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    • 3 hours, 56 minutes ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 4 hours, 25 minutes ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 4 hours, 26 minutes ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 4 hours, 27 minutes ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 4 hours, 57 minutes ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 6 hours, 53 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 6 hours, 55 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 6 hours, 56 minutes ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 8 hours, 11 minutes ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 8 hours, 23 minutes ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 11 hours, 8 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 11 hours, 10 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 11 hours, 49 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 11 hours, 55 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 11 hours, 56 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 12 hours, 19 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 12 hours, 20 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 12 hours, 57 minutes ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 13 hours, 42 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 13 hours, 42 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 13 hours, 44 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 22 hours, 50 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      Both. Been on medications for many years.
    • 22 hours, 50 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      I have both which are well managed with medication, lots of meditation and a focus on self compassion.
    • 1 day, 5 hours ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I don't believe I have ever used expired CGMs or pump supplies.
    • 1 day, 5 hours ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I have not use expired products.
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    In the past 12 months, have you been required to change medications or devices because of your health insurance?

    Home > LC Polls > In the past 12 months, have you been required to change medications or devices because of your health insurance?
    Previous

    If you (or your loved one) lived with T1D as a child, at what age did you start calculating your own insulin doses without help from an adult?

    Next

    How do you bolus for pizza? If you typically use multiple strategies, please select all that apply.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    39 Comments

    1. Lawrence S.

      Yes, but indirectly. I must order my Diabetes Medical Equipment and supplies through an insurance approved supply company. The company, Edgepark, does not carry all of the supplies that I “want.” So, for example, I cannot get my VariSoft cannula and tubing measuring 43 inches. I must buy it with 32 inches, which causes me some inconveniences. I cannot get the IV Preps that I “want”. I must use their brand. However, I am able to use the Tandem Insulin Pump and the Novolog that I need.

      3 years ago Log in to Reply
      1. Lawrence S.

        My mistake, that’s Durable Medical Equipment, not Diabetic Medical Equipment.

        3 years ago Log in to Reply
      2. Kristine Warmecke

        I hear you there with the VariSoft tubing length and EdgePark.

        3 years ago Log in to Reply
    2. Maggie Morgan

      I had to switch to getting my CGM supplies through pharmacy rather than DME, which I am fine with since Edgepark sucks anyway. I also switched from Novolog to Humalog since it was preferred by my insurance.

      2
      3 years ago Log in to Reply
    3. Nevin Bowman

      Not required, but there are definitely financial advantages to using their preferred brands.

      3 years ago Log in to Reply
    4. Kristen Clifford

      I did have to change pumps and CGMS, but not because of insurance. It was because my old pump had died for good and was both out of warranty and discontinued. Insurance had nothing to do with it.

      3 years ago Log in to Reply
    5. Kristine Warmecke

      No, they tried to make me take Humalog – which I’m allergic to.

      1
      3 years ago Log in to Reply
    6. mbulzomi@optonline.net

      I answered NO. I have original Medicare and Medcare Part “B”, along with Federal Employee Program, Blue Cross, Blue Shield. Little to nothing comes out of my pocket. I pay $6000.00 dollars a year, however, my Insulin Pump, Dexcom supplies, Doctor visits (No Copays) and Prescriptions are far more the $6000.

      1
      3 years ago Log in to Reply
    7. Judith Marged

      I had to change, but not due to insurance. It seems that I am allergic to almost every long-acting insulin. Through a process of elimination, I have finally found one that doesn’t cause hives or a severe bronchial cough, Humulin or Novolin N. So, I am back to the original long-acting insulin taken when I first became diabetic. It was determined that I am allergic to metacresol. After doing some research on the ingredient, I have no idea why they would put that in insulin!!!

      3 years ago Log in to Reply
      1. sweet charlie

        Im confused… do you mean that the Humalin and Novolin N are OKAY for you??

        3 years ago Log in to Reply
      2. Judith Marged

        Yes, it is safe for me to take either Humulin NPH or Novolin NPH. Humulin NPH was the original insulin, along with Humulin R, that I took when first diagnosed. I cannot take Levemir, Tresiba, or Toujeo, or some of the new quick acting insulins. For my bolus insulin, I use the inhalable Afrezza, which as a powder, is acceptable.

