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    • 6 hours, 9 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      TCOYD one conference and Breakthrough T1D summits. I really enjoy in person events.
    • 6 hours, 20 minutes ago
      Phyllis Biederman likes your comment at
      Have you ever attended a diabetes-related conference?
      Many because I am a retired RN, CDE
    • 8 hours, 25 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      BAAAAAAD WORDS. Definitely the next step for sure.... After that more grumbling, cursing and eventually the decision whether or not taking the long acting THIS late is smart idea. If NOT, then a slightly heavier dose the next day of the short acting insulin seems real likely
    • 8 hours, 26 minutes ago
      ChrisW likes your comment at
      If you miss a long-acting insulin injection, what are your next steps? Please share more in the comments.
      OH boy, an impossible question to answer without a lot more specific details......ie name of insulin / miss an injection completely over 24 hrs or by shorter time frame / to list a few.
    • 13 hours, 4 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 13 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Have you ever attended a diabetes-related conference?
      Literal poverty prevents attending such conferences. I must survive, therefore to do so the job(s) require all that I have which remains. I would likely enjoy such conference(s), ALWAYS go for the "small" tables FIRST, their survival depends on it...
    • 14 hours, 31 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      Yes, TCOYD and maybe an ADA conference. The second conference I went to in order to check out tech. Both were in the 90s.
    • 14 hours, 35 minutes ago
      Lenora Ventura likes your comment at
      Have you ever attended a diabetes-related conference?
      While living in San Diego, I got spoiled: TCOYD is based there and their annual flagship conference occurs there. I went every year. Among my favorite break away sessions we always the ones where we as patients got to share ideas on how Endo's could better respect us as patients. All of the vendors (pharma an device) were there - great oppo0rtunity to see hands-on the devices. An added benefit to being in San Diego, Dexcom and Tandem are based there - so having face-to-face interaction with their staff was awesome. And of course, great swag! Once I moved to Portland OR, I went to an ADA conference. AS a T1D person, I was very disappointed. I had gone with the hopes of meeting my Dexcom and Tandem rep. No device companies were there. The focus of the break away sessions were are oriented to T2D. Fortunately for me, there was was an Oregon Potters Guild show at the convention center at the same time. I bought some great artwork. Since I knew Steve Edelman (TCOYD founder), I got in touch to see what I needed to do to get a TCOYD conference in Portland. I needed to have an idea of the budget so I could also work on funding support. First thing, I wanted support (not $$) from the local ADA and JDRF. Contacted them, but they never returned my calls or emails. Very disappointed I couldn't pull it off.
    • 14 hours, 45 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever attended a diabetes-related conference?
      Before retiring I would go to our local teaching hospital/ADA conferences. They were held yearly and were a great way getting my CE's.
    • 1 day, 1 hour ago
      kilupx likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Other: I was not diagnosed with T1D at a young age.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Before you chose an insulin pump, did you do a “saline trial” (a pump filled with saline instead of insulin)?
      The word "chose" is past tense. In the present tense, "no." In the past tense, the ancient of days 1996, the answer was "yes." They even hospitalized you for 2 days. I was and am very healthy and horrified the medical staff when I walked up and down 9 flights of stairs to get something. C'est la vie 🫠
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I felt my lows when I was younger. Now after 45+ years with type 1 I feel a bit of “blurry brain function” when below 50. Thankful for CGM alerts!
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      I was diagnosed at age 29. Is that considered "young"?
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The "target" is set for 100 (the lowest option with Medtronic), my alarms are 70-130. With the algorithm it's interesting with a basal that rises and falls (and the "auto-bolus") according to levels and dosing, thus my alarms (down to 2% lows this way). But... There's another setting offering different target range, I have it set 70-90 for now. Only been a few weeks so interesting to see how it goes.
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      On my Omnipod, both the high and the low are set at 110, the lowest it will allow. My preferred target rang is 70 to 120.
    • 1 day, 15 hours ago
      Janis Senungetuk likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Diagnosed in 1951 when I was 6 years old. I would feel terrible when glucose went low, but did not know what was wrong.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Missing answer is “I felt them early in, but not it can be hard at times to physically see a low.”
    • 1 day, 17 hours ago
      Steven Gill likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      To me... (a1C has been as low as 5.2, now near 6.0 with a lot less lows). Discuss with your doc goals, read the DCCT trials (determined "multiple injections" were more beneficial than 1 or 2 shots a day (mixed). Than up to your own confidence with insulin: -how your body reacts (after dosed I notice in 30-35 minutes) it's different for everyone -confidence with understanding the glycemic scale for food (some reach the blood stream quicker, some slower) -your health-as I grow up may not hear a low alarm as quick, nor be able to react as well -and tools... I'm confident with my CGM, alarms, understanding my insulin pump A tighter or lower target can lower a1C, wasn't worth my lows. But an a1C a little closer to non-diabetic can offer a little more prevention against the damage from diabetes. We're doing this to get as old a we can and be as healthy as we can (not necessarily a brag about numbers)---read a definition of heath is to be as far from death as possible. I think that changes...
    • 1 day, 18 hours ago
      atr likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      110, which is as low as omnipod 5 allows. If I could change it, it would be 90-100.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      In 1973 when I was diagnosed the hospital policy was to force a low so you knew what they felt like. Around 2000 I became severely hypo unaware.
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Initially, I felt lows long before they became problematic. This diminished gradually over time. Now, after 51 years, I feel nothing until BG drops to critical levels -50. Exception is when BG drops dramatically over a very short period of time.
    • 1 day, 19 hours ago
      Edward Geary likes your comment at
      If you were diagnosed with T1D at a young age, did you feel your “lows” right away? If you remember, please share more in the comments.
      Yes 74 years ago. Yes today intensely. I am one of the small percentage of folks who, instead of experiencing hypoglycemia unawareness, feels it with even more almost acute intensity today. I guess sometime the nerves go the other direction?!? 🐦‍🔥
    • 2 days, 12 hours ago
      kilupx likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      My alarm range is 70 - 180.
    • 2 days, 12 hours ago
      Anita Stokar likes your comment at
      If you’re on an insulin pump, what is your glucose target range?
      The whole "target" question is a mess. I think most of us here (T1D people who are proactive etc) define "target" as where we want to be after a meal or correction bolus has done it's job. Pump mfr's (and many Endo's) define "target" like they define an A1C goal: averaging 110 over time. Lots of "discussions" (notice the quotes) with my Endo about my targets (I don't accept the "standard goal" of 70-180, I prefer aiming for 70-140). So so answer today's question, my alert ranges are 70 and 120 for high (I correct if I have no IOB, but may have food on board). My target bg (post bolus) is 80-90.
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    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Home > LC Polls > If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.
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    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

