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    • 14 hours, 23 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 24 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 15 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 43 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 55 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 48 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 55 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 16 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 19 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 26 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 50 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!

    Home > LC Polls > How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments!
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    49 Comments

    1. Joan Benedetto

      We have a strict regimen that we follow for pump sites

      5 months ago Log in to Reply
      1. Joan Benedetto

        On our son. Prior to insertion, we use IVPREP wipes. To remove we use Unisolve to dissolve all adhesive residue, then wipe away with a piece of gauze. We apply Aquaphor liberally.
        For overtape, we use IV3000 as it allows the skin to breathe. Our son was diagnosed at 18mos old nine years ago, and his skin looks wonderful. I think that the steel insets have helped significantly with keeping scar tissue at a bare minimum.

        5 months ago Log in to Reply
    2. Janice Bohn

      My fingers are mostly healed dice using Dexcom
      Done small issues on abdomen and thighs from injections and pump sites over the last 30 yests

      1
      5 months ago Log in to Reply
      1. Janice Bohn

        Years

        5 months ago Log in to Reply
    3. Dennis Dacey

      “Mild”, although I considered answering
      ‘very minimal” under the circumstances considering the horse-nails, about the size of 3d finish nails called needles we used over and over for injecting insulin. Twenty-four (24) gage, 1 1’4 inch long.

      5 months ago Log in to Reply
      1. George Lovelace

        Started with 26 Gauge injections in 1964 so scarring from 58 years is minimal

        5 months ago Log in to Reply
    4. Judith Marged

      I scar very easily, so the multi-injection regime created considerable amount of scarring beneath the surface of the skin. This created problems with the absorption of the insulin. My A1C was rising to ‘uncontrollable’ levels. I switched to the inhalable Afrezza, had much better control, and my A1C has not been above 6.9. Now I wish I could find a way to take my basal insulin without injecting, which would allow for even better control.

      5 months ago Log in to Reply
    5. Mary Dexter

      Scars may be emotional, psychological, as well as physical.

      3
      5 months ago Log in to Reply
    6. Andrew Aronoff

      I’ve been a T1D for over 50 years. I started using a Minimed pump in 2000. Every 5 to 10 years, I took pump vacations of 6 months to a year after the onset of erratic insulin absorption, which I attribute to internal scarring of my abdomen. Some boluses would simply have no effect while pen injections worked normally. The last pump vacation lasted a year and ended in February 2022. After resuming use of Quick-Set catheters, insulin absorption was still erratic. I abandoned the Minimed pump and have now started using the Omnipod, which allows me to use sites on my arms, legs, buttocks and back. I avoid my “scarred” abdomen and insulin absorption has improved.

      5 months ago Log in to Reply
    7. Richard Vaughn

      I used injections for 62 years and now I have used a pump for 15 years. While using injections I favored my upper abdomen. The flesh eventually became very tough and scar tissue caused poor absorption of the insulin. That part of my body is still that way now. My lower ab and my legs are much better, but I occasionally have poor absorption and I have to change sites.

      2
      5 months ago Log in to Reply
    8. Barbara Bubar

      Really hard to tell unless a pump site takes more insulin than I expect….this, after 72 years with diabetes.

      5 months ago Log in to Reply
      1. Randell Cole

        Already answered this

        5 months ago Log in to Reply
    9. Randell Cole

      I don’t feel I have any scar tissue and I check a lot, only use fingers.

      5 months ago Log in to Reply
    10. Lawrence S.

      I have small lumps on my abdomen (4, 2 on left, 2 on right). I have lumps on my sides, and on my legs. There is some scar mild scar tissue on my fingers. Luckily, I used 33 guage lancets on my fingers. I don’t see any scars on my upper buttocks. My scars are not highly noticeable, just denser lumps. I try to avoid those spots when I’m inserting canulas and sensors. Sometimes it’s difficult finding spots to insert my devices.

      1
      5 months ago Log in to Reply
    11. Trisha Oldenkamp

      I have scar tissue on my stomach and lower back from my pump and CGM. I’m thin so I tend so only a few areas have much fat but those areas are less painful to use. Cushioned. Those area are building some scar tissue.

      2
      5 months ago Log in to Reply
    12. Bob Durstenfeld

      I have moderate scar tissue on my abdomen and legs, I also have significant atrophy on my arms and legs from old U40 insulin. I can still find usable areas and am much more careful about site rotation. All of this, the result of 66 years of T1D.

      1
      5 months ago Log in to Reply
    13. Ahh Life

      Picasso’s Guernica 🤢

      2
      5 months ago Log in to Reply
    14. David & Kaleo of Team Nani

      I track and rotate cgm (12 sites) and pump infusion (38 sites) on abs and quads and side, and I note when sites seem to not work, yet still have some concerns about scarring interfering with cgm accuracy and insulin absorption.
      I also sometimes have issues with the sites reacting to exercise/dislodging at cgm and infusion sites that twist a bit during some workouts (e.g., an twists or quads flex).

