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    • 12 hours, 2 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 12 hours, 3 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 13 hours, 45 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 14 hours, 54 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 15 hours, 3 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 15 hours, 50 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 47 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 48 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 18 hours, 27 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 19 hours, 2 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 19 hours, 17 minutes ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 12 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 17 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 17 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 7 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 7 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 7 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 7 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 7 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 7 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 7 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 9 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!

    Home > LC Polls > Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments!
    Previous

    Over the past month, on average how often did you test for ketones?

    Next

    When do you bolus for a big holiday meal? If you bolus more than once, select all that apply to you!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Steven Gill

      I hold the opinion I’m doing what I’m NOT supposed to do… LIVE! A century ago insulin was unheard of, diabetics suffered a painful crippling death. The biggest goal I have is to live as full as l can, my biggest ego moment is when l hear “You don’t look like a dia…” Working in the “restoration” field I compete with 20 year olds. (partial like construction, I tear mold/water/fire damaged places apart to prepare for a rebuild. Today a poor guy passed away in his BR a week ago, they found him today). I appreciate technology with meters and newer insulin. My pump makes dosing so much easier, nutrition labels allow me to be more consistent. I’m constantly aware how diabetics used to sharpen needles, use “pee” strips and test tubes for some kind of glucose control. No matter my errant higher levels, the frequent hypoglycemic episodes, the inconvenience testing levels 8-9 times a day l want to remember how easy I have it thanks to the medical professionals, the technological industries for the “toys,” and the most? The diabetics from down the years going through hypo*s, timing meals precisely, hiding their supplies because of the stigma, and living as well as they can.

      5 years ago Log in to Reply
    2. Bob Durstenfeld

      I am grateful that I have lived a full and fulfilling life, that medical advancements have allowed me to raise three great sons. I was part of the first trial for a Continuous Glucose monitor sensor in 1977. It took almost thirty years for that technology and the Bluetooth technology to meet for us to have the CGM that we have today. I was promised a cure in my lifetime, but then, so was my T1D dad. he passed away 20 years ago, was blind and had kidney failure. My sight was save by doctors that experimented with lasers to treat retinopathy. I am very thankful.

      5 years ago Log in to Reply
    3. Mick Martin

      As well as my gratitude for SOME medical professionals, the “Other” that I indicated include such things as being able to test blood glucose levels, rather than urinalysis; needles that are not the size of javelins; pump technology and being able to use it; CGM (Continuous Glucose Monitoring) and how that has drastically reduced the number of times that I’ve lost consciousness (I also have a sleep disorder, called narcolepsy, which must be taken into account here, but the CGM has no control over that. 😉 )

      5 years ago Log in to Reply
    4. Eve Rabbiner

      Sure the modern devices have made living with T1D so doable. But, truly, having this condition is nothing to be grateful for.

      5 years ago Log in to Reply
    5. Nicholas Argento

      Like others, I am grateful to have survived, for me 52 + years, with what was once a death sentence. As a diabetes specialist, I am grateful for the inspiration that my T1D patients give me , daily, by their perseverance and often times great success. One group not mentioned- those scientists, engineers, mathematicians, pharmacists, and researchers who work to develop better T1D treatments…

      5 years ago Log in to Reply
    6. ConnieT1D62

      I consider it a blessing and a gift. In order to live well with diabetes one must accept it, develop understanding to make healthy choices, maintain a state of constant mindfulness and self-care discipline to preserve and sustain one’s energy, health and well-being. Living with diabetes affects all aspects of one’s life – physically, emotionally, mentally, and spiritually. I am grateful and thankful to be alive in a body that has diabetes since early childhood. What? Why? – you may ask. Diabetes has taught me how to live a mindful life and to not take anything for granted. Because of diabetes I am comparatively pretty healthy compared to other adults my age. I have already outlived many in my age category who did not have diabetes. I trust I have a few more years of life before I transition to another plane of existence. So I say “thank you” to diabetes for being my lifelong self-care companion.

      5 years ago Log in to Reply
    7. James Merrick

      I’m 75, diagnosed 45 years ago. I feel diabetes made me healthy. I quit smoking and slowly got healthy. Running and biking helped on that. So thankful for diabetes. Real pain in the ass, but it summoned something inside of me to learn from my disease. Aloha

      5 years ago Log in to Reply
    8. Melissa Neese

      I’m thankful that there is a ton of research and technology done for T1D. We get a lot of cool gadgets, and they’re coming up with new things all the time. The amount diabetes care has come just in my 17 years is awesome..so I look forward to the cool stuff we’ll get in the future too!

      5 years ago Log in to Reply
    9. Tb-well

      The silver lining for me is the understanding that you can do everything perfectly and still have it fail spectacularly. It is this under standing that lets you go out, do your best and be OK with things just not working out sometimes.

      5 years ago Log in to Reply
    10. cynthia jaworski

      Interesting. Not much consensus here. I guess I am grateful that my awful state feeling before my diagnosis (at age 10, I was certain my symptoms were incompatible with life) turned out to be something called diabetes, and that I could continue living. There have been things that came about because of my diabetes that were good: I got to go to summer camp! But these could have come about my other means as well. So, yeah. I am glad to be here 58 years later. Very glad.

