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  • Activity
    • 11 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 13 hours, 25 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 27 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 16 hours, 19 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 16 hours, 35 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 17 hours, 31 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 17 hours, 53 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 12 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 14 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 14 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 14 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 14 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 17 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 13 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 14 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 15 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 15 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 16 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 18 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 18 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 5 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?

    Home > LC Polls > When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    30 Comments

    1. Larry Martin

      Insulin is safe at room temperature for 1 month. Mine is used up in 3 weeks so never needs to be cool, just not sitting in the sun.

      3
      2 years ago Log in to Reply
    2. Retired and glad

      I was told years ago by my pharmacist that the insulin shipped to his store was not refrigerated in transit. I also know that when I put my insulin in my pump it sits there for up to four days with no cooling provided. Now that I’m retired, if we plan to go on a multiweek vacation, I’ll probably ensure my hotel or cruise cabin has a refrigerator. For shorter periods, I’m not worried.

      4
      2 years ago Log in to Reply
      1. GLORIA MILLER

        I have traveled for up to three weeks at a time which meant many insulin changes in my pump. I have never refrigerated the insulin while traveling and never had any problem with it working properly.

        2
        2 years ago Log in to Reply
    3. Marthaeg

      I put it in a lunchbox with an icepack when I go on day- long bike rides.

      2 years ago Log in to Reply
    4. Janice B

      Some times frio and some times insulin case with cooling pack

      1
      2 years ago Log in to Reply
    5. Steve Gold

      for a long period of time I will carry two sets, one set that I leave where it can be refrigerated and another that I take with me. That way I always have an emergency backup in case I need to have it replaced. With the way the patient/insurance company interactions work these days it can take F-O-R-E-V-E-R (a week or two) and the support people that need to approve the replacement are not trained well enough to understand that type 1 diabetics need insulin to survive. Otherwise….

      1
      2 years ago Log in to Reply
    6. Amanda Barras

      Insulin is fine at room temperature for up to 30 days. So I don’t worry about it when it’s with me.

      2
      2 years ago Log in to Reply
    7. Eve Rabbiner

      Always try to find lodging with a fridge. Cooler with icepack, stored between suitcases for insulation for summer. Traveling in Iceland was really easy. Always cool, so I didn’t have to worry about the insulin heating up in the car.

      2 years ago Log in to Reply
    8. Keira Thurheimer

      I use a Frio pack when traveling.

      1
      2 years ago Log in to Reply
    9. Sahran Holiday

      Vial currently using doesn’t need refigeration. Backup does if gone for extended time or as a backup. Carry that in a cooler with a cold pack from freezer.

      2
      2 years ago Log in to Reply
    10. Henry Renn

      No, but I do not let my supply bag in hot environments nor sitting in sun even if ambient temp is cool.

      2 years ago Log in to Reply
    11. Nicholas Argento

      Room temperature is good enough for insulin on any trip under 1 month, and I don’t take those.

      2
      2 years ago Log in to Reply
    12. Trisha Oldenkamp

      I put my extra insulin in a Frio gel bag. It stays cool with just water. I’ve had hotel refrigerators that freeze the contents so I stay away from them. I’ve traveled to Africa where My lodging didn’t have full time electricity let alone a refrigerator. My insulin has always been fine.

      1
      2 years ago Log in to Reply
    13. Chrisanda

      I have always used a Frio to carry my insulin on trips (Novolog), as I was told it needed to stay cool. But as other people noted, I have been recently told by a pharmacist it doesn’t need to be refrigerated for up to 20 days. Then the logical idea that it’s attached to my warm body in a pump for days. I may get brave and not worry about it staying cool. However, the Frio does protect the glass bottles :). It is shipped to me in a cooled container. I do always request a fridge in hotels.

      2 years ago Log in to Reply
    14. ConnieT1D62

      I use a Frio when I travel on extended trips away from home. That hasn’t been happening lately for me due to the pandemic.

      2 years ago Log in to Reply
    15. Meerkat

      If a small ice chest is a unique case then I would answer yes.

      2 years ago Log in to Reply
    16. Bob Durstenfeld

      I use a FRIO evaporative cooler pouch.

      2 years ago Log in to Reply
    17. Mary Dexter

      Frio

      2 years ago Log in to Reply
    18. Janis Senungetuk

      I put an extra vial in a FRIO for backup.

      2 years ago Log in to Reply
    19. Beverly Crosby

      When traveling for a few days I always carry my insulin in my purse. It’s going to be with me and I’m going to be in a cool place.

      2 years ago Log in to Reply
    20. Kevin McCue

      Unique like a cooler maybe

      1
      2 years ago Log in to Reply
    21. Thomas Cline

      Everything goes into a Frio when the temperature goes above 86 F on a trip. I try to avoid trips to particularly hot climates.

      2 years ago Log in to Reply
    22. rick phillips

      I use a Frio. Works perfectly.

      1
      2 years ago Log in to Reply
    23. Vickie Baumgartner

      I have a Frio case. It works GREAT!!!

      1
      2 years ago Log in to Reply
    24. Sjoymex

      I rarely go where there won’t be an easily accessible refrigerator. Until I get there, my insulin is usually kept in my purse (never in the trunk of the car). The rare times I go somewhere without a fridge, I’ve kept it in a lunch bag with some ice packs seperated by a washcloth so it doesn’t freeze.

      2 years ago Log in to Reply
    25. Carol Meares

      Frio for over night. I have a small electric cooler for longer. Goes in car and hotel. I have had insulin freeze in hotel refrigerators. I have also used a small yeti. The costs of being diabetic that isn’t counted.

      1
      2 years ago Log in to Reply
    26. Chris Deutsch

      I use a Frio bag until we reach out destination. Then I put it in a refrigerator if possible.

      1
      2 years ago Log in to Reply
    27. Arlie Peck

      I keep it in a waterproof case and try to keep it in a cooler or refrigerator when possible on the road or traveling.

      2 years ago Log in to Reply
    28. Molly Jones

      I wasn’t sure what cool meant, so I chose other.
      I do not keep it with an ice pack where it would last more than 28 days, but it is kept in an insulated container that keeps it safe not to rise above room temperature or freeze.
      We often travel internationally and I find it easier to pack prefilled cartridges along with bringing my vial of insulin.

      2 years ago Log in to Reply
    29. Brianna Lyons

      If I don’t have access to a fridge (road trip, in between hotels, during flights) I love using a Frio bag, it provides a ton of peace of mind

      2 years ago Log in to Reply

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