Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 9 hours, 48 minutes ago
      Bob Durstenfeld likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 10 hours, 7 minutes ago
      Anneyun likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 10 hours, 7 minutes ago
      Anneyun likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Post meal spikes!!!
    • 10 hours, 14 minutes ago
      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 10 hours, 15 minutes ago
      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 10 hours, 15 minutes ago
      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 10 hours, 42 minutes ago
      John Barbuto likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 10 hours, 42 minutes ago
      John Barbuto likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Post meal spikes!!!
    • 11 hours, 24 minutes ago
      Gerald Oefelein likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 11 hours, 31 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Other. Trying to find a blood glucose balance or equilibrium, while dealing with gastroparesis, and celiac disease take a lot of mental energy. I'm on a constant roller coaster. It is exhausting.
    • 11 hours, 32 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 11 hours, 32 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Preventing highs? I found truly waiting for 15 minutes before eating helps a lot. Sometimes it’s not practical. And exercise. I worry as I age that I will get lazier. Keeping my mouth shut also prevents many highs. Nope, for me, Medicare has just been a nightmare, throwing wrenches into my routine.
    • 11 hours, 32 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 11 hours, 46 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 11 hours, 46 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Preventing highs? I found truly waiting for 15 minutes before eating helps a lot. Sometimes it’s not practical. And exercise. I worry as I age that I will get lazier. Keeping my mouth shut also prevents many highs. Nope, for me, Medicare has just been a nightmare, throwing wrenches into my routine.
    • 11 hours, 51 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      I find your answers truly humorous but often very informative.
    • 12 hours, 42 minutes ago
      Kathy Hanavan likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      I find your answers truly humorous but often very informative.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      On days when T1D feels more demanding than usual, what helps you get through it?
      I just had a few days of inexplicable highs. I'm literally wiped out. But after brainstorming and problem-solving, I think I found the culprit. I took some airplane rides in rapid succession, apparently, the pressure changes caused a large amount of air to be drawn into the pen chambers. Learned two things: (1) remove all needle tips from pens before flying (2) check the barrels of the pens after each flight for air bubbles.
    • 1 day, 5 hours ago
      kristina blake likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      Day to day I rely entirely on my self knowledge and understanding with over 60 years of experience living in a body with T1D. I do appreciate and rely on CGM technology that enables me to see current BG and trends on pump screen. Other than that, I don't use any bells and whistles apps, or crazy ass algorithms. When i need to I consult with my endo, or more likely, with another T1 PWD who may well have insights from their own real life experience to share.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I've been making diabetes decisions for 70 years, long before there was any adjunct technology. I have been in situations where I had to drop back and manage manually. I worry about my granddaughter with T1D, she has been on a pump and CGM since being diagnosed. She might not have he management skills. I am not sure she has even had to draw up a shot and inject herself.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I change all of my pump settings on my own as needed and override boluses for what I know I’ll need vs what the algorithm low-ball suggests.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I definitely use less insulin using my pump's algorithm than I would using my own guess. However, since I know how much my pump would give me for my typical meal, I would be pretty close to what it deems necessary. My pump is usually pretty correct. However, I do override the bolus the bolus or basal rates as sometimes I know other factors that don't go into the pump's algorithm calculations.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I said unsure. Before my pump and CGM, before using a glucometer, I would try to anticipate the answer. I was rarely spot on. But I see now that glucometer isn’t part of the unknown. Still, without my pump algorithm and especially CGM data which is basically on an app I am reading, I’m afraid my decisions would not lead me to where I am today where foot doc, eye doc, etc. say they would not be able to tell from those body parts whether I was diabetic. My Endo is probably way down the list. Yesterday, I was in-and-out in 10 minutes and ordered a script I told him I did not need.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I have been on this journey for 45 years. I have lots of experience dealing with decisions.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I took it that the assumption was having the test data and knowing what you've previously done already, how comfortable are you making a treatment decision. In that case, like you, after decades of doing it (even without the data), I'm fully confident. I'm sure you are too given what we've been through throughout the decades.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
    Previous

    Does your insurance plan provide any coverage for health coaching services?

    Next

    If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Research

    Type 2 Diabetes in Youth: A Rising Concern 

    Jewels Doskicz, 4 days ago 5 min read  
    Research

    Top T1D Exchange Research Highlights of 2025 

    Sarah Howard, 4 weeks ago 6 min read  
    News

    Diabetes Technology Insights: An Interview with Medtronic’s Chief Medical Officer 

    Jewels Doskicz, 1 month ago 4 min read  
    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 1 month ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 1 month ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 2 months ago 5 min read  

    24 Comments

    1. Anthony Harder

      My parents bought a life insurance policy for me as an infant before being diagnosed with T1D. I have never purchased life insurance individually because of the extremely high cost, proof of eligibility, and low benefit. I have purchased life insurance through employers, but extending it has the same issues as individual purchase.

      3
      5 years ago Log in to Reply
    2. Philip Bunsick

      I am not able to get life insurance on my own. I have high blood pressure also but for some reason the industry seems to think I am going to drop dead tomorrow. The only life insurance I am able to get is Group insurance or if I am luck to be able to get guaranteed issue – which I found and took advantage of for a small amount of coverage.

      5 years ago Log in to Reply
    3. Henry Renn

      In early 1980s had offer of group insurance for diabetics. Disqualified bc I was diagnosed before age 5. Missed cut off by 5 months. I’m still here. Dropped individual $10K policy that had been converted from group life after retirement. Increase in rates showed that company was encouraging people to drop it. Holding down funeral costs by choosing cremation & burial in church memorial garden.

