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    • 13 hours, 59 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 51 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 18 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 31 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 23 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 30 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 52 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 54 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 1 minute ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 26 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)?

    Home > LC Polls > How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)?
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    Before making changes to your insulin management, do you check with your healthcare provider?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    26 Comments

    1. Bob Durstenfeld

      I’ve done all of those things in an airplane seat.

      2 years ago Log in to Reply
    2. Janis Senungetuk

      I’ve done all but change an infusion site in a variety of public places without any problems. I would not be comfortable changing an infusion set in public.

      2 years ago Log in to Reply
    3. Ahh Life

      Times are changing. And so am I. Years ago (50? – 60?), I would go to the privacy of a car to inject, trying to insure people didn’t observe me shooting up heroin or something. Nowadays, however, I will and have changed out tubing in a crowded Starbucks. I feel almost aggressively “in your face, guys!”

      2 years ago Log in to Reply
    4. Joan McGinnis

      Doubt I would change infusion/sensor sites in public but injections at restaurant yes or blood testing.

      2 years ago Log in to Reply
    5. Ernie Richmann

      My preference is to change infusion sets and sensors at home. When I was not using a cgm and before covid, I often tested for glucose at a restaurant. I Don’t think anyone ever noticed.

      2 years ago Log in to Reply
    6. Steven Gill

      Out of respect to “squeamish” people I’ll test before entering a restaurant and ask others their comfort. I’ve changed my pump’s cartridge in the van midway through the day but would prefer to change the inserts in a better environment (Friday cleaned HVAC systems at 2 homes contaminated from fires, definitely needed a shower first). I’ve always had either an insulin pen or this pump so injecting at a meal was never a big deal but with the pen I’d make a joke in case someone wondered. I’ve seen people make a scene to test/inject as if it’s a badge of honour. I detested shots of any kind (had teeth pulled with nothing) so ironic I injected 5-6 times a day, so I see no need to make others uncomfortable. The biggest compliment l want is “You don’t look/ act like a diabetic.” Unsure what folks expect but I’m not handicapped (just old any tired).

      2 years ago Log in to Reply
    7. Janice B

      My preference is to change infusion sets and CGM sensors at home. First for cleanliness second because of placement on my body. Testing blood sugar or doing a bolus or shot I am completely comfortable doing so in public. I am very discrete so most do not even know that I have done anything.

      2 years ago Log in to Reply
    8. connie ker

      It seems the diabetic is comfortable with caring for themselves in a public setting, but often times the people around the diabetic are not comfortable. I have dropped syringes in a public toliet stall, my husband was chased in an airport by security but got away. My response after 22 years of LADA, is just to say “Be thankful you don’t have to do this every day of your life”. Or if anyone shows any interest in what you are doing, make it a teachable moment. I feel most comfortable in my own home with meals I have made for myself, so this quarantine period of the last 10 months has been diabetic friendly for me. Lonely but no public settings to deal with.

      2 years ago Log in to Reply
    9. William Bennett

      Those are all different things. When I was doing injections, I had no problem with public spaces because you can do it in such a way that isn’t very noticeable. I only had someone make a comment once, and it was another T1. Finger-sticks are pretty much in that territory. Changing infusion sets/sensor sites is a whole different thing. Almost necessarily requires removing clothing, for one thing. “Are you comfortable dropping trou in public?” Not so much.

      2 years ago Log in to Reply
    10. Anthony Harder

      I feel relatively comfortable, actually closer to completely comfortable. However, I attempt to practice discretion and excuse myself to a restroom or quiet corner rather than perform these duties in the middle of a dining room or in the middle of the train station, etc.

      2 years ago Log in to Reply
    11. Kristine Warmecke

      While I prefer doing site changes at home, that isn’t always possible. Most people don’t even realize what I’ve, unless they are T1D too.

      2 years ago Log in to Reply
    12. Ken Raiche

      I’ve got to admit I’m proud of my condition wish I didn’t have it but I’ve learnt to accept and manage it. That being said I have never ever been bothered one bit from day to display my condition and what I have to do in order to survive with T1D. So if I have to test, inject, change sites for CGM or infusion in public so be it.

