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    • 7 hours, 11 minutes ago
      ChrisW likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      Still twice a year. It carries much less weight than time in range and the GMI.
    • 18 hours, 19 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 19 hours ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 17 hours ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 18 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 19 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 days, 14 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 18 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 15 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 17 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 18 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 19 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 4 days, 6 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 4 days, 14 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 18 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
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    On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied)
    Previous

    If you (or your child with T1D) celebrate Halloween, how do you balance blood sugar levels, physical activity, and candy during the festivities?

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    Do you have any flavors of glucose tabs that you prefer? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Lynn Smith

      It makes me mad that she charges me $25 to fill out a quick and easy pre-authorization form. But other than that, she’s fine.

      2 years ago Log in to Reply
    2. Chris Albright

      Beyond updating scripts as needed, I don’t get a whole of value from Endo. After 30 years of being a T1, I really don’t need much support from them so it works out.

      2
      2 years ago Log in to Reply
      1. Lyn McQuaid

        I was going to comment the exact same thing. After 30+ years, I know more about my management than my endo does and, besides, his real love is thyroid, not T1D. When he retires, I will see if another endo is any different as he is still he only one I’ve ever had.

        2 years ago Log in to Reply
    3. Lawrence S.

      My T1D provider is assigned to me by the hospital that I go to. She does a good job, and I have no reason to complain. But, I never get to see a doctor of Endocrinology. She spends more than enough time with me, reviews my lab results, and discusses current T1D issues.

      2 years ago Log in to Reply
    4. Anita Stokar

      I like mine. She spends a good amount of time with me when I have an appointment. She suggests but doesn’t demand me switching my diabetes regimen if she feels she has a better way of handling my diabetes (new pump, new insulin etc) and she looks for clinical trials I may be interested in.

      2 years ago Log in to Reply
    5. Lisa Sierra

      Dr. Lamont Weide is one of the smartest most caring providers ever. Happy Retirement Dr!!!

      2 years ago Log in to Reply
    6. Kate Kuhn

      I have been with my Endo for 37 years. She is a good doctor, but the practice she participates in is not managed well. Wait times to leave a message are usually 1 hour; phone calls are not returned; prescription renewals fail; if you have other endocrine issues that are not in your doctor’s speciality, you cannot see another doctor in the practice. Dealing with this practice is very frustrating!

      2 years ago Log in to Reply
    7. KIMBERELY SMITH

      Not at

      2 years ago Log in to Reply
    8. Jane Cerullo

      I gave my Endo a 4. I am always the one who brings up new products and treatments. He is more the status quo

      2 years ago Log in to Reply
    9. Kristen Clifford

      Another question that’s already been asked at least once! I’m pretty sure there were at least two other times before this one

      2 years ago Log in to Reply
    10. MT

      Mine is more like a scribe for the grim reaper…..asking me the same formatted questions for the last 20 years and my answers are the same. After 50 yrs of T1d, I’m pretty self-sufficient except for needing rx refills. I pay a lot of $$$ for this Dr who doesn’t really help with any day to day insulin adjustments and just repeats what the Medtronic sales reps tell him.

      1
      2 years ago Log in to Reply
    11. Ruth Schwartz

      Health Care Providers Are Limited due to The Care Protocols of The HEALTHCARE SITES, similar to LIMITED FOCUS of this Website, Nutritional Health Information and Big PHARMA Protocols

      1
      2 years ago Log in to Reply
    12. Jen Farley

      My Endocrinologist is great. His office is tough to work with, but nothing is perfect anymore. He works with my Rheumatologist when I bring up stuff noted by the blood work done by one doctor compared to another and sometimes had to ask why I was getting double the blood work on the same tests. He now checks the other doctors’ tests to verify the test has not already been run.
      He has helped me lose weight (60 lbs) and I am now feeling my low blood sugar reactions which has been about a decade or more since I had. Most of my past endocrinologist where on a goal to get me to a normal A1C.
      None of the past endocrinologists understood small changes make big changes in blood sugar readings. I had one doctor ask me if I was lying. I looked at her and said –never is death a quest of mine, so why would I lie? So, in my opinion, this guy listens and is the best I have had in decades (been with him after a recommendation since 2017).
      -Sorry seems like a long post.