      5 years ago Log in to Reply
    4. Kristine Warmecke

      I was lucky, my parents bought life insurance for myself & my brother before either of us were diagnosed. Thankful for this, as my brother was diagnose at 7 months old.

      5 years ago Log in to Reply
    5. connie ker

      Fortunately, I had life insurance before diagnosis and so does my son who is an adult now with T1D. He has very low premiums because he was young and healthy when his policies were purchased. My husband bought 2 policies rated up because of his T1D and the premiums ballooned higher and higher each year that he lived. We managed to keep those policies, but they became cost prohibitive as he aged into his 80s. I had trouble getting health insurance and was on the state high risk plan which was replaced with OBamaCare. Thankfully, the doors opened up that year and I could get onto Medicare with a supplement and RX plan. Who knows what to expect forthcoming.

      1
      5 years ago Log in to Reply
    6. Greg Felton

      I am lucky to get basic life insurance for myself through my employer’s benefit package, but I can’t “enhance” the policy without “evidence of insurability” (the insurer’s term) and T1 disqualifies me.

      5 years ago Log in to Reply
    7. Jimmy Boling

      Was able to purchase but was rated.

      5 years ago Log in to Reply
    8. Joan Fray

      Tried to get it when Our son was born, for myself, but t1d at age 12 made it way too expensive. We bought land in California instead. He will be well fixed when we die

      2
      5 years ago Log in to Reply
    9. Megan W

      I only have term life through my employer. I can increase it by 10k every year without having to do the evidence of insurability, so I do that as it isn’t too expensive. Otherwise, it is much too cost prohibitive or I won’t be approved to have a policy on my own. I prefer to save through other avenues because of that.

      5 years ago Log in to Reply
    10. Nicholas Argento

      Expense was a major issue. I was rated at 400% even with good control and no meaningful complications, many years ago. I got it with multiple small policies over time, some as term which did not require medical screening, but have now let them all lapse, because their cost was going up too much based on my age, and my kids are grown, etc. No longer worth it.

      1
      5 years ago Log in to Reply
    11. Derek West

      I did not have an issue obtaining life insurance but I did have to pay a higher premium because of T1d

      1
      5 years ago Log in to Reply
    12. Alison Neumann

      My mortgage company denied life insurance for me, but accepted for my healthy husband. Instead we went to our independent insurance agent who found a great life insurance option for me, although it is about $100 more per year than my husband, but I’m happy with the coverage.

      1
      5 years ago Log in to Reply
    13. Bob Durstenfeld

      The only way I could get life insurance that was not tied to an employer was on a chance employment that offered a roll over policy upon leavjng.

      5 years ago Log in to Reply
    14. Alyne Branson

      I have term life but it is more expensive than my husband’s and he has more family history or problems. All I have against me it the T1D.

      1
      5 years ago Log in to Reply
    15. Steve Rumble

      Years ago I was charged a higher premium for whole life. I subsequently cancelled that policy and obtained term life through my Federal employment. That policy got more expensive as I aged, but I had less need of the insurance once my kids were grown and let it revert to 25% (free) once I retired,

      1
      5 years ago Log in to Reply
    16. Jerome McClellan

      I have term but pay 3X what my wife’s premium is. Both the same age. Fortunately the policy has been the same price for 20 years and we’ll probably drop it in 4 years once my son’s out of college.

      5 years ago Log in to Reply
    17. Lynda Covello

      I find that insurance companies do not distinguish between Type 1 and 2, with the result that the larger and generally older Type 2 population obscures the Type 1 data and skews the ratings so that Type 1 is penalized with unfairly inflated premium rates — as far as i am aware, this hasn’t changed since 1983, when i first applied, at the 10-year mark of living with Type 1.

      1
      5 years ago Log in to Reply
    18. Ken Raiche

      No problem what so ever just super expensive.

      5 years ago Log in to Reply
    19. KarenM6

      I’ve been flat denied life insurance a couple of times. I didn’t even get a chance to be offered super expensive life insurance!

      5 years ago Log in to Reply
    20. Julie Akawie

      Like many have already said, my parents purchased LI for me as a child, which I’m certain has a TINY payout. I also get guaranteed coverage from my employer, but will never apply for any additional coverage that requires a statement of fitness. The actuaries do not seem to care that my A1c is below 6%, or that my weight is stable, or that people diagnosed before the age of 5 statistically have a lower rate of kidney failure or other life-threatening complications. Sigh. Now that my kids are older, it’s less of a concern, but I’m still a bit cranky about it all.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      Yes, I am unable to get an affordable individual life insurance policy. However, I always have taken out supplemental life policies through my employer. At exit from the company, they are normally convertible to private policies without re-enrollment questions about health conditions.

      5 years ago Log in to Reply
    22. Ginger Vieira

      Insurance companies treat T1Ds like we’re a walking death sentence. They’re basing this on extremely outdated data about the longevity of people with T1D and it’s really, really wrong!

      1
      5 years ago Log in to Reply
    23. Sally Numrich

      It has always been an issue. Anyone with diabetes or cancer is done. I can now only get it through work.

      5 years ago Log in to Reply
    24. NAK Marshall

      I was able to get it during the one time my school district (I was a teacher) offered it from a company that had no medical questions. I had researched and researched and no company would do it and they absolutely did not care how well controlled I was and had no side effects although I’d been Type 1 already for 35 years. so I was lucky.

      5 years ago Log in to Reply

    Have you had any issues obtaining life insurance because of T1D? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]