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      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 55 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 3 hours, 43 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
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      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 4 hours, 54 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 4 hours, 54 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 6 hours, 13 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
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      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
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      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 4 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 23 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 3 days ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 2 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 2 hours ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 4 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 5 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 3 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 22 hours ago
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      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
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      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
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      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 5 days, 1 hour ago
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      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 5 days, 1 hour ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
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      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
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      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    How often do you make adjustments to your insulin-to-carb ratio?

    Home > LC Polls > How often do you make adjustments to your insulin-to-carb ratio?
    Previous

    On a scale of 1-5 how informed is your T1D health care team about the latest T1D technology and medications? (1 = not at all informed, 5 = very informed)

    Next

    If you use both an insulin pump and CGM, do you currently use any of the following automated insulin delivery (also known as “predictive low glucose suspend” or “hybrid closed loop”) algorithms to help keep your glucose in-range?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    40 Comments

    1. rick phillips

      Almost never. With the power of the automatic delivery system it is just not needed anymore than when I see my doc and maybe not then

      2
      3 years ago Log in to Reply
    2. Kristen Clifford

      When my endocrinologist says I need to

      1
      3 years ago Log in to Reply
    3. Derek West

      In the past it was very seldom as I had things pretty well fine tuned, but I recently moved from Medtronic to Tandem and am still fine tuning the ratios to adjust for the switch from Aspart to Novolog. My control is still not as good as it was, controlIQ for me has not been all it was purported to be, but I will get there.

      1
      3 years ago Log in to Reply
    4. Mary Boudousquie

      I only change it if either my Dr suggests it or I see where the current ratio is not working. Frequency varies.

      4
      3 years ago Log in to Reply
    5. Joan Fray

      I go see my diabetes educator next week. We may tweak it. I’ve lost ten pounds in the past year. Not trying, just not hungry. Chore to eat now……..

      1
      3 years ago Log in to Reply
    6. Elle Hamann

      We adjust whenever we notice a trend that needs addressed.

      3 years ago Log in to Reply
    7. Natalie Daley

      Almost every meal — depends on the carbs

      2
      3 years ago Log in to Reply
    8. eherban1

      My insulin-to-carb ratio is static and hardly ever changes. I do take less insulin than indicated on days when I’m exerting myself and while eating less frequently (extra ordinary activity).

      2
      3 years ago Log in to Reply
    9. Natalie Daley

      My brother was also a T1D. He designed a matrix for me based on my height, weight, time I’d day, and current blood sugar. My endocrinologist has a copy. I use still after 20 years.

      1
      3 years ago Log in to Reply
    10. Marty

      As shocking as this is, I don’t actually count carbohydrates. When I look at food, I see it directly in terms of insulin units and bolus accordingly. My endo endorses my method since it keeps me 90-100% in range. Her NP hates it and makes me back-calculate to carbs, so I use a ratio of 1:10 to make the math easy.

      6
      3 years ago Log in to Reply
    11. mbulzomi@optonline.net

      Every set change.

      3 years ago Log in to Reply
    12. Gary Rind

      Never have, have always used MDI and numbers have been very good. 1 to 15 carbs

      3 years ago Log in to Reply
    13. Patricia Kilwein

      Endo has me giving a unit for morning coffee and made a late morning adjustment to carb ratio. Morning rise in blood sugar is a nuisance.

      3 years ago Log in to Reply
    14. KCR

      I guess I make mental adjustments occasionally rather than change pump settings.

      4
      3 years ago Log in to Reply
    15. Bruce Schnitzler

      Provider initially set ratio when I started using device 7 months ago. I adjusted two weeks later and not since.

      3 years ago Log in to Reply
    16. Milly Bassett

      I don’t use fast acting insulin that often. When I do, it’s because I had a big meal that had lots of carbs, which is not often. I take Lantus once a day. After a normal low carb meal, I walk or work in the garden or work around around the house. It does the trick.

      3 years ago Log in to Reply
    17. Carol Meares

      I put every few months. I am on a new pump/algorithm, therefore trying to find the sweet spot.

      3 years ago Log in to Reply
    18. Trina Blake

      I’ll take a look at it seasonally. I seem to need less insulin:carb in the warmer months. I also don’t have much of an appetite during the warmer weather (don’t have much of an appetite ever, but in the summer, eating is even less pleasurable)

      3 years ago Log in to Reply
    19. Vicki Andersen

      Only when my numbers reflect it is needed.

      3 years ago Log in to Reply
    20. Stephen Woodward

      The food can drive I:C ratio, in no way can it be fixed for all carbs. I.e., protein, fat, glycemic load. The hard fixed carb ratio is only part of the dosing calculation. It also is different throughout the day, something they don’t tell us.

