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    • 17 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 17 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 18 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 18 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 18 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 11 hours, 48 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 11 hours, 48 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 11 hours, 49 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 14 hours, 52 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 18 hours, 49 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 19 hours, 57 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 20 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 21 hours, 20 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 21 hours, 20 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 21 hours, 20 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 21 hours, 44 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 21 hours, 44 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 21 hours, 45 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 21 hours, 45 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 21 hours, 54 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 21 hours, 55 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 21 hours, 55 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 21 hours, 56 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 56 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 21 hours, 57 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
    Previous

    During your most recent appointment, about how much time did you spend with your main T1D health care provider?

    Next

    If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    40 Comments

    1. jo

      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).

      2
      3 months ago Log in to Reply
    2. Lawrence S.

      I have never known anyone to give extra supplies to. I’m also a little leery of getting in trouble with the insurance companies that paid for the supplies., Or the legal ramifications of giving medical equipment or supplies to someone without a prescription.

      2
      3 months ago Log in to Reply
    3. Julie Blehm

      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage

      1
      3 months ago Log in to Reply
    4. Mick Martin

      I gave “leftover supplies” to the Diabetes Centre that I attend as it is they, via our NHS (National Health Service), which pays for them. I KNOW that they use them as I’ve been approached by DSNs (Diabetes Specialist Nurses) when I’ve attended clinic to see if I have “extra supplies” with me as I normally carry a few set changes, etc. with me.

      1
      3 months ago Log in to Reply
      1. Lawrence S.

        This is the way it should be. Your system is so far ahead of ours in many ways.

        1
        2 months ago Log in to Reply
      2. Mick Martin

        @Lawrence S.

        That’s very debateable, sir. Supplies have to be paid for by someone. i.e. via our NHS (National Health Service) in the UK (United Kingdom of Great Britain and Northern Ireland), which is financed via direct taxation of all working people, or by individuals, either ‘out of pocket’ or via your Health System, which I grant you, DOES leave some people at a disadvantage. (SOME might argue that our system ‘goes against’ fit and healthy people who MIGHT resent having to pay to keep others alive. Sadly, I’ve written to people in the United States in the past, via email, that are no longer with us as they couldn’t afford insulin.)

        1
        2 months ago Log in to Reply
      3. Lawrence S.

        Mick,
        It’s not a debate for me. For example, I live in a community with lots of amenities, 95% of which I do not use. I still have to pay my monthly HOA fees, and annual CDD fees. I don’t mind a bit paying for those amenities that I don’t use. It’s just part of our community. Regarding taxes. We Americans regard paying taxes as negative, hurtful thing. I do not see it that way. I see taxes as a contribution toward making our society better (including healthcare). While I do not use most of those benefits, I get some of those benefits.

        2 months ago Log in to Reply
    5. Kris Sykes-David

      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?

      2
      3 months ago Log in to Reply
    6. George Lovelace

      Check with your Endo aas they can accept and distribute Supplies legally

      3 months ago Log in to Reply
    7. T1diabetic

      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.

      1
      3 months ago Log in to Reply
    8. LizB

      I just switched from Medtronic 770g to Tandem/Dexcom and I was amazed at how many Medtronic supplies I had when I was trying to get them out of the way. I don’t want to just throw them away but it’s hard finding someone to give them to. Most social media groups won’t allow you to post about them and I understand why that is. I definitely will hold onto some just in case I have an issue with my current pump and need to go back to my old one while waiting for a replacement, but I don’t need as much as I have.

      1
      3 months ago Log in to Reply
      1. Lawrence S.

        A familiar story. I’ve been holding onto my old Medtronic supplies for ten to twenty years. They’re still sitting in the closet.

        1
        2 months ago Log in to Reply
    9. Eva

      I sent them back to the manufacturer to let them dispose of it.

      3 months ago Log in to Reply
    10. Sue Martin

      I’m still looking for someone to give them to.

      1
      3 months ago Log in to Reply
    11. Carl Robertson

      Took them to my CDE’s office to hand out as samples or spares

      3 months ago Log in to Reply
    12. Jane Cerullo

      I give them to my Endo and they give to patients who need them

      3 months ago Log in to Reply
    13. Keira Thurheimer

      I often take extra supplies to my endocrinologist’s office. They use them for educational purposes.

      3 months ago Log in to Reply
    14. fletchina

      I would love to learn of places to give/donate supplies!