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    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      How about my doctors?

      4 years ago Log in to Reply
    2. Gene Maggard

      My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

      4 years ago Log in to Reply
    3. Ernie Richmann

      I allow my doctor to look at my clarity reports.

      4 years ago Log in to Reply
    4. Jeffrey Joseph

      Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

      4 years ago Log in to Reply
    5. Derek West

      I share with my endo through my Carelink account.

      4 years ago Log in to Reply
    6. Maureen Helinski

      I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

      4 years ago Log in to Reply
    7. David Smith

      I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

      4 years ago Log in to Reply
    8. Henry Renn

      I share with my Endo to monitor & adjust settings on pump.

      4 years ago Log in to Reply
    9. Nicholas Argento

      This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

      4 years ago Log in to Reply
    10. Amanda Barras

      I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

      4 years ago Log in to Reply
    11. kristina blake

      Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

      4 years ago Log in to Reply
    12. Mick Martin

      The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

      4 years ago Log in to Reply
    13. Catherine Van Hove

      I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

      4 years ago Log in to Reply
    14. George Lovelace

      With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

      4 years ago Log in to Reply
    15. Ann Auerbach

      I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

      4 years ago Log in to Reply
    16. Pat Reynolds

      I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

      4 years ago Log in to Reply
    17. Lisa Laissle

      My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

      4 years ago Log in to Reply
    18. Sally Numrich

      I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

      4 years ago Log in to Reply
    19. Jneticdiabetic

      When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

      4 years ago Log in to Reply
    20. Molly Jones

      I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

      4 years ago Log in to Reply
    21. Julian Reeves

      I share my results with my endocrinologist.

      4 years ago Log in to Reply

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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