      3
      3 years ago Log in to Reply
    21. Chris Albright

      Usually changes based on season. I am more active in the ‘warmer’ months, so my boluses change a bit to accommodate additional activity.

      3 years ago Log in to Reply
    22. Joan McGinnis

      i don’t generally. i think my provider has changed occasionally

      3 years ago Log in to Reply
    23. Karen DeVeaux

      Never, but that wasn’t an option.

      3 years ago Log in to Reply
    24. Brian Vodehnal

      Only when my usual treatment procedure isn’t getting the usual results. I haven’t made a change in probably 8 years.

      1
      3 years ago Log in to Reply
    25. kim bullock

      When needed.

      1
      3 years ago Log in to Reply
    26. Carole Ludwig

      My Endo reviews all my charts at each visit 3-4 times a year. Se will make slight adjustments on my pump if she feels it necessary. So far…so good.

      3 years ago Log in to Reply
    27. Cristina Jorge Schwarz

      All my settings change with the seasons, I kid you not! My basal rates are first, then my ratios, ISF…

      3 years ago Log in to Reply
    28. Becky Hertz

      Other-whenever it is warranted.

      1
      3 years ago Log in to Reply
    29. Dennis Dacey

      Simply put, as my body needs change and I see a need.

      3 years ago Log in to Reply
    30. Sherrie Johnson

      Whenever I see a trend up or down only once in this last year. Went from 1/15 to 1/12

      3 years ago Log in to Reply
      1. Teri Morris

        So did I. I use 1/15 for most of the day, but 1/12 for lunch.
        Go us!

        3 years ago Log in to Reply
    31. Jane Cerullo

      Sometimes I seem to need more insulin for same amount of carbs. Sometimes my basal needs to be adjusted for night time lows. I am comfortable changing doses as needed.

      3 years ago Log in to Reply
    32. terrih57@msn.com

      I try not to mess with my settings unless I see a trend. I usually do it with the help of my dr /endo

      3 years ago Log in to Reply
    33. Karen Mielish-Clausell

      I don’t change carb ratios

      3 years ago Log in to Reply
    34. Teri Morris

      When I see my Endo she generally has some suggestions which make sense and I find it helpful.

      3 years ago Log in to Reply
    35. William Bennett

      Sometimes having a numeric value for a thing creates a sense of precision that isn’t necessarily reflected in reality. For all the tweaking, how often do you actually “stick the landing” bolus-wise with no adjustments after the fact? And when it doesn’t come out right, was that the fault of your I:C settings, or was it because you didn’t get the portion size right or didn’t know the cook added a big dollop of corn syrup to the glaze or whatever? Of course you have to have SOME basis for doing this, and I’ve done all the testing for basal rates, I:C ratios, correction factors, adjusted for times of day. But at some level of refinement these adjustments just kinda get lost in the error bars. After decades doing this my actual practice comes down more to experience, experience, experience, intuition, and CGM than on my Bolus Wizard, which I usually only resort to if I’m confronted with something truly unusual (“All right, I’m gonna have some of that pecan pie dammit!”). The whole promise of AID pumping is that your static settings are never going to be perfect and what you really need is a system that can adjust in real time to what’s actually happening. My own experience is that AID isn’t really there yet. But as CGMs have become more accurate the Wizard settings have become less crucial in terms of how I actually manage on a practical, day-to-day basis.

      1
      3 years ago Log in to Reply
    36. Jen Farley

      I make adjustments a lot. I keep a close eye on trends. The newest one has been a drop before dinner and before lunch. I have not been eating much lately, I have lost my appetite. So if it keeps on the next day or two I will adjust it and raise it in the morning, because every single morning it is high. I have heard about 3 reasons why. The newest is fatty liver. I have cut fat from my diet and lost 30 pounds. So, 30 more pounds let’s hope the fatty liver is not the problem and I can have breakfast again.

      3 years ago Log in to Reply
    37. PamK

      I was told to not change this ratio.

      3 years ago Log in to Reply
    38. Mary Ann Sayers

      Any adjustments to my insulin-to-carb ratio is done with my Joslin dr.

      3 years ago Log in to Reply
    39. T1D4LongTime

      I chose 2-3 times / yr. I normally wouldn’t touch the settings unless I see a change in TIR and/or StdDev. My situation is filled with high stress and caregiving, so I don’t change Insulin-to-carb ratio very often unless I see my boluses are no longer effective.

      3 years ago Log in to Reply

    How often do you make adjustments to your insulin-to-carb ratio? Cancel reply

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