        3 years ago Log in to Reply
    8. Richard Vaughn

      My insurance required my switching from Humalog to Novolog, and from FreeStyle Lite strips to One Touch Verio.
      I had a rash with Novolog. My endo helped me. Medicare allowed me to return to Humalog at $100 per vial. I did not have to pay for Humalog in previous years. I have found the One Touch strips to be less accurate than FreeStyle. Many times there is a 10-30 point different difference between the One Touch and finger stick numbers.

      1
      3 years ago Log in to Reply
    9. Jeff Balbirnie

      Multiple freaking times!!! The doctor knows nothing about any new changes! The pharmacy knows absolutely zero about whatever the new formulation they demand might be. Have been forced 4-6 times this year alone to change meds and never told what, why or when.

      Enraging and never excusable

      1
      3 years ago Log in to Reply
    10. gary rind

      my buddies at Express Scripts just changed me from FIASP to Lyumjev. not terrible but not great, we’ll see

      3 years ago Log in to Reply
    11. Marty

      This happened more than a year ago, but I had to switch from Fiasp to Lispro because that’s all I can get from the only supplier I could find who would accept Medicare Part B for insulin.

      3 years ago Log in to Reply
      1. Bob Durstenfeld

        Marty, who is supplying your Part B insulin?I can’t find a local supplier. Thanks.

        3 years ago Log in to Reply
      2. Marty

        Advanced Diabetes Supply in Carlsbad, CA sends me all of my Dexcom and Tandem supplies as well as Lispro insulin and they accept Medicare Part B coverage: https://www.northcoastmed.com

        3 years ago Log in to Reply
      3. ChrisW

        Marty, your DME (i.e. pump, CGM) and medication (i.e. insulin) normally come from two different companies. Advanced Diabetes Supply in Carlsbad didn’t pass my reputable company checks and doesn’t appear to be HIPAA compliant. Try Minipharmacy in Los Angeles or if you out of all other options for DME supplies, Byram Healthcare.

        3 years ago Log in to Reply
      4. Marty

        recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

        3 years ago Log in to Reply
    12. Ms Cris

      At first glance, yes, but with a Medically Necessary letter/form from my Dr, we got it covered again, but at a higher cost to me. Still worth it.

      3 years ago Log in to Reply
    13. Sue Martin

      I will be in the next couple of months. I am going back on glargine (Lantus) and I have a supply on hand. The pharmacy told me that when I need a refill, due to the insurance, they will give me a different, but chemically the same, medication.

      1
      3 years ago Log in to Reply
    14. Bob Durstenfeld

      I hate insurance company formularies. Why should insurance companies be able to dictate medical best practices? I find it annoying that these can be revised mid-year too, after you have made your plan selection.

      4
      3 years ago Log in to Reply
    15. Joan McGinnis

      I had to change from Novolog to Humalog. Has not been a problem but I dont see why they get to decide over the doctor and all going well with what I was on and prefer.

      1
      3 years ago Log in to Reply
    16. Yaffa Steubinger

      I answered yes but the only thing the insurance company changed was my glucose meter brand.

      3 years ago Log in to Reply
    17. Anthony Harder

      Answered “no” not in the last 12 months but have had insurance force a change multiple times before that. Most of the switches were Novalog-Humalog.

      3 years ago Log in to Reply
    18. Ken D

      No

      3 years ago Log in to Reply
    19. Brian Vodehnal

      I changed devices so I didn’t have to deal with Edgepark Medical. I could get a CGM locally and not deal with them.

      1
      3 years ago Log in to Reply
    20. Patricia Kilwein

      Right now my pump supplies and Humalog covered. It’s the amount that has to be adjusted. For asthma it’s a whole new problem.

