, if you went trick-or-treating after diagnosis, were you allowed to keep your candy? Tell us about your experience in the comments!

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    Do you notice changes in your blood sugar patterns in colder weather?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. George Lovelace

      After I’ve had my coffee or before lunch

      6 years ago Log in to Reply
    2. Nevin Bowman

      I update the time myself, but sometimes it takes a few days til I remember to do it.

      6 years ago Log in to Reply
    3. Eve Rabbiner

      Choices you give are basically doing it compulsively or forgetting. How about, what’s the rush, I’ll do it in the morning.

      6 years ago Log in to Reply
    4. connie ker

      I hoping my internet phone and computer reset automatically, as well as the Freestyle Libre reader and Jitterbug Flip phone. But the clocks in the house are the hand resets and so is my older car. I just heard on the news that a lot of people prefer to stay on daylight savings time and not change the clocks, I would vote for that because being a type 1 diabetic, biorhythms are thrown off for awhile.

      6 years ago Log in to Reply
    5. Patricia Dalrymple

      Anybody miss glu? I liked being able to easily see prior questions. I liked being able to give a heart or a thumbs up to a reply. I liked being able to reply specifically to one answer. I’m sure I’m missing where I can set all of that up, but sometimes progress isn’t progress. I agree with: I do it when I remember which is usually when I am setting all my non-electric clocks over in my house (yes…I still have some that are digital.

      6 years ago Log in to Reply
    6. Jana Foley

      If my devices update automatically, they get done. If they don’t, they don’t usually get done. I’ll be back in sync when the next time change happens. And yes, I miss the old glu formats. I couldn’t go back in and correct a mistake the other day. It is also difficult to not be able to like or reply to comments others make.

      6 years ago Log in to Reply
    7. Sue Martin

      The tech at the doctor’s office gets frustrated and updates it.

      6 years ago Log in to Reply
    8. Conniekaycox

      Newly type 1 this is something had not realized had to address. Thanks for enlightening me 😄 who knew diabetes would be so much work!

      6 years ago Log in to Reply
    9. Janis Senungetuk

      I’ll either do it before going to bed tomorrow or after coffee Sunday morning. All of the clocks that have to be manually set…wall clocks, microwave, coffee maker, alarm clocks…will be slightly off one way or the other. It’s an annoying task that’s no longer necessary.

      6 years ago Log in to Reply
    10. Kim Panza

      I will update when I get an email reminder from my pump manufacturer.

      6 years ago Log in to Reply
    11. rick phillips

      I update because Sheryl makes me, and reminds me often until i get it done. Hey she is tough

      6 years ago Log in to Reply
    12. Britni Steingard

      I usually remember to update my meter after breakfast or lunch, so my first couple records will have the wrong time stamp. I’ve never had a pump before now; I’m not sure if it will update on its own or not.

      6 years ago Log in to Reply
    13. Donna Condi

      I usually think of it before dinner the next day.

      6 years ago Log in to Reply
    14. Mick Martin

      “Daylight Savings Time” or rather change from British Summer Time (BST to Greenwich Mean Time (GMT) happened last weekend for me. I did NOT remember to change the time on the two clocks in my room, nor my pump. Blessed Samhain (Hallowe’en, for my Christian brothers and sisters) for tomorrow. 😉

      6 years ago Log in to Reply
    15. Donald Cragun

      I stay up until the time change and update my devices (and change my basal rates) when the time shifts.

      6 years ago Log in to Reply
    16. Verna Holcomb

      I usually remember to get everything to the right time within a day or two.

      6 years ago Log in to Reply
    17. Robert Snyder

      Thanks for the reminder! 😉

      6 years ago Log in to Reply
    18. n6jax@scinternet.net

      I reset all my devices the next day, saying all the bad words I know… not out loud !!

      6 years ago Log in to Reply
    19. Kathy Krapohl

      I try to change the time at bedtime.

      6 years ago Log in to Reply
    20. Connie Hanham-Cain

      I reset the time features in my diabetes devices on the day/night of the change but it screws up up my biorhythm for the next 48 to 72 hours depending on whether it’s Fall behind or Spring forward. Agh!!! I wish for daylight savings time to be dissolved and done away with completely.

      6 years ago Log in to Reply
    21. Steven Gill

      Hmmm… I just corrected mine a few months ago for the LAST time change. Except for the differing BASALs the actual time zones have a limited effect since my meals fit in around my work schedules, but I can see how an hour difference can effect the differing BASAL patterns. Along with the “old fashioned” clocks one more thing to walk around the shack for.

      6 years ago Log in to Reply
    22. Molly Jones

      I answered this one incorrectly. I thought my pump automatically adjusted the time, but today on my phone saw an alert that said the pump and sensor’s time were off. Nice reminder to adjust my pump.

      6 years ago Log in to Reply

    With Daylight Savings Time ending this weekend, do you usually remember to change the time on your pump, meter and any other devices on the day of the change? Select any statements that apply to you. Cancel reply

    You must be logged in to post a comment.




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