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    • 13 hours, 38 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 39 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 30 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 57 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 10 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 2 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 9 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 31 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 33 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 40 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 5 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?
    Previous

    How did you schedule your next appointment with your main T1D health care provider?

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Kristina Chapman

      For Oct – Dec it was like $30….however we got a new policy with hubby’s new job and in January I have paid over $1500 already AND had to change every single one of his scripts 🙁

      1 year ago Log in to Reply
    2. connie ker

      I am a senior on Medicare with a great supplement and great drug program. The premiums are my monthly costs so these policies are a perk for growing old with T1D. The monthly premiums are not cheap however.

      3
      1 year ago Log in to Reply
      1. Patricia Dalrymple

        Connie, would you be willing to share what supplement you are on? I have to pick one next year and am trying to gather data from this group about which are the best. Thank you!

        1
        1 year ago Log in to Reply
      2. Sherrie Johnson

        Connie Sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra Continued success.

        1
        1 year ago Log in to Reply
    3. Bill Williams

      Since Omnipod isn’t covered under Part B, the donut hole is a killer for me.

      1 year ago Log in to Reply
    4. Patricia Dalrymple

      My insulin and test strips are free through my employer. The only cost are my pump supplies. I go to Medicare next March and am nervous about having to change once I retire.

      1
      1 year ago Log in to Reply
      1. Sherrie Johnson

        Medicare covers pump supplies and insulin as DME. Get a good supplement and they pick up the 20% that medicare doesnt cover.

        1
        1 year ago Log in to Reply
    5. Mick Martin

      $0 as I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      1 year ago Log in to Reply
    6. Tom Caesar

      Say $190 on supplies, $1,200 for insurances. Average $450 monthly, more than we spend for food!

      1 year ago Log in to Reply
    7. Jim Cobbe

      Very good Medicare Advantage HMO; $100 a quarter each for Tresiba and Fiasp, everything else no charge (includes both strips and Dexcom supplies and a box or two of syringes for under $20).

      1 year ago Log in to Reply
    8. Pauline M Reynolds

      I answered in error because I thought it was asking about the year. Sorry.

      1 year ago Log in to Reply
      1. Pauline M Reynolds

        Should have been $1 – $500

        1 year ago Log in to Reply
    9. Louise Robinson

      Of course, this doesn’t include the monthly insurance premium costs. Because it is a question dealing with the last quarter of a year, it also doesn’t include any applicaple insurance deductibles which are experienced earlier in the year.

      3
      1 year ago Log in to Reply
    10. AnitaS

      The only diabetes item I have to pay for is insulin which costs me $35 per monthly prescription. My blood test strips, pump supplies and cgm supplies are all 100% covered, so basically I paid a tad over $100

      1 year ago Log in to Reply
    11. lis be

      I answered 1-500, but this is a lot higher most of the year, especially January-March to reach deductibles. Also, I did not include the cost of seeing the full line up of doctors.

      1 year ago Log in to Reply
    12. Randy Mees

      I said 1$-500$ but it was that cheap only because I had already gone thru the donut hole and was covered by the catastrophic part of my insurance.

      1 year ago Log in to Reply
    13. Amanda Barras

      ZERO. But, website was still loading when I hit submit and it clicked N/A and then submit so my response was not recorded correctly…

      1 year ago Log in to Reply
    14. Vicki Breckenridge

      I would have said I paid zero dollars, but Byram delayed my shipment by 3.5 weeks so I had to go to Costco and spend $300 for sensors.😡

      1 year ago Log in to Reply
    15. Andrew Stewart

      My end of the year stock up (3 month supply) of Dexcom G6 sensors and 2 transmitters, Tandem t:slim cartridges and infusion sets and 4 vials of Novolog set me back $253. What a deal, I’m not looking forward to Medicare.

      1 year ago Log in to Reply
    16. LizB

      I get 90 days at a time for everything.
      Insulin – $35
      Test Strips – $75
      Infusion sets – $30
      Sensors – $30
      Total: $170

      I don’t get reservoirs every cycle because I use one for a week or more (whenever it’s empty) so I don’t need them as often. I sometimes skip refills of test strips as well.

      1 year ago Log in to Reply
      1. Anna Kiff

        You have private/company insurance? That’s awesome depending on what you pay.

        1 year ago Log in to Reply
    17. Sherolyn Newell

      $0, but I paid $3500 in deductible at the first part of the year.

      1 year ago Log in to Reply
    18. Molly Jones

      My dependent Premera plan requires no money to be spent on diabetes supplies all year long. I cannot find a similar plan when looking at Premera without my husband’s employer.

      1 year ago Log in to Reply
    19. Randell Cole

      No comment

      1 year ago Log in to Reply
    20. Randell Cole

      35.00 Dollars

      1 year ago Log in to Reply
    21. Randell Cole

      35 Dollars

      1 year ago Log in to Reply
    22. mbulzomi@optonline.net

      I use Medicare part “B” for all Insulin Pump and CGMS supplies. Nothing out of pocket, because on my Federal Blue Cross Blue Shield Secondary Insurance covers all rest.

      1 year ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021? Cancel reply

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