      3 years ago Log in to Reply
    21. Thomas Brady

      I am on Humalog insulin, and have been since 1996. I went on the Tandem pump in 2014 and migrated to the TSlim X2 in 2019. My insurance is Medicare with a supplement that pays 100% of what Medicare does not cover. On my last insulin refill (8 vials every 90 days) the pharmacist at Walgreen’s came out and informed me that Medicare wanted me to substitute another insulin “non branded insulin” for my Humalog. I politely asked him if he was going to dispense an insulin for my TSlim which was not approved for use by the manufacturer, not used in the testing for the pump the results being used by the FDA for the pump’s approval, and not prescribed by my doctor. He just said “Oh”, went back behind his station, made a call and I got my Humalog. I do not know if this was Walgreen’s or Medicare’s nonsense, but they tried this once before and I gave them the same speech and got my Humalog. Now I carry a copy of the Tandem paragraph from the Slim instruction manual when I go to the pharmacy. I am sure that they do not want the liability for dispensing insulin which is not tested in my pump and which the manufacturer says not to use! End of story for that nonsense! If insulin is costing Medicare too much, then yell at congress about it. Insulin costs about $6 a vial to make. The price they charge is OUTRAGEOUS!!!! When we were in France I went into a pharmacy in Paris and after showing her the box from my US Humalog she told me that I could buy it from her for $18 Euros (about $18 at that time) without a prescription! I guess the mark-up in the US is to cover the profits of Lilly and the costs of their lobbyists!

      1
      3 years ago Log in to Reply
    22. Patricia Dalrymple

      I said other: I upgraded to the Medtronic 770G and with it comes a glucometer that wirelessly transmits the BG number to my pump. I called Cigna and questioned whether I could go to this new accucheck glucometer at the same cost as my one touch that they made me switch to after being on a prior accucheck. They said yes in the chat. However, when I picked it up, instead of free test strips they tried to charge me. I am going back to one touch but I am appealing and getting my Endo involved. We will see. I fight with them all the time and usually win.

      3 years ago Log in to Reply
    23. Teri Morris

      Yes. Greenshield Canada REFUSES to cover CGMs -Libre or Dexcom- for me, even with a letter from my endo.?!

      3 years ago Log in to Reply
    24. Kevin McCue

      Yes and no, because insurance will not fill a 90 day rx( they hold until 95 before filling). I have to extend my infusion sets past the recommendation of my doctor to keep from running out

      3 years ago Log in to Reply
    25. Marty

      I recognize that ADS is unusual, perhaps even unique, in providing both insulin and supplies to Medicare patients. I started using ADS when my endo recommended them after we had problems with other suppliers. I’ve been able to get everything I need for a couple of years now. They seem to work well with my doctor and with Medicare. I’m not sure I understand your concerns. What kinds of problems would you expect me to be having with them?

      3 years ago Log in to Reply
      1. Lawrence S.

        ADS? What’s that?

        3 years ago Log in to Reply
      2. Marty

        Sorry, I meant to add a reply to my comment below. ADS is the acronym for my insulin and supplies provider that required me to switch to Lispro insulin.

        3 years ago Log in to Reply
    26. Stephen Woodward

      Lyumjev and Afrezza are not covered so I use coupons or pay out of pocket. Love Medicare.

      3 years ago Log in to Reply
    27. Stang777

      Yes, as of the beginning of 2022, Express Scripts, nationwide, will no longer cover Lantus and have switched those who have a Lantus script with them to Semglee, which is an interchangeable insulin for Lantus. Any pharmacist can fill a Lantus script with Semglee without notice to the patient or doctor who prescribed Lantus for their patient. In their press release last years, they claimed it was being done to save their customers money, but it doesn’t save me much at all. I get two boxes in Lantus/Semglee as a 90 day supply, and all I save once they switched me was 6 bucks for that 90 day supply, so 2 bucks a month. That isn’t enough to validate a claim of saving anyone money. I believe, if anyone is saving money by this switch, that the only ones who are actually saving money is Express Scripts, and they are not passing those savings along to those who use the insulin, unlike what they claimed in their press release before making their customers make this switch.

      3 years ago Log in to Reply
    28. Bea Anderson

      No, but when I went on Medicare. Dexcom was a very good change.

      3 years ago Log in to Reply
    29. PamK

      No, I did not change insulin, but I did have to get Prior Authorization for an insulin that was previously covered by my old insurance company.

      3 years ago Log in to Reply

    In the past 12 months, have you been required to change medications or devices because of your health insurance? Cancel reply

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