      Frustrating, but try to roll with it and make changes/waste infusion or cgm (kinda expensive) quickly when I notice a problem.

      T1d keeps you on your toes. Maybe ask a ? about how our toes are holding out…you know from always needing to be on our toes : (

      5 months ago Log in to Reply
    15. Jneticdiabetic

      I ranked my scar tissue as “moderate.” I’ve had T1D for 27y. My abdomen hasn’t worked well since my two pregnancies. For the past 12+ years I’ve used the upper buttocks for pump and CGM sites. Starting to to note a few resistant spots there now too.
      I use the Silhouette (Medtronic) or Vari-Soft (Tandem) infusion sets that go in at an angle. The sets that go straight in almost always kink and fail on me.
      Anyone ever hit a spot and have the needle not go in and instead the plastic tubing bunches around the needle (like your scrunching down a long sock)?

      5 months ago Log in to Reply
    16. cynthia jaworski

      My fingertips are good since the cgm days began. After my first few years with insulin (1962) I developed hollowed out regions on my thighs, and lumps on other parts f my thighs. These have mostly disappeared, but at this point in my life, I am no longer embarrassed by such things.

      1
      5 months ago Log in to Reply
    17. Henry Renn

      Significant. 66+ years of T1. 18 years inserting cannulas for pumps. 9 years inserting CGMs. Before that many years of 5 injections per day. In early days was taking Pork insulin. Caused significant pitting in arms & buttocks. Can’t even calculate injections taken with stainless steel needles which were sterilized between uses. I was in college when I began using disposable needles then whole hyperdermics.

      2
      5 months ago Log in to Reply
      1. Lee Tincher

        I salute your diligence Henry. I also have longtime T1D, 53 years. Many challenges but we are survivors!!

        3
        5 months ago Log in to Reply
      2. Melinda Lipe

        I liked the first reply that used the word Survivors. That is a good description of our long term with this condition!

        5 months ago Log in to Reply
      3. Sherrie Johnson

        I remember those old metal needles having to sterilize them before school with the glass syringes oh my gosh it’s come along way thank goodness it’s catching up

        1
        5 months ago Log in to Reply
    18. Dave Akers

      #inhaledInsulin for the win! No scar tissue😎

      2
      5 months ago Log in to Reply
    19. Janis Senungetuk

      I have dense scar tissue on both thighs and some areas of my lower abdomen from over a half century of MDI. Several fingers on both hands are also scarred from multiple daily bg testing. I try to avoid using the scarred lower abdomen areas for pump insertion sites, but it’s definitely becoming more difficult as arthritis in my shoulders, neck and lower spine now limits my ability to twist and reach. I’ve kept my upper arms for CGM sites and fortunately, that’s not as issue.

      1
      5 months ago Log in to Reply
    20. John Henninger

      How do you know for sure how much scaring you have? I have sites that don’t seem to work as well as before. But to know specifically would be very interesting as I have been a T1D for over 40 years. Now using short needles. Does it help? My A1C is pretty historically level. Interesting question. Look forward to reading comments.

      3
      5 months ago Log in to Reply
    21. Carrolyn Barloco

      Most abdominal areas due to pregnancy stretch marks occasionally interfere with CGM sensors or pump infusion sets.

      5 months ago Log in to Reply
    22. T1D4LongTime

      I chose “Moderate”, but it’s really between moderate and signficant. T1D 56 years, MDI for 30+ years. Scar tissue may have been worse under the beef and pork insulins, but early adulthood and increasing (5) shots/day caused scarring on hips and stomach. Scar tissue does not seem to be considered in insulin pump infusion site design. I have to tape down the tubing so it stays at 90 degree angle from the set when near a scarred site.

      2
      5 months ago Log in to Reply
    23. Ms Cris

      I’m only 6 years in as T1D, and pumping for 5. I rotate religiously. But my sites need to be changed every 1-2 days, so I figure I may scar easily.

      For finger sticks to calibrate my CGM, I use the distal portion of my fingers, just below the nail. Heals quickly, no calluses.

      1
      5 months ago Log in to Reply
    24. Daniel Bestvater

      After 45 years of MDI & pumping I definitely have some degree of scar tissue. As a pharmacist-CDE I often saw patients with scar tissue. I believe this is the seldom spoken of bogeyman of T1D. At the best of times insulin absorption is erratic.

      1
      5 months ago Log in to Reply
    25. Lee Tincher

      As a T1d fir over 53 years I have significant scaring. Many years on animal insulin, MDI, then pump therapy, then added CGM has had its toll on my tissues. Even with careful rotation of sites there is only so much territory to be had. Have had some surgically repaired in the abdomen. Diabetes poses daily challenges.

