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  • Activity
    • 15 hours, 11 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 15 hours, 12 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 16 hours, 2 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 16 hours, 30 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 16 hours, 42 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 17 hours, 35 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 17 hours, 42 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 18 hours, 4 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 18 hours, 6 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 18 hours, 13 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 19 hours, 38 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 10 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 15 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 16 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 17 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 18 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 18 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you use an insulin pump, please select the option which most accurately completes the statement for you: The last time I changed my pump site, I filled my reservoir/cartridge/pod with enough insulin to last me…

    Home > LC Polls > If you use an insulin pump, please select the option which most accurately completes the statement for you: The last time I changed my pump site, I filled my reservoir/cartridge/pod with enough insulin to last me...
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    When treating a low (i.e, less than 70 mg/dl or 3.9 mmol/l) how often do you over treat, resulting in high blood glucose levels?

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    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    37 Comments

    1. LizB

      I had been filling it to the maximum 300 units but once or twice it seemed like the insulin was becoming less effective after 8 days. I know insulin is approved for 7 days in a pump but I usually don’t have problems going longer. Now I try to fill it with enough to last a week. I still end up with enough for 8 days most of the time. I hate filling reservoirs so I try to get away with as much as I can!

      4
      3 months ago Log in to Reply
    2. George Lovelace

      1st Fill is just short of 300, Second Fill is short of 275 as there is insulin remaining from 1st Fill. I replace the Cartridge next.

      3 months ago Log in to Reply
    3. Brian Johnson

      I change my sites exactly every 3 days, but change my reservoir every 6 to 7 days. I very seldom ever change them together at the same time.

      3 months ago Log in to Reply
      1. Bea Anderson

        What pump do you use? I used to use Medtronic pump. This sounds practical and a bit of a timesaver.

        3 months ago Log in to Reply
      2. Lori COLLINS

        Same here. I use a Medtronic 770G and 300 units of insulin lasts 14–16 days. I cange my infusion set every 3 or 4 days (or whenever I have unexplainable, unresponsive highs). I use the same tubing for the whole reservoir. No problems w/ insulin getting old, stale, or less effective even though I live in sunny Florida and spend a fair amount of time outdoors.

        3 months ago Log in to Reply
    4. Gerald Oefelein

      I fill my reservoir with 250 units of insulin and use until less than 20 units remain. I do not reuse reservoir.

      3 months ago Log in to Reply
    5. Nevin Bowman

      I am supposed to change my site every 2 days, but I already only fill my reservoir halfway, which lasts 3 days.

      3 months ago Log in to Reply
    6. AimmcG

      I fill the reservoir until it’s full. How long it lasts varies but I would say 5 days?

      1
      3 months ago Log in to Reply
    7. Kris McDonald

      Omnipod has a 100 unit minimum per pod. I often have between 20 and 30 units left when pod has to be changed on day 3.

      3 months ago Log in to Reply
      1. Bea Anderson

        I use Omnipod 5. According to the manual it’s minimum is 85 units. That is when the beep occurs. I continue filling to 120 and have little left crossing the 3 day finish line!

        1
        3 months ago Log in to Reply
    8. Bea Anderson

      “Exactly” might be better termed my goals! 3 days is best goal. My goal also is to have enough insulin to exceed 3 days. While never going to 4 days, my insulin needs vary.

      2
      3 months ago Log in to Reply
    9. Carrolyn Barloco

      My Tandemx2 holds 3ml in its reservoir. I fill it and how long it lasts varies with what I eat and do. I use every unit of insulin prior to changing my infusion set.

      4
      3 months ago Log in to Reply
    10. Lawrence S.

      I try for 3 days, but it is never “Exactly.” In the summer time I fill less because of the heat. In the winter, I fill slightly more because I am less worried about the insulin durability.

      1
      3 months ago Log in to Reply
    11. Hark87

      More than 2 but less than 3. I run daily, and my sites (tandem) sometimes get irritated or start to fall off due to sweat (summer months, stomach/thigh locations). I fill to 120 units and sometimes have a little leftover. It really sucks having to change the site that frequently, and the fact that out of pocket costs are beyond ridiculous, but the pump is literally a godsend and I’d be lost without it.

      1
      3 months ago Log in to Reply
    12. Donald Cragun

      I change my site every three days. I replace my reservoir when it is empty (and fill it with a 300 units of insulin).

      1
      3 months ago Log in to Reply
    13. anj1832

      This question doesn’t make sense to me, maybe someone can explain it better. When I change a pump site (infusion set) I do not change my cartridge as well. I only change my cartridge when it runs out of insulin.. then I fill it up and it lasts however many days it takes.

      4
      3 months ago Log in to Reply
      1. Trina Blake

        Me too

        1
        3 months ago Log in to Reply
    14. Amanda Barras

      I always fill mine up with 300 U but it only lasts me 2 days. I have to refill again to get past 2 days or change everything out every other day.

      3 months ago Log in to Reply
    15. Linda Zottoli

      In summer months, I try to fill my reservoir to last about 3 days: I have had trouble with insulin not working as well after getting hot. But in cooler months (like now) I fill it to at least twice that. But, in either case, I change reservoirs when it gets down to 4 units, which only occasionally occurs when I’m changing the infusion set every 3 days.

      So, I accumulate extra tubing. One year I decorated an extra small Christmas tree with it: I though it was cute, but my family wasn’t impressed. I’ve also used it to improvise a clothes line while traveling.