      5 years ago Log in to Reply
    11. Jodi Greenfield

      50 years ago I watched my 5-year-old little sister (and my parents) go through the diagnosis, learning curves, and older technology for testing and injections. The way her glucose was tested at home was with ketostix dipped in urine. When I was diagnosed it was 2005 and I could test my glucose with a meter and now I have a flash CGM. Insulin was way improved and no longer from cows. Needle gauges are way smaller and less painful. I love my OmniPod dosing my insulin instead of 4 to 5 injections per day, I only have a cannula inserted every third day. 🙂

      5 years ago Log in to Reply
    12. Donald Stitt

      I am personally thankful for all mentioned plus technology that allows us to get up every morning to live our best life possible…

      5 years ago Log in to Reply
    13. Richard Vaughn

      I am so grateful that I have lived with Type 1 diabetes for 75 years, and I do not have any serious complications. Most of us in this community can have long, healthy lives with type 1.

      5 years ago Log in to Reply
    14. Tim Lors

      I am thankful for the technological improvements for managing T1D in the 40+ years I have had it, and that God has given me a much better & longer life than was expected at my diagnosis. I am thankful too that T1D is not that bad of a problem to have — there are lots & lots of people that have much bigger challenges in their life.

      5 years ago Log in to Reply
    15. Angela Naccari

      So thankful for my mom who was so helpful when I was diagnosed at the age of 6 in 1961. I am thankful there are now so many ways to have better control because of technology and knowledge!

      5 years ago Log in to Reply
    16. NAK Marshall

      Angelica, we’re similar. I was diagnosed at 9 in 1960! Haven’t we experienced amazing progress!!! I remember the day in my early 20’s when my whole attitude changed from how awful and unfair t1 was to seeing how much empathy and awareness of other situations it has taught me. Part of why I became a special education teacher !

      5 years ago Log in to Reply
    17. connie ker

      I am a senior with type 1 LADA, and am thankful for the Abbott Freestyle Libre, and my fingers are especially thankful too. So 10 times the thankfulness!!!! I am also thankful for the endo who diagnosed me when he said ” It isn’t cancer, you can go home and work with this disease”……and I have. This year has been difficult being in the high risk category, but I am thankful that I am not under lock down in a nursing home.

      5 years ago Log in to Reply
    18. connie ker

      PS. I am so very thankful for the discovery of Insulin 99 years ago in Canada. So next year we can all celebrate the 100th birthday of insulin manufacturing, and celebrate how far we have come in treating type 1 diabetes. Before 1921, this diagnosis was deadly. So we are all looking forward to the new year to celebrate insulin, and new vaccines to wipe out covid 19.

      5 years ago Log in to Reply
    19. Lori Rhoton

      I am so grateful for my husband who is an ICU/Emergency room RN/Manager. He is my rock and support system along with my mom and sister who also have diabetes and 2 daughters that have always been there for me. One is a Registered Dietitian.

      5 years ago Log in to Reply
    20. Britni Steingard

      strong tolerance for delayed gratification (from decades of having to wait until meal times to have treats like school birthday cupcakes or halloween candy)

      5 years ago Log in to Reply
    21. George Hamilton

      My first PCP after diagnosis in 1963 gave me great advice for which I am still thankful. He told me that I had the opportunity to take charge of my health management. His promise was that watching my weight, food intake and exercise would be likely to produce longer life than I would have without the cares from diabetes. I believed him. I am also thankful for the tech developments that moved me from a BG check at the hospital lab every three months to my current position with a meter, a pump, a CGM system. What a blessing to have all these tools to manage my life events.

      5 years ago Log in to Reply
    22. Vorisha

      I am thankful Insulin was already available when I was diagnosed, that I was diagnosed with something treatable. I found by accepting my diagnosis and taking responsibility for it treatment is not an issue for me. I am thankful for the truly wonderful amazing people I met only because I have T1D. And I am thankful for the person I have become. I don’t know if I would be the person I am today if I had not been diagnosed at age 10 in 1984.

      5 years ago Log in to Reply
    23. Molly Jones

      T1D has helped me want to try and understand more than my central nervous system. After being diagnosed with my second autoimmune condition, T1D twenty years ago, I became very interested to see what if any correlations there would be between epilepsy and T1D. It was nice to find a specific cause for both my epilepsy and T1D: GAD autoantibodies. It is nice to see how much research is being done and information found. I hope a T1D vaccine is working and available soon.

      5 years ago Log in to Reply
    24. keith johnson

      Because I have TD1 I have been able to participate in diabetic research and clinical trials. This gave me access to some of the world’s leading researchers. In 2008 I had my mini-med pump based on an algorithm with data collected from a Dexcom Seven.

      5 years ago Log in to Reply
    25. Cara Mengwasser

      If I had to have this disease, this is the time with all the technology and the fast acting insulin.

      5 years ago Log in to Reply
    26. Ahh Life

      Dad lived to 102 & Mom still going at 96. They both went on diabetic exchange diet in 1951 to accommodate me the T1D. Maybe that helped them also. 👻🤡

      5 years ago Log in to Reply
    27. Cheryl Seibert

      All the choices are good. I’ve been T1 since 1966 and so far no major complications other than age-related start of a cataract. In addition, because I have T1D, I’m more observant when family members are ill and can see medical conditions developing quicker (or at least I think I do! LOL!).

      5 years ago Log in to Reply

    Living with T1D can be frustrating and finding silver linings can be difficult, but is there anything that you’re thankful for related to T1D? Select all the options you’re grateful for and spread the positivity in the comments! Cancel reply

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