      2 years ago Log in to Reply
    13. Annie Wall

      I am extremely happy with my diabetes care. I had been with my former Endo who was also my primary for 28 years. He is the one who got me in the pump so I will forever be grateful to him. He retired and I started with a new endo last April. I didn’t get much guidance from him then but he felt that I had exceptional control. I saw him again this week and this time he spent more time helping me tweak my ratios on my Tandem CIQ. I am flabbergasted! Already I’m having far fewer alerts and my graph is a much smoother line. I feel like I am a very fortunate person. When I was first diagnosed in 1980, there were no endocrinologists so I had a bit of waiting before I got the support I need.

      2 years ago Log in to Reply
    14. Sue Martin

      I had a great Endo for years, between two different hospital systems in my area (we both changed). She retired and assigned me a younger doctor whom she thought I’d get along with. I haven’t really connected with this new doctor even though it’s been several years. I think it would be odd to try to see someone else in her practice. So, I just go along. At least I can do video visits and don’t have to drive for an hour, wait in the room for her, and then an hour drive home.

      2 years ago Log in to Reply
    15. Bob Durstenfeld

      I tried switching to closer doctors several time, but have returned to the same Endo for 30 years as several looks at whole peeson, not just a diabetes manager.

      2 years ago Log in to Reply
    16. TEH

      I have had 4 Endo teams over the last 30 years, not counting the GP who thought I was T2. The current Endo and PA make the best team I have had. My Endo knows the physiology and emerging changes to treatment regements and my PA knows how to get the best out of my Pump. This has resulted in my best A1C numbers. The only problem is I expect my Endo to retire in the next few years.

      2 years ago Log in to Reply
    17. Steven Gill

      I think if you GRT a real efficient endocrinologist (not just handling the physical concerns but also proper trainer, even if just prescribing a trainer or educator) you’re fortunate. Of the 5 I’ve seen only the 2nd seemed efficient, the doctor I see prescribes what I need, handles the other physical aspects of my health. So I’m extremely satisfied.

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Up until the COVID pandemic I would have rated my endo a definite 5. This year she seems really burned out by the huge increase in patients and the very limited amount of time she’s allowed for each appointment. I realize that my 4 rate is more a reflection on the demands/limits imposed by her employer and not on the level of care she provides.

      1
      2 years ago Log in to Reply
    19. Tracy Jean

      My Diabetes Nurse Practitioner is AWESOME!

      2 years ago Log in to Reply
    20. Antsy

      My current (my 4th) END seems great, but I’ve only had 1 visit. The one before him was truly awful. My first two were outstanding, but both left their practices. Perhaps they spoiled me, but that third END was condescending, expensive and snapped at me when I asked questions. Very glad my new doc seems like a good one.

      2 years ago Log in to Reply
    21. Albert Olmstead

      Most if not all are overpriced and over glorified script writers. I think when you call them dr your just being polite

      1
      2 years ago Log in to Reply
    22. Jillkdubois

      I only need them to write my prescriptions, I don’t think any of the endo’s I’ve had really spend time to help me out.

      2 years ago Log in to Reply
    23. David Hedeen

      Wish everyone could be a fortunate as I hav been. T1 for 50 years with 3 endos. Ea were profer of Medicine any I could ask any question with respective responses!

      2 years ago Log in to Reply
    24. Carol Meares

      I am mostly (perhaps not always) satisfied with my Endo. He does his very best and plans on working past retirement. He loves his job. I hear horror stories with some endos and am grateful for the experience and knowledge of my Endo.

      1
      2 years ago Log in to Reply
    25. Jeff Balbirnie

      ROFLMAO…. let’s see, been hospitalized twice (non D) in the recent past, they NEVER called/followed up in any manner. Made two (2) appointments to get seen, THEY cancelled both with zero warning, nor explanation(s) of any kind… my primary, and her replacement LEFT the practice entirely…. only know because they eventually sent a “proforma” letter of the second escape. Have heard nothing from them who my new physician might be?! (I’m thinking they will either be a cardboard cutout of a doctor or chuckles the talking clown/monkey….) Zero faith in the primary… not ever. Must see whoever insurance designates or no insulin scripts, nor D supplies of any kind….

      2 years ago Log in to Reply
    26. PamK

      This would have been a 4 except at my last visit he decided I needed more insulin at dinner time due to evening highs. What he failed to notice was that these were rebound highs from pre-dinner lows!

      2 years ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied) Cancel reply

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