      3
      5 months ago Log in to Reply
      1. Sherrie Johnson

        Ditto for me 61 years

        5 months ago Log in to Reply
    26. William Bennett

      T1 for 40 yrs. Early on, Dr showed me pix of hypertrophy, which by 1983 they’d learned was a problem, so I always rotated sites religiously right from the start.

      But pumping makes that more of a problem. Canulas are thicker than needles, it’s easy to get a bad one, and with a tubed pump there just aren’t as many locations as there are for injections. So I put “moderate” because I definitely have spots where I hit a gusher and got subcutaneous swelling and scarring. Steel insets are an alternative, but I’ve tried them and they have their problems too. I’m not in dire straights yet but after 12 yrs pumping it’s a growing problem.

      1
      5 months ago Log in to Reply
    27. RegMunro

      My finger tips have recovered nicely since going CGM
      My stomach fat layer doesn’t appear to develop scars, so far anyway. Been injecting since 1965

      3
      5 months ago Log in to Reply
    28. KarenM6

      I have lipoatrophy all over… so, instead of “bumping”, I dent… and the dents are large.
      Pumping has been a significant contributor to my skin issues.

      5 months ago Log in to Reply
    29. Melinda Lipe

      I’m not sure – I have lipe hypertrophy over frequently used sites on upper arms and thighs. I try to use those for CGM, and save abdomen for insulin infusion. I can’t really tell anymore (55 years in).

      2
      5 months ago Log in to Reply
    30. Joan McGinnis

      i have lipodystrophy rom years ago takin different insulins like NPH and regular prior to pumps and CGMs. not sure if any has occurred since then but I do have peas that absorb better on my abdomen and I am aware and use them most if possible Use a sacral belt for back pain sometimes and that limits where i can’t a site on my abdomen also. but overall I am okay finding spots I note that needle infusion sites are better but I bleed easy so I prefer infusion sites that are cannula.

      5 months ago Log in to Reply
    31. Amanda Barras

      I choose moderate but it leans towards significant. I have to find and use atypical sites often to get absorption. Majority of my stomach I can’t use at all because I run high. Legs are also off limits due to muscle movement causes red and irritated sites.

      5 months ago Log in to Reply
    32. Mark Schweim

      The ONLY part of my body I’m aware of having any scar tissue are almost all my fingertips, including the tips of my thumbs.

      5 months ago Log in to Reply
    33. Lynn Smith

      I don’t know how to answer this question; I chose Other. I’m not sure how to tell where the scar tissue is because I’m not sure I know what it looks like. I am only ever guessing where it is when I change sites. I have been T1D for 55 years so I know I have it. I’m just not totally sure where it is. I wish there was some special light to shine on my skin so I would know more certainly.

      1
      5 months ago Log in to Reply
    34. AnitaS

      I do have some places where the fat was eaten away but I don’t know if I have any scar tissue build-up

      5 months ago Log in to Reply
      1. Velika Peterson

        @AnitaS, same here. My daughter has a very visible indent on her thight from her Omnipod and she hasn’t used her thighs for almost a year 🙁

        5 months ago Log in to Reply
    35. Becky Hertz

      Lots of areas with iffy absorption. Is it an absorption issue or scar tissue issue? Lost the use of the majority of my upper abdomen with a central incision for a nephrectomy.

      5 months ago Log in to Reply
    36. Molly Jones

      I have minimal scar tissue in at least two sites from only two decades of T1D: the useable side of my abdomen and my right upper thigh.
      I don’t count my fingers as they seldom come into play anymore.
      I’ve had help with the doctor finding spots for insertion of CGM and pumps and they are on a clockwise rotation.
      I’ve also been trying for some time to gain weight.

      1
      5 months ago Log in to Reply
    37. Bonnie Lundblom

      I said Other because after 35 years the only spot I have had problems with was my abdomen from lipodystrophy. Once I started pumping and not using my abdomen it took about 7 years but the tissue now seems and feels normal, works okay for my pump site but doesn’t work at all for my Dexcom CGM site. I use only my upper arms for my CGM after trying many others without any luck or accuracy!

      1
      5 months ago Log in to Reply
    38. Velika Peterson

      My daughter has lipodystrophy from her pump on her thighs (especially one of them, which has a very vissible indent). One is starting to form on her upper arm now 🙁

      5 months ago Log in to Reply
    39. Maurine Bowser

      Not too sure if I have any scar tissue in my abdomen where my CGM and MDI’s go – I hope not. After 55 yrs of NPH, I did have dents on my thighs, but they are gone now. Good question regarding effect of insulin absorption.

      5 months ago Log in to Reply
      1. Velika Peterson

        @Maurine Bowser, I am relieved to know that your dents have disappered. My daughter has a very visible indent on her thight from her Omnipod and she hasn’t used her thighs for almost a year 🙁

        5 months ago Log in to Reply

    How would you describe the amount of scar tissue you have because of T1D management? Please feel free to share more about your experiences in the comments! Cancel reply

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