      2 years ago Log in to Reply
    13. Sherolyn Newell

      I’ve never had to change a pod in a public place, but I would if needed. I would just put the new one on my abdomen where it only requires slight lifting of my top. If I have to test at restaurants, I do it out of sight. I don’t care if people see, but don’t want others to have to look at blood while they are eating.

      2 years ago Log in to Reply
    14. Helen Saez Deverter

      There is no need to feel uncomfortable about keeping yourself alive, with having T1D! No one has ever given me dirty looks.

      2 years ago Log in to Reply
    15. Amanda Barras

      I have no problem checking bloodsugar anywhere. But changing whole sets I prefer privacy because I usually lift my shirt way up or have to drop my pants a bit to access the sites I intend to use. So, that’s not appropriate in public most of the time.

      2 years ago Log in to Reply
    16. Britni Steingard

      Depends a little on the situation. I don’t mind doing that stuff in public but I want to be discreet about it. I don’t like it when the strangers are really close, like when the waiter happens to deliver our drinks in the middle of an injection or when I’m crammed in next to a stranger on an airplane. As long as there’s a little distance so I can maintain the illusion of privacy, I don’t mind at all.

      2 years ago Log in to Reply
    17. Meghan Larson

      I feel comfortable with injections and testing blood sugar. But, when I was on a pump, I did not feel comfortable with infusion set changes in front of people I did not know.

      2 years ago Log in to Reply
    18. Becky Hertz

      I said relatively comfortable because if my insertion sites are in such a place I have to partially disrobe, I’d prefer to not do that in public and I’m sure the public thanks me for that 😆

      2 years ago Log in to Reply
    19. Patricia Dalrymple

      Agree with the very few comments I can see here. I use a pump and never hesitate to give insulin or check blood sugar but I am discreet. Some people don’t like the site of blood. But I would never change an infusion site in public. As someone said below, I raise my top and lower my pants. Inappropriate. Now, if I were in real trouble and NEEDED to do it, then I would. Common sense.

      2 years ago Log in to Reply
    20. Pat Reynolds

      I have no difficulty with things that can be done without showing flesh where to do so would offend the culture I’m in, or qoyl be against my culture/sensibilities. I am mindful of those with blood and needle phobias, and they to avoid distressing people.

      2 years ago Log in to Reply
    21. Mick Martin

      Although I selected “I feel completely comfortable” I am fully aware of how this might affect SOME people, and choose to carry out these tests/set changes, etc. somewhere private. I’ve been situations, in the past, where someone that I know collapsed when she saw me testing my blood glucose level, and on another occasion where someone witnessed me injecting insulin, to be asked to leave the Public House as they believed that I was ‘shooting up’ illicit drugs … even though someone that was with me attempted, in vain, to reassure the owner that I am diabetic.

      2 years ago Log in to Reply
    22. Chester Oby

      I have changed infusion sets and sensors on airplanes. No problem.

      2 years ago Log in to Reply
    23. Carol Meares

      It’ not so much about the strangers but about the filth in such places. I will give injections at the table but not in a bathroom. I don’t change sites in public place like that for my pump. I did have to do it it on a plane once in a restroom and I was fearful of contamination. I have given shots in my airplane seat quietly and unobtrusively with a pen. With a pump and CGM I do everything pretty easily. I have no problem talking with people about T1D although I used to a long time ago.

      2 years ago Log in to Reply
    24. Donald Cragun

      I have no problem testing blood sugar anytime, anywhere. But, since I put infusion sets in my leg, I’m not going to undress in front of others when I’m inserting an infusion set.

      2 years ago Log in to Reply
    25. Greg Felton

      I use a pump and CGM these days so it is rare that I need to show the diabetes. I’m comfortable in public but if I can have privacy I’ll prefer that.

      2 years ago Log in to Reply
    26. Molly Jones

      I chose “I feel somewhat comfortable” as changing my infusion sites require taking off my bottom clothing and changing my sensor sometimes require showing my colostomy. Public injections and testing BG is fine and has been done often in the past.

      2 years ago Log in to Reply

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