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    • 13 hours, 6 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 7 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 13 hours, 58 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 25 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 14 hours, 38 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 15 hours, 30 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 15 hours, 37 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 15 hours, 59 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 1 minute ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 8 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 17 hours, 33 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 8 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 14 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 16 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies?

    Home > LC Polls > If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Bob Durstenfeld

      Antibodies are an interesting thing. My dad was the first to be diagnosed with T1D in 1930 at 18 months of age, I was diagnosed in 1956 at 18 months of age, my eldest son was diagnosed in 1988 at 8 months of age, his daughter was diagnosed at 18 months of age in 2019. How young should you check for antibodies?

      2 years ago Log in to Reply
    2. Beth Franz

      “Other” = I sent the link to information to my family – I believe they should be tested as there’s value in knowing and preparing and possibly slowing it down but they aren’t interested. If I had the opportunity to do this for myself you bet I would have!

      2 years ago Log in to Reply
    3. AimmcG

      Non of my family members have been tested and they will not be. There is no preventing getting Type 1 if you are predisposed. It’s not like getting tested for the breast cancer gene.so, IMO it’s not worth it. I want my kids to live full lives without the burden of knowing their fate. It will cause unnecessary anticipatory anxiety.

      2 years ago Log in to Reply
    4. AimmcG

      I might add, if the treatments that are being worked on now come to fruition then I will have my kids tested. Until then we will wait.

      2 years ago Log in to Reply
    5. Jeffrey Joseph

      Since my T1D was not autoimmune (onset age 28, unknown cause), there is minimal known risk to my children as it was likely not inherited by them. Most likely known cause: latent HSV2 virus destroying beta cells, stress.

      2 years ago Log in to Reply
    6. connie ker

      In my family, both father and mother carry the T1D diagnosis. However father was a juvenile T1D and I was 49 going through menopause and came out with LADA. Adult son diagnosed at 13 years, other adult son doing OK at the age of 34. How can these antibody tests be done on the other 5 offspring who would be step children from both sides?

      2 years ago Log in to Reply
    7. David Smith

      For me, it depends. What’s the cost of being tested? If it’s positive, what could someone do to lessen the odds of developing T1D (I didn’t come down with it until I turned 40)? And finally, how could I be sure that information wouldn’t ultimately get to health insurers and result in higher health insurance premiums for those with a positive test?

      2 years ago Log in to Reply
    8. Stephanie Richardson

      For a long time I thought it was pointless, I still feel that way about “finding the cure”. But I have been tested twice and my kids have been tested several times. My dad was type 1 (diagnosed in 1963 at age 21) and my oldest son has type 1 (diagnosed 2003 at age 4). My younger sons have been tested several times through the TrialNet study. When antibodies were found in my youngest son several years ago, then the point of it all was explained to me. The belief is that if it is caught early enough, with intervention, the impact of damage to the pancreas can be reduced resulting in diabetes that is ultimately easier to control. My youngest son hasn’t developed diabetes, and I would like him to be tested again, but prior to the pandemic I was told the study had lost millions in funding, so I imagine it could no longer be available.

      2 years ago Log in to Reply
    9. Amanda Barras

      Wanted to get my son tested, but he’s terrified of blood draws and freaks out screaming and crying each time. It’s not worth the stress even though I’d like to know.

      2 years ago Log in to Reply
    10. Germaine Sarda

      Type 1 for 47 years (and 6 others in my family). I would love for my son to get tested but he puts it off. He’s 27.

      2 years ago Log in to Reply
    11. Mick Martin

      I would, personally, prefer my siblings to be tested for antibodies … as I would my own children … but there is resistance from them as they would prefer ‘not to know’. They’ve seen the effects that diabetes has had on my body, and prefer to ignore that they MAY also be carring the antibodies that COULD see them in a similar situation.

      2 years ago Log in to Reply
    12. Lenora Ventura

      Both of my children have been but my brother has refused since the option was available.

      2 years ago Log in to Reply
    13. Scott Doerner

      I am the only one with T1, in entire family, and no children in family

      2 years ago Log in to Reply
    14. Megan W

      I choose “other” because I didn’t know that this existed. It is interesting, but as I’m the T1D, I don’t know how my parents or sibling would feel about it. I will mention it to them after I do some research.

      2 years ago Log in to Reply
    15. rick phillips

      I have asked that the grandchildren be tested. The parents will not do it. It frightrns me

      2 years ago Log in to Reply
    16. Donald Cragun

      I am an only child. My parents are no longer with us. I have not had any children. So, there is no immediate family to be tested.

      2 years ago Log in to Reply
    17. Thomas Hatton

      I selected other because my younger daughter is a no, while my older daughter with a son is yes. My brother and sisters are not interested either.

      2 years ago Log in to Reply
    18. Sally Numrich

      I have T1D and my husband and I both agreed it was a good idea and part of an ongoing clinical trial to test both our children. One came back with 2 antibodies and one with none. Both children are now adults and are very aware of symptoms and signs. We did watch our daughter very closely for a long time and I worried everyday. But now, I feel like diabetes is not as life threatening as it was when I was a child. I thank God everyday for my wonderful, supportive parents. They didn’t have any of this technology back in the day and they allowed me to live a normal childhood.

      2 years ago Log in to Reply
    19. Mary Ann Sayers

      I’ve tried to introduce the subject to my daughters, but neither of them are interested!!! Any ideas on how to convince them?

      2 years ago Log in to Reply
    20. Mary Ann Sayers

      PS: correct English: neither one IS interested.

      2 years ago Log in to Reply
    21. Kristine Warmecke

      After my brother’s dx. at 7 months old in 1972, I was just watched closely. When our other brother came along in 1978, he was watched closely, too. There were no testing back then. In Jan. 1982 I was dx. with T1D & in the 2000’s our youngest brother was dx. with T2D. When my oldest niece was dx at 23 months old with T1D, my SIL was pregnant with my middle niece. At her and my youngest niece’s birth, cord blood was taken for research. Middle niece has no antibodies and wasn’t in the study; my youngest niece is antibody positive and is in the study for the rest of her life or until she turns T1D.

      2 years ago Log in to Reply
    22. Tod Herman

      Apparently I live under a rock. I have never had anyone ever pose the question or idea to me. Both my folks are still around and I only have one sister, and I have had T1D for over 41 years. I am the only one in my immediate family and none of my grandparents or cousins (on both sides) have ever had T1D. Go figure.

      2 years ago Log in to Reply
    23. Alyne Branson

      My children were tested as part of a study until they were 18. Not been tested since.

      2 years ago Log in to Reply
    24. ConnieT1D62

      No, several immediate family members with T1 diabetes were never tested for T1D antibodies and have died from other causes unrelated to T1D. I am past childbearing years. Except for my 96 year old mother (who does not have T1D in her genetic make-up) my immediate blood line family is deceased except for a few second and third cousins. I have no idea if they are interested or willing to be tested for T1D. Neither my deceased brother nor I have any offspring.

      2 years ago Log in to Reply
    25. Becky Hertz

      My sister would have been tested for antibodies, but she was “too old” to meet the criteria.

      2 years ago Log in to Reply
    26. HMW

      My parents and my sister were tested when we took part in a study in the early 90s (a few years after my diagnosis). No one else in my family has type 1 diabetes, but there are other autoimmune diseases in the family. My (healthy) son has not been tested and I do not wish to test him.

      2 years ago Log in to Reply
    27. Andrea Rueff

      Some of my family has been tested for Diabetes. Only one sister has been tested but they are the one that actually sees a doctor regularly. Other than that the rest of my family hardly see a regular doctor.

      2 years ago Log in to Reply

    If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies? Cancel reply

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