      3 months ago Log in to Reply
    16. Mike S

      In winter, I fill my Omni with the max and after the 3 days rescue any leftover insulin and use it in next pod. Sometimes I have none left. (thanksgiving!) other times I have re-used over 100 units. Seriously depends on what’s happening in life. (Summer is different. I’m not sure if it’s because I’m outside, but the insulin never seems as effective by day 3, so I’m less likely to fill to the max. Don’t want to waste that liquid gold.)

      1
      3 months ago Log in to Reply
    17. Jeannie Hickey

      Like others, I fill my reservoir full & use it for about 9 days, changing the site every 3 days, reusing the tubing. Then I refill that reservoir again, 3-4 times. If reservoir & site happen at the same time I’ll even add extra insulin that will fill the tubing.

      2
      3 months ago Log in to Reply
      1. Stephen Woodward

        Diabadass, for sure.

        3 months ago Log in to Reply
    18. Mark Schweim

      I RARELY change/refill the cartridge when I change sites. Last time I changed sites I didn’t change pump cartridges until the following day.
      But when I fill the cartridge, I put around 230 units in the cartridge and that’s enough to last me somewhere between 7 and 10 days.
      Even when I lived in Southern Alabama working outside in +100 weather, even when pump cartridge didn’t need changing/refilling until day 11, I never noticed any difference in the Insulin effectiveness on day 10+ compared to the effectiveness of the Insulin straight from the Insulin vial.

      3 months ago Log in to Reply
    19. Retired and glad

      I fill my reservoirs to the limit, which is 300 units. Occasionally I need to change the site because it gets “blown” and the insulin is less effective. Most of the time, however, I let it go until the insulin in the reservoir runs out without any serious effect. Typically it lasts five or more days.

      1
      3 months ago Log in to Reply
    20. Janis Senungetuk

      I fill the cartridge with approximately 260 units and use it until there are less than 10 units left. I change the infusion set ever 4 days, usually twice before changing the cartridge. My activity level and amount that I eat has completely changed over the past three years because of pandemic isolation. When that changes it will effect my insulin usage and length of time between cartridge changes.

      3 months ago Log in to Reply
    21. Carol Meares

      I am on Omnipod 5. If there is a significant amount of insulin leftover I will add it to my next pod. There is usually not enough to bother.

      1
      3 months ago Log in to Reply
    22. Beckett Nelson

      I just fill it. It could last up to 6days

      1
      3 months ago Log in to Reply
    23. Ms Cris

      More than 2, less than 3 days for the following reasons:
      1) my tandem pump runs hot, but tandem insists it’s fine. I can never carry it in a pocket, etc., Only on a clip, exterior with air flow. My insulin deteriorates in less than 48 hours. No question. By then I’m running a higher temp basal. If I change the insulin, but not the site, and forget to try off the higher temp basal….I go low within an hour.
      2) I need only 12u per day. Unfortunately I have to fill with 60u plus 10 for tubing. So my pump wastes half of my insulin.
      I sometimes try to go 3 days, but really not worth the consequences.

      3 months ago Log in to Reply
    24. Molly Jones

      It was nice to see the responses. I can now not waste so much of my insulin as my average daily amount is about 14units and I have to put at least five days into the cartridge for it to be accepted. The site can become irritating after four days or more.
      I will try to fill it and use my cartridge more than once.

      3 months ago Log in to Reply
    25. Becky Hertz

      I put in 250 units at a time. Sometimes it lasts 2-3 days and sometimes it lasts 4-5 days. Obviously, I don’t eat the same thing everyday nor does my body utilize insulin the same everyday.

      2
      3 months ago Log in to Reply
    26. mbulzomi@optonline.net

      I answered, more than three but less than four days. However, I have skipped my lunch many times is the process of losing weight, so I may be able to squeeze four days if I need it to change the site when my Sensor is also due to be changed. If you are wearing a sensor and it needs to be changed every 10 days, but the Pump, sute needs to be changed every three days. So, I try to change my site every 3 1/3 days. Great for the vendors!!!

      3 months ago Log in to Reply
    27. Lenora Ventura

      My site changes do not correspond with my cartridge refills. I change them both when they are empty/need to be changed.

      2
      3 months ago Log in to Reply
    28. Stephen Woodward

      The insulin manufacturer documentation states that it is good from 6-9 days in a cartridge depending on the pump approved insulin. For 30 years I have fill all cartridges full up every time I fill a cartridge. Sites are always changed every 3 days or so.

      3 months ago Log in to Reply
    29. Sealani Weiner

      I don’t really calculate how many days; I just look to see when it is running out. Sometimes the only way I know to change is the low insulin alert. In the US, I would have to change every two or three days because my skin gets raw. I’m in Mexico and my skin doesn’t get irritated, so I just went four days before changing the site today.

      3 months ago Log in to Reply
    30. Bwarschoff

      I fill the cartridge completely and use until it runs out or until it will be difficult to change if I don’t change the cartridge now.

      3 months ago Log in to Reply
    31. PamK

      Unfortunately, I have to fill my cartridges with enough insulin to last me at least 5 days. If I fill it with less than that it won’t reach the minimum amount needed for the pump to recognize the new cartridge.

      3 months ago Log in to Reply
    32. T1D4LongTime

      Tandem’s cartridge and infusion set design amounts to a lot of waste if you fill more than the 3 days (that’s all I can get a site to last these days). That’s assuming you don’t just change the site and not the cartridge (which is what I do). I load 200 units (5-6 days), so 2 site changes. Will account for high BG days and/or illness needs.

      3 months ago Log in to Reply

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