      2
      3 months ago Log in to Reply
    15. Janis Senungetuk

      First I asked my CDE if she could find patients who needed them. She said she wasn’t permitted to do that. I asked on several Facebook groups and connected with people who paid for shipping. Just did that with the last of my Animus pump supplies. I’ve also sent supplies to Insulin for Life in Florida, but the shipping costs are very high, can’t do that anymore.

      1
      3 months ago Log in to Reply
    16. GLORIA MILLER

      I gave supplies to the homeless shelter in town once and the last time I gave my supplies to my endo’s office to give to the poor who can’t afford such things.

      3 months ago Log in to Reply
    17. rick phillips

      I have decided to give them to my endo’s office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.

      3
      3 months ago Log in to Reply
    18. Steve Rumble

      I have not had significant amounts of extra supplies, so it hasn’t really been an issue.

      3 months ago Log in to Reply
    19. Bob Durstenfeld

      InsulinPumpers.com does a great job of distributing supplies to those in need.

      3
      3 months ago Log in to Reply
      1. TS

        I tried to find this website but it says it doesn’t exist?

        3 months ago Log in to Reply
      2. Sasha Wooldridge

        Found it! http://www.insulin-pumpers.org/

        2 months ago Log in to Reply
    20. Amanda Barras

      If can’t can’t find someone online to take them I keep them until they expire and then throw them. Just in case.

      3 months ago Log in to Reply
    21. Karen Tay

      My other was gave them to the Endocrinologist office to give to people who needed them

      1
      3 months ago Log in to Reply
    22. William Bennett

      My personal Zombie Apocalypse Emergency Stash has never met an oversupply it didn’t like. Even for stuff I don’t use anymore. Because you never know…..

      3 months ago Log in to Reply
    23. Jennifer Wilson

      I gave them to my endocrinologist office to offer to patients in need.

      3 months ago Log in to Reply
    24. Samantha Hunter

      I have a whole big box of Medtronic supplies I wasn’t able to donate because I switched to omniPod during the pandemic, including a pump. If anyone needs it please contact me!

      3 months ago Log in to Reply
    25. StPetie

      Tried to give them to a local support group but couldn’t get a call back. So I kept them as back ups.

      3 months ago Log in to Reply
    26. Patricia Van Fleet

      I gave mine to a friend for her cat.

      3 months ago Log in to Reply
    27. Chris Albright

      Donated some to my endo (all unopened and currently still shipping by mfg) and kept some in the event my current pump fails and I need a temp ‘stand-in’ until warranty replacement is received

      3 months ago Log in to Reply
    28. TS

      I have a whole slew of old Medtronic pump supplies and have no idea what to do with them. I have asked my endos and they don’t know either. I would love to see any suggestions!

      3 months ago Log in to Reply
    29. Becky Hertz

      Donated to my endos office.

      3 months ago Log in to Reply
    30. Donna Condi

      I was going to a support group run by a nurse in the endocrinologist department at one of the hospitals and I gave them to her to pass along to patients who could use them.

      2 months ago Log in to Reply
    31. Diana L.

      When I changed to Tslim after using Medtronics pump,. I had a lot of extras. I gave some to a local TD! group but I could not find a place to donate the rest. After a few months I just put them in the garbage.

      2 months ago Log in to Reply
    32. T1D4LongTime

      I donated supplies to CR3 Diabetes Association.

      2 months ago Log in to Reply
    33. PamK

      I probably should have checked both “Donated to an organization,” and “Gave them to a friend…” because I did give some items to family/friends who could use them.

      2 months ago Log in to Reply
    34. Bea Anderson

      Kept. Recently I had trouble with prescription for Omnipod 5 from provider. Got rejection from pharmacy/Medicare. Ran out of pods and prepared to fire up Medtronic pump in desperation. He inadvertently did refill for Omnipod 5 starter kit. I was desperate, worried, sad. Pharmacy didn’t say what mistake was. Dr office nurse didn’t catch difference and defended all was ok on there end. Finally provider got involved and realized his mistake. Horrible situation. I did ask provider to call me and apologize. Nurse said it was just a human mistake. I replied when humans make mistakes they apologize. He did call and I was grateful for resolution. I really need to learn how and have on hand injection method to give shots in emergency, and that’s on me!!

      2 months ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply. Cancel reply

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