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  • Activity
    • 7 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 12 hours, 16 minutes ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 15 hours, 7 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 15 hours, 33 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 15 hours, 34 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 16 hours, 5 minutes ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 17 hours, 14 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 17 hours, 27 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 17 hours, 28 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
    • 17 hours, 44 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 17 hours, 45 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 18 hours, 9 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 19 hours, 37 minutes ago
      Bruce Schnitzler likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.
    • 20 hours, 11 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 20 hours, 56 minutes ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I am required to see my Endo every three months by Medicare. Otherwise, I'd probably go 2 times per year.
    • 20 hours, 56 minutes ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I didn't have to change but I couldn't get a new one from Caremark because it wasn't on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!
    • 1 day, 14 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.
    • 1 day, 14 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 14 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan) I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!
    • 1 day, 19 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 19 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 20 hours ago
      TEH likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
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    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Home > LC Polls > If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?
    Previous

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

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    Has your career path been influenced by having T1D, for better or worse?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    18 Comments

    1. Becky Hertz

      My crater path was not affected by T1D.

      3 years ago Log in to Reply
    2. Becky Hertz

      Haha, that’s what I get for not paying attention to the question that comes up and it’s not the one I thought it was.

      3 years ago Log in to Reply
    3. Bob Durstenfeld

      I have only seen a CDE a few times in my 64 years with T1D. I have learned about research opportunities from online sources such as diatribe.

      3 years ago Log in to Reply
    4. Janis Senungetuk

      Yes, I was told about the Joslin 50 Year Medalist Study when I reached the 50 year mark 16 years ago. I’ve also been informed of local research studies conducted at the University of Wisconsin Hospital and Clinics in Madison, Wisconsin.

      3 years ago Log in to Reply
    5. Anthony Harder

      I have not been involved with a diabetes educator for many years (55+ Years a diabetic). However my endocrinologist has made me aware of studies.

      3 years ago Log in to Reply
    6. Grey Gray

      Self managed, self educated. Self pay…The only reason I go to a doctor is for the prescriptions. As someone else said internet searches.

      3 years ago Log in to Reply
    7. Kristine Warmecke

      My endocrinologist is the head of research so she is usually the one to bring it up with me, not my CDE.

      3 years ago Log in to Reply
    8. connie ker

      No CDE and don’t hear about them much anymore. When they started to charge for their services, they started to disappear. With T1D you actually live with the disease, become your own teacher and many times become your own Dr, You could probably teach the CDE something they didn’t know about T1D.

      3 years ago Log in to Reply
    9. George Lovelace

      T1 55+ years, haven’t had a CDE since the 80’s, I find Studies Online.

      3 years ago Log in to Reply
    10. Christina Trudo

      I’ve seen CDEs frequently over my 59 years of T1. i imagine they have but i don’t recall specific cases so i said “other”

      3 years ago Log in to Reply
    11. carol Huhn

      My endocrinologist is involved in research so I’m in the loop on opportunities

      3 years ago Log in to Reply
    12. Greg Felton

      Yes, I have participated in several pharmaceutical or product studies, including a study many years ago where I got to wear an early CGM. My Endo is usually involved in the research at the university so I hear about the opportunities.

      3 years ago Log in to Reply
    13. Becky Hertz

      I do not have a cde.

      3 years ago Log in to Reply
    14. Mick Martin

      I selected no as I don’t believe that my endocrinologist is a CDE. He has, however, put my name forward for islet cell transplantation … that was in the days when it was still an experimental procedure, and my name was one of the first 50 or so type 1 patients whose name was put forward to the scientists. (Sadly, the operation never came about as due to it being ‘experimental’ they wanted to be able to ‘show’ how successful such a transplantation could be, and I’d already developed a multitude of diabetes-related complications at that stage so it would have been difficult for the scientists to prove just how effective islet cell transplantation could be.)

      3 years ago Log in to Reply
    15. MarkinLA

      I serve as a combination diabetes educator and research coordinator and I often will ask patients if they want to take part in a trial where they qualify. Participation is optional.

      3 years ago Log in to Reply
    16. Janice B

      My first endo was a researcher so he recruited me to be in the inhaled insulin study back in the 90’s. After he retired, I have found the studies that I have been involved in on my own.

      3 years ago Log in to Reply
    17. Molly Jones

      I chose NA. I don’t think I have a certified diabetes educator, or if I did, it is not in my memory. After ten years of having a independent Endo, I changed both the Endo and my GP to where my Neuro was located, at a University hospital. I often have interns learning during my appointment after me agreeing to it. My BG has been used for research a few times by another doctor and I am constantly asking my doctors of available research I may be available for in different areas of health. When I had the independent Endo it didn’t occur. I also read clinicaltrials website alot.

      3 years ago Log in to Reply
    18. Sally Numrich

      I am fortunate to live in an area with clinical trials going on all the time. I got notifications from my medical teams and from the different research centers that have my info on file. They call when something comes up that I might qualify for.

      3 years ago